New PA diagnosis

[Bacca]

Hi all

Recently found to have autoimmune gastritis with stomach polyps. I also have Hashimotos (autoimmune thyroid addressed & on meds) and ckd stage 3

I was given the B12 loading dose of 6 injections. I read since a high intake of B12 is not good for the kidneys?

Does anyone know if this is the case, I don’t think I can wait for the next nhs injection in 2/3 months and contemplating SI.

Many thanks for your help

[Jillymo]

Hello and welcome,

B12 is water soluble and none toxic.........

Is too much B12 hard on your kidneys?

Typically, excess vitamin B12 exits the body through urine and does not pose serious toxicity concerns. However, there is some research that indicates those with kidney function loss due to diabetes may experience quicker kidney deterioration when they take high doses of vitamin B supplements.

I hope the above puts your mind at rest.

[Bacca in reply to Jillymo]

Thank you for replying jillymo

Funnily enough I tried a B complex awhile back, great first day, had the jitters the next. But prob because B12 not addressed at time, which needs sorting before adding folate.

Just had OATs test result showing low B12, B2, and B6. So may progress with just those after upgrading B12.

Thank you

[palmier]

The daily requirement of b12 is tiny compared to many other vitamins, so even a large dose of 1 mg is still smaller in mg than for example the daily requirement of b3 which is around 15 mg or vit c 75 mg. Maybe that means that it's not too bad to take some extra b12, but I don't know much about kidney disease, so I can't say for sure.

[Bacca in reply to palmier]

That’s interesting palmier! So much to learn. I will keep digging.

Thanks for your reply.

[wedgewood]

No , it’s not the case . There has been a misinterpretation of a report about a kidney disease which can cause a high B12 blood serum reading … .DEFINITELY NOT THE OTHER WAY ROUND . Go ahead and take the B12 injections that you need without any worry .

Best wishes .

[Bacca in reply to wedgewood]

Hi wedgewood

I def feel better for the B12 but not looking forward to SI (hate needles-past bad exp). Just thought I can check with kidney crowd on here as well, it’s all getting complex with multi autoimmune issues. Just get on top of one and another pops up…..🫠

Thanks so much for your reply

[wedgewood in reply to Bacca]

You don’t have to inject by the Intra-muscular method ( I.M.) , for which you use a 26G x 1inch needle . You can inject using the sub-cutaneous ( sub-cut) method using a 30G x 1/2 needle which is shorter and finer , which you might find less intimidating . Doctors for some reason only use the I.M. method . But we know that sub-cut works just as well . . It is written on the packets of our B12 ampoules that we get from German on line pharmacies . You can use an even shorter needle than 1/2 inch for sub -cut . That injection goes into the fat layer on your tummy or across the front of your thigh .

[Bacca in reply to wedgewood]

Yes I I’ve seen lots of discussion on here about various needles etc ….. 🤢

I’ll have to dig out my big girl pants….

Thanks wedgewood

[Jillymo in reply to Bacca]

Jumbo knickers it is for you Bacca. 🩲

Wear with pride. 😘

[wedgewood in reply to Bacca]

It is scary the first time you do a self-injection , ? I had to have. very large G & T beforehand !) ! But 10 years later , I’m not a bit bothered !

There is also a numbing cream ( Amazon ) if you are nervous .

Best wishes .

[Litatamon]

I have one kidney, so when I was diagnosed I was fearful of doing anything to lower my GFR. I reached out to a member who has taken cyanocobalamin for decades (usually the culprit mentioned due to small amounts of cyanide) & they had not seen any decrease in their kidney function.

I exhaled.

At some point my GFR lowered. A lot. Back to the drawing board.

However, interestingly enough after my thyroidectomy and thyroid hormones given over time it has gone up 15 points.

We are all told down or steady is the only way a GFR goes, but do note that thyroid issues can impact kidney function, obviously temporarily if treatment is given.

All the best to you.

[Bacca in reply to Litatamon]

Crumbs that was scary!

Most recent blood test showed my GFR had gone up a few points, poss mix of extra fluids before test and thyroid issue addressed.

Also my dad has ckd and his GFR dipped after op but climbed again after some time!

I’m tempted to trial some T3 but will sort b12 out first ……🤔

Thanks so much for your reply