PAS Newsletter Available & A Question - Pernicious Anaemi...

Pernicious Anaemia Society

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PAS Newsletter Available & A Question

RoseFlowerDew profile image
3 Replies

PAS has issued a new newsletter:

pernicious-anaemia-society....

I have a question though. I had clinical low b12 and positive GPC antibodies but doctor insisted that I call my condition autoimmune B12 deficiency rather than Pernicious Anemia…..can I take part in the research?

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RoseFlowerDew
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Jillymo profile image
Jillymo

Completed questionaire

Thanks for posting.

Sleepybunny profile image
Sleepybunny

Hi,

Thank you for posting the link to the newsletter.

"can I take part in the research?"

You could contact PAS and ask them.

pernicious-anaemia-society....

Have you checked your medical records ?

GP called it Autoimmune B12 deficiency but it might be recorded as PA in your notes.

Accessing Health Records (England)

patients-association.org.uk...

Some people access test results and medical records with NHS app.

nhs.uk/nhs-app/nhs-app-help...

Sleepybunny profile image
Sleepybunny in reply to Sleepybunny

I was intrigued by the mention in the newsletter of a GastroPanel® to help identify autoimmune atrophic gastritis.

I wondered if this was available anywhere in UK.

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