Hi
It is my 4tm month running on urso.. Everything is under control except burning sensation in my hands and feet .. It started bad as soon I started urso and slowly it is been less but not completely gone which makes me difficult to fall sleep and I sweat once in a while even in a ac..
Thank u !
I am now some 10 years on from initial diagnosis. I take Ursofalk and have had an odd sensation in my feet for years. On mentioning this to my GP it did not seem to be of any importance but when you next see your specialist do mention it as they will probably be able to reassure you.
stay well, best wishes
thank you very much. i don't when im going back to dr. but i will definitely call him about my symptoms. was your sensation began after u start urso. he just told me couple weeks ago that i have hyperthyroidism too. soon im going to endocrinologist too. i have a frequent sensation in my genital too.. does anyone has have experienced.. i did all kinds of treatment but still there..
Hi Sachin1234
It is now so long ago I do not remember when the sensation started however I used to only notice it at night but more recently I notice it all the time, maybe I juat have more time now to notice my ailments!
Definitely mention everything to the specialist, sometimes it helps to write it down as you experience things (keep a diary) and then when you see the medical people it gives them a clear picture.
best wishes
i will
Hi. Its been 15 years since I was diagnosed with PBC and the last couple of years I have had a burning sensation in my left foot. I just laughed it off. It was so strange. It comes and goes and really doesnt bother me. I mentioned it to my GP but she said it was nothing. I will definitely tell my consultant when I wee him next month. It would be interesting to know if it is the Urso which causes this. I have been taking Urso for the past 15 years and havent noticed any other symptoms.
best wishes
thank you
HI, My toes are numb especially in the evenings, and my fingers tips are sore.
I stopped Urso three weeks ago because I was totally locked with constipation and I couldnt stand it anymore. I had a blood test last week so it will be interesting to get the results. best wishes
I have similar soundong sensation sort of itchy and hot at same time. It was at its worst when I was first ill but pregnant as well so liver under more strain.consult told me that it was toxins that should of been cleared out by the liver were moved to the extremities .this is 16yrs ago so this may mow be out of date info. This however was before I started urso.since my son was born I still get it but npt so badly.if I have a busiier time then it gets worse.hope this makes I bit of sense.it may be completely different but sounded similar. I find that I get lots of strange sensations inside and out...I usually when I ask don't get any useful answers but if you are suffering from something then do speak to doc/consultant as pbc can easily be blamed for things that are unrelated. This website is good for that as it means you can discover how other people are feeling. Hope this is of some use. Good luck .cazer
Hi, my neurologist says I have small fiber pheripheral neuropathy and says it linked to my polycystic kidney disease. He says even when you have tests because the fibers are so small, he was going to refer me to Leeds General Informary, Tissue department. I am on amitriptyline, it does help because I can sleep a bit better at night. My hands and feet sometimes are hot/cold/on fire and it makes it difficult for me not being able to use my hands and my feet with the mobility side as I struggle to walk because of the pain.
LFT's have returned to normal...do I still have PBC?
Urso and rapid weight gain
Hair loss
Skin pigment changes
