Confused: I had my fibroscan yesterday. I... - PBC Foundation

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Confused

Y-now profile image
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I had my fibroscan yesterday. I will see my liver Dr Monday. I have had a lot of issues going to work. A few months ago I put ion a claim for social security disability. I seem to call out more than work. Either I am swollen or abdominal pain or sick. On Tuesday I go to the ss Dr for mental exam. On August 1 I go to as Dr for physical exam. Hoping I am granted, since my income is little to non. And I am single with limited family financial support. Not to mention all my test and Dr appts monthly and how exhausted I am. It is overwhelming, depressing witch is making me anxious and flaring all my symptoms. I spend a lot of time in bed. Last week I was feeling pretty good and took on extra hours when I wasn't scheduled. But it took a toll on me I've been in bed since I got home from the fibroscan yesterday, I called out of work for today. Anyone else have the work problems like me?

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Y-now
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9 Replies
Shulsey profile image
Shulsey

ABSOLUTELY!!! I had to resign from a job I loved & worked hard to get because of this disease. It also took my career as a hair stylist. My last day of work was April 27th. Im in the middle of a disability case as well. I had my comprehension exam done, now Im scheduled for a psychological exam. I hate it, Im just 43 yrs old with children & no income unless my claim gets accepted. I pray daily something good comes my way. I completely understand where your are. All we can do right now is pray pray pray🙏🙏🙏

Y-now profile image
Y-now in reply toShulsey

I'm 50.. with 1 daughter 23 who lives in Massachusetts. And 1 daughter 18 leaving for college on August 26. I was able to get my gas, electric and cell phone bills that were all way past due about to be shut off, paid by a Catholic charity group. All of which were about 300 each. My parents and my aunt/uncle are helping me with car insurance and car payment. I go to food pantries and started my application for food stamps and utility help. Praying my SS gets approved. If I'm lucky I get $100 week now... when I used to bring in$700. This sucks. Sorry you're going thru this also.

Shulsey profile image
Shulsey in reply toY-now

Yes, it sucks. I get tired of depending on assistance. It's hard for me to take when I have always worked. I do live with my fiance who just barely makes ends meet. He has two kinds of his own that he needs to provide for. So I pretty much feel like more of a burden these days, on top of everything else. By the way, my name is Shannon. In stage 4 PBC with cirrhosis & small esophageal varicies, among other issues. Are you in the UK or the state's??

Y-now profile image
Y-now in reply toShulsey

I live in New Jersey. On an island. My name is Angie. I know the feeling of feeling like a burden. It sucks. I used to work 2 jobs and loved it. Took care of my house and kids. Coached soccer and we always were doing something fun. Now I struggled day to day. Last week I felt like my old self but it only lasted for 5days, than I was down again. I will find out exactly what stage I am on Monday. My psych eval for social security is on Tue. I just pray my claim gets approved. I am probably going to have to move back into my parents house due to my financial difficulties. If my depression wasn't bad enough. Lol. This site is a godsend. I will keep in touch

Shulsey profile image
Shulsey in reply toY-now

Nice to meet you Angie, & best of luck on your claim. Keep me posted on how things are going❤️

rogan29 profile image
rogan29

My work put me on there own disability scheme look into this please as your work might have this but not saying go to personnel

Shulsey profile image
Shulsey in reply torogan29

That's a little different than how we do disability claims where Im from. I've never heard of a business having their own disability. It's probably much faster to be granted disability through a company. I know of someone who has been waiting for a couple of years to get their disability granted & she suffered a really bad stroke, can't work at all.

Bakerc profile image
Bakerc

Im the same way. I miss at least a day a week if not more. Im torn because i need the money and insurance. But my body suffers. If when i go to work i struggle with fatigue and concentration. My Anxiety gets so bad at times it limits what I can do at work not to mention the muscle loss and weakness. Sorry for the long response. Hope you are able to get disability and start feeling better. Hugs

Michiganpbc profile image
Michiganpbc

I can't work anymore, too ill and fatigue is terrible most days.

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