PBC infertility and risks to baby - PBC Foundation

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PBC infertility and risks to baby

Jhenderson profile image
3 Replies

Hi I've been referred to the infertility clinic due to probable PCOS. Dies anyone have any advice about pregnancy and PBC.

I have only just been diagnosed with AMA's when the doctor was investigating my infertility. I see the infertility clinic on Tuesday but my appointment with the liver specialist isn't to May.

Any advice or experiences are appreciated . I've read threads on here about women losing their babies at 17 weeks due to spikes in their bile and I'm concerned.

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Jhenderson profile image
Jhenderson
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3 Replies
Photodreamer76 profile image
Photodreamer76

Hello! I was dx'd at 36 yrs old and had a baby at 38 years old. In my personal experience, my pregnancy was without complication. My liver enzymes, bilirubin and alk pros levels were all normal. In all actuality, I never felt better. It was about 8 months after I had my daughter that my levels elevated. They were barely elevated, but I did have inflammation in my liver as well as a couple lymph nodes. I didn't feel well for a while after that. It wasn't till my daughter was about a year and a half when things finally started to calm down. I think I could have helped things a bit more by watching what I ate. You know, new mommy, grab as I go kinda thing. Never the less, I was monitored very closely the whole pregnancy and after and we're all ok. Best wishes to you in your journey. You've got this!

Loopyblue profile image
Loopyblue in reply to Photodreamer76

Hi j Henderson.

Personally I never felt better when I was pregnant . I was 40 my liver enzymes improved during my pregnancy. I have a gorgeous healthy(fingers crossed) boy now 9. Good luck to you and yours.

Debbiem40 profile image
Debbiem40

Hi I was diagnosed 14 years ago just after the birth of my son. I went on to become pregnant, by IVF 10 years ago. My PBC was hardly mentioned... however, I lost my baby boy at 15 weeks. An autopsy confirmed it was through my "Sticky" Blood, PBC was never cited as a cause, and to be honest until recently and after reading a couple of posts on here I've never thought of there being a connection. Good luck with your IVF xx

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