Increased headaches after b12 injecti... - Pernicious Anaemi...

Pernicious Anaemia Society

32,066 members23,216 posts

Increased headaches after b12 injections?

CanaryHound profile image
4 Replies

My spouse started b12 injections week ago, and taken every day to address PA. They also suffer from chronic, persistent head pain (several years, now). It’s been classified as new daily persistent headache.

Anyway, this week, the head pain has gotten worse. Could this be connected to the b12? Should we slow down the dose to once or twice a week?

Written by
CanaryHound profile image
CanaryHound
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Nackapan profile image
Nackapan

The loading doses gave me more severe headachex / migraine worse tgd day after the injection May be an idea yo spread them out more.

Depends on how low or how severe the symptoms are.

Other countries do have different regimes

Weekly ect

Depends if you Csan get your surgery to agree

For me the headaches calmed a bit after 6 days after last loading doses.

Still had problems but not daily

wedgewood profile image
wedgewood

We often read on this forum how PA patients symptoms worsen when they start treatment .It is said that that is how healing and improvement starts for quite a few . No, keep on injecting us my advice .

lambuth_eagle profile image
lambuth_eagle

I had headaches in the beginning and found increasing my potassium intake to help.

Sleepybunny profile image
Sleepybunny

Hi,

Some people can experience a drop in potassium (hypokalaemia) when B12 treatment first starts.

Has the doctor checked potassium levels?

This UK link mentions some possible side effects from hydroxocobalamin.

BNF Hydroxocobalamin

bnf.nice.org.uk/drug/hydrox...

Other b12 info...

PAS (Pernicious Anaemia Society)

Based in Wales, UK. Has some members not in UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

Latest PAS newsletter mentioned a new PAS support group in Chicago area.

B12 Deficiency Info website

b12deficiency.info/

B12 Awareness (US website)

b12awareness.org/

US link about PA

rarediseases.org/rare-disea...

Stichting B12 Tekort (Dutch website with English articles)

stichtingb12tekort.nl/weten...

B12 institute Netherlands

b12-institute.nl/en/3858-2/...

Two useful B12 books

"What You Need to Know About Pernicious Anaemia and B12 Deficiency" by Martyn Hooper

Martyn Hooper is the chair of PAS (Pernicious Anaemia Society).

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (USA authors)

Very comprehensive with lots of case studies.

Films and videos about B12 deficiency

PAS conferences

pernicious-anaemia-society....

Films about b12 deficiency

b12deficiency.info/films/

Wall Street Journal article about B12 deficiency

wsj.com/articles/vitamin-b-...

Link to a talk in US given by Sally Pacholok , author of book "Could it be B12?"

antiageingconference.com/pp...

I am not medically trained.

You may also like...

Increased tingling and burning feet AFTER B12 injections

condition and how it’s getting worse by the month and as I increase injections - it’s been 7 months...

Increased symptoms after injections.

18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised...

Increased symptoms after injections

advice. So I decided to SI hydroxocobalamin every day for a week about 1 month ago and the effects...

Pain after B12 injection

thigh' too. Does anyone else suffer pain or discomfort after injecting into their thigh? I...

Daily headaches after b12 deficiency

in legs. I have now started daily/weekly/every other day injections of b12. And am also taking a...