Is Methylcobalamin necessary? - Pernicious Anaemi...

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Is Methylcobalamin necessary?

38yroldmale profile image
15 Replies

I believe I have PA with severe neurological symptoms. I have heard Methylcobalamin is the best for neurological symptoms? I hate it. It makes me anxious and feel off, is it “it will get worse before it gets better”? I definitely have felt better physically and my mental health is worse. I have shots of cyn. B12 and gives me 0 side effects. Does it work as well?

I am willing to deal with this if it gives me a better chance to heal.

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38yroldmale
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15 Replies
Nackapan profile image
Nackapan

Yes. If methylcobalabin is giving you bad side effects stop it.

You've enough to contend with .

In the UK hydroxcobalamin is used.

I also had severe neurological symptoms

I've only read from members the side effects of methycobalamine have never used it .

Only b12 tablets of it

My friend in Canada tried it but gone back to cyanocobalamin .

B12 is b12.

It's seems to all be converted in the body anyhow

I hope you make improvements soon.

Gambit62 profile image
Gambit62Administrator

You aren't alone in experiencing bad side effects from methylcobalamin.The stuff about methyl being a more natural form is likely to be either the result of someone looking at something quite old and drawing the wrong conclusion or it is sales hype. Methyl is an analogue of one of the two forms of cobalamin used to help in processes that go on in your cells but the process of getting the B12 in to your cells involves removing the methyl bit of the molecule so it is available as cobalamin in the cell to be combined with either methyl or adeno as needed, so no real advantage in taking methylcobalamin.

That isn't to say that others always find it useless - some find it helpful - just that if it doesn't work for you then there is nothing that says you should use it because it is better.

wedgewood profile image
wedgewood

I once tried Methylcobalamin for several months having believed the “hype” . I had no side-effects , but found it no better than the B12 that we use here in the U.K, namely Hydroxocobalamin. I think that you are well served using Cynocobalamin. , the most commonly used injectable B12 in the USA. Hydroxocobalamin has replaced Cynocobalamin here in the U.K. , as it supposedly stays in the system longer , therefore requiring less frequent injecting .

I see that the fancy “ beauty clinics “ often use Methycobalamin for “weight loss “ and “anti-ageing” , and charge ridiculous sums. It’s it honestly just “Hype”

Just keep injecting Cynocobalamin,

I hope that you will experience better health very soon .

PS. Do take a modest B9 , folic acid tablet daily ( 400 mcg , the strength recommended for pregnancy ) Works together with B12 .

Yaba profile image
Yaba

Hi 38yroldmale. During my research in my own deteriorating health, I've learned that when we start to feel like an old car and no longer like a NEW ONE, it's because of our own choices. When God gave us this body it was brand new, like a car just getting out from the dealer house. It was up to date. But once it steps out from the dealer, the care of it it's on Us. Change oil, good quality gas to keep engine healthy, etc.There's a say... You don't know what you have, till you miss it! All true. When we had just gotten out from the dealer health we didn't neither argued nor praised about it. DON'T GET TIRED READING, IM GETTING TO THE SUBJECT.

As I'm searching for my health: always sleepy, chronic fatigue, tingling on fingers, messy brain, debilitating arms and legs, depression, etc, one simple search got me to another deeper search, and all our mess starts in the food and supplementation or the lack of it or if you don't take the better available supplementation and food. How do i know that. Because if we read closely ever detail of what each vitamin do to each part of the body (eather vitamins from food or multivitamins), and we dont eat well an neither take religiously our supplementation, is no wonder we are suffering from this and that, and when we name the illness we are saying: from a long time ive not taking the supplementation that would have kept this and that in an optimum way in order for me to keep feeling like a new car.

Methylcobalaine is the best human dody absorbable way to take. Instead of Cyanocobalamin which body won't absorb.

In other words, when a person feels good since body is not still deteriorating, and dont exercise, and doesn't eat right neither take supplementation in order to all those good parts keep being good, it is like getting a car right from the dealer and go straight to put the cheapest gas, hit the car with other cars, bang the door when closing it, get in the seat with salty water from the beach on you, let your cats scratch it, and directly from dealer lend it to your worst driving neighbor.

And that my friend is our taken careof health today!

USmedsyssucks profile image
USmedsyssucks in reply toYaba

I assume you aren't trying to be abrasive, but for some perspective, telling people that their (often genetic) health issues are produced from their own actions is extremely demoralizing. Yes, some people trash their bodies and produce their own issues. Others go above and beyond to take care of themselves and still end up with crippling illness. Children are born with cancer. People are injured in accidents while simply trying to make a living. More pertinent to this post is the fact that people with PA or other forms of B12 deficiency have a genetic defect underlying the condition - it's not simply that they haven't taken care of themselves. When people are suffering from a condition largely out of their control, the last thing they want to be told is that they caused their own pain. The fact is that some people just aren't given a body like a brand new car to begin their life.

As others have said, the basic mechanism for transport and metabolism of B12 is the same regardless of the type of B12 taken. However, as people do react differently to different forms of the vitamin, I would argue that we don't know the entire scientific picture. In my experience and opinion, 38yroldmale should take the form of B12 that makes them feel the best with the least side effects because at the end of the day, how they feel is really what matters.

Yaba profile image
Yaba in reply toUSmedsyssucks

Sorry if it was misunderstood. And not trying to be abrasive at all. Im speaking from my still ongoing health experience. That im still on the boat on doing the doctors job since they don't even try to find what i have. Ive been even told by my Dr that i have enlarged and fatty liver, and that i have to learn to live like that. It was affected due to Epstein Barr EBV and is even affecting my brain and nerves. High B12 is like that since B12 is worked and distributed on the liver. And if the liver is affected, guess what? I said Na ah. And went straight to a Naturopath. What i was trying to say is that if in our health a person have to see things in a larger perspective and create like a puzzle to get to the root. Not just look at a high vitamin or a low vitamin. It is more than that. Is even deeper than that.

jimmel196 profile image
jimmel196 in reply toYaba

I don't believe developing PA has anything to do with lifestyle choices. I believe you are in error on some of your post.

in reply toYaba

Firstly not all brand new cars are faultless less than 100 miles on the clock and our car has been recalled.Secondly obviously my gran, then mum must have been faulty in producing three of us with the same fault ! B12 deficiency.

Yaba profile image
Yaba in reply to

Hi Sallyannl. My mom also has EBV and what im trying to say is to go deeper and do something no matter if genetic or not. Due to whatever illness, everyone needs to go deeper for a better health. Deeper means research

38yroldmale profile image
38yroldmale in reply toYaba

I am in actually in better shape than 95 percent of people. I have Parkinson’s and PA. I exercise at least 6 times a week, usually weights training 3 times and Cardio 3 times. Mediate 1 hr a day. I understand, most people want to take a pill to feel better with no effort.

Yaba profile image
Yaba in reply to38yroldmale

Exactly. You are doing your part. Even if you still have health challenges, they maybe will be worse, if not doing exercise. Right now due to the EBV, a car accident back injury, im having back therapy sessions with Quiropract cause medicine is not doing anything fir me. So when my back gets better i could exercise again, which is next

MoKayD profile image
MoKayD

I tried methyl twice and it made me feel horrible. It gave me horrible anxiety and insomnia. I'll never take it again. Read this article from 23 and me. blog.23andme.com/health-tra... It give you the facts about this subject.

Reembow profile image
Reembow in reply toMoKayD

oh my god so did I. Horrific side effects

Reembow profile image
Reembow in reply toReembow

and I spoke about them in this forum years ago but I think I was one of a few

jimmel196 profile image
jimmel196

Just curious, what neurological symptoms are you having?

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