Spine and head reversing out? - Pernicious Anaemi...

Pernicious Anaemia Society

32,243 members23,421 posts

Spine and head reversing out?

Oneash profile image
6 Replies

So a year into treatment and 9 months of SI. When I first had my loading doses my psoriasis cleared up significantly. It came back in the gap before my next injection and has not left.In the last couple of months, I've had noticeable increase of psoriasis on the back of my head and neck. Headaches are frequent, though not often severe. Very stiff, crunchy neck. I have a blockage point at the back of my skull on the left and sinus discharge, particularly at night, which then ends up in disturbed nights. Yes hay-fever season doesn't help. I've had a few incidents of memory loss, confusion about where local roads go. I thought my husband had come in and was in the house, when he wasn't, which was very unsettling. Getting a family member's birthday wrong, despite having been told. My brain spinning at high speed with random images, when I'm trying to go to sleep.

I'm just wondering what happens when reversing out, in terms of brain and spine? How does any crap get sorted away by your body? Everything feels inflamed. Is this PA reversing out normal, or something else?

Thanks for any thoughts.

Written by
Oneash profile image
Oneash
To view profiles and participate in discussions please or .
6 Replies
Technoid profile image
Technoid

I'm not sure that early treatment decline would still be happening a full 9 months into regular B12 SI. I think probably something else is going on.

brenanddave profile image
brenanddave

Sounds like you need more b12.

MrsTuft profile image
MrsTuft

how often are you injecting? Is your folate, ferritin and vitamin D at optimal levels?

Oneash profile image
Oneash in reply to MrsTuft

I'm self injecting every other day. I take a 400ug folic acid pill daily. I'm putting epsom salts round my feet in the bath, when I have a shower. Not sure about the other 2, I guess we are not having much of a summer. My iron hasn't been an issue.

MindfulSquirrel profile image
MindfulSquirrel

Whilst all viral infections take my progress a few steps back, the only one of those symptoms that gets worse with no apparent cause is the crunchy neck. I also have hypermobile Ehlers-Danlos (connective tissue issues), which I think is more likely the culprit. However, I do think it’s impacted by my folate levels though and there is a proposed link between folate issues and hEDS/symptomatic hypermobility. How’s your folate atm?

In fact I had a whole load of issues relating to folate but I won’t storm in with them unless you have reason to think your folate response is off too…

Oneash profile image
Oneash in reply to MindfulSquirrel

Don't think that's me. Probably more to do with poor recovery after conch bulosa & deviated septum surgery, I most likely needed B12 then, 12 years ago. Also psioritic arthritis possible. I'm back to taking ibuprofen, even though it bungs me up and isn't good to take if you have Anemia.

You may also like...

Risk of reversing out for A'levels

issues around, but I'm anxious about stories of 'reversing out' with worse symptoms before she...

Reversing out - internal vibrations and muscle rigidity.

rigidity/tightness? And internal vibrations? I had both, but while reversing out it is like mega...

Reversing out worse than actual symptoms

weeks and now on monthly once. I had reversing out effects where I had gastritis, heart...

Did anyone else feel some heightened symtpoms, and feel really down while 'reversing out?'

heightened symtpoms, and feel really down while 'reversing out?' I am feeling certain symtpoms...

Is it reversible?

I have had serious brain damage in 2018.. since then I have been taking hydroxocobalamin injections