Feeling terrible when I wake with stage 4 - PBC Foundation

PBC Foundation

9,387 members7,992 posts

Feeling terrible when I wake with stage 4

Oscardog profile image
6 Replies

I wondered if anyone feels terrible when they wake up. Its had to explain what the feeling is like, a bit sick, legs and arms trembling inside, aching, not flue like, well, just like perhaps an overdose of very rich food even though I dont eat that. I am stage 4 which is cirrhosis and have to eat carbs before bedrime due to muscle wastage but even when I don't eat anything then I still feel awful. Gets better during the day.

Thanks for help.

Written by
Oscardog profile image
Oscardog
To view profiles and participate in discussions please or .
6 Replies
Ktltel profile image
Ktltel

please, tell me more about this achey arms and legs? How did they test for muscle wastage? And what kind of carbs do you eat for that?

I've had muscle aches and weakness for years, they keep ignoring my complaints. I don't eat simple carbs. Rarely complex carbs. I thought protein helped muscles. I understand with the compromised liver protein probably isn't good for you. Is this correct? Thinking of you.

Stella

kimphoebe profile image
kimphoebe

Hi

I also wake feeling terrible bit like a bad hangover. I also at stage 4

Maureen25 profile image
Maureen25

Hi i have had PBC for a year now and sometimes i wake with head fuzzy feeling general unwell but cannot explain it. Hate the sick feeling it effects my eyes blurred vision by afternoon start to feel better. I find that i shake and unsteady on my feet. Dr don't want to know ask your consultant as if you can contact him like a click of my finger. I Just live with it.

tinypixie profile image
tinypixie

I also feel hungover when I wake up despite drinking no alcohol. It's worse if I have an evening meal. It seems to improve after forcing down some breakfast. My liver condition has not yet been diagnosed despite high ALP, ALT, and GGT.

kgohn profile image
kgohn

I was diagnosed 3 years ago at stage 2. Just found out Friday that I've now progressed to stage 4. The doctor told me to eat a high protein diet as it helps with losing muscle mass and wasting. She said they used to recommend low protein, but that has changed. Also low salt, b vitamins, coenzyme q10, calcium with vitamin d. I'm gonna see a nutritionist to get some help in figuring this diet out ...

tonia17 profile image
tonia17 in reply to kgohn

Kghon, what did your nutritionist tell you?

You may also like...

Feelings of sadness with pbc stage 4

probably will be too late for transplant when I at at end stage as it seems to finish at 70. I have...

Diagnosed with PCB stage 4 urso effective?

effect? I would also like to here how long others have been in stage 4 (who are, just like me,...

Constipation or free fluid with stage 4 pbc

since I posted on here but a few days ago I had terrible watery diarrhoea then my stomach filled...

stage 4 PBC

are in stage 4 without a transplant? I know it is probably different for everyone but I would like...

Stage 4 PBC

Yesterday I found out I am now in stage 4 PBC. I was put on my doctors cirrhosis watch list and...