Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for November 2020

Anybody recognise these symptoms

hello Iv been looking for answers for 10 years b12 came normal folate high but still haves these symptoms does anybody relate to these , any input will be much...

hello Iv been looking for answers for 10 years b12 came normal folate high but s...

Sibby123

•4 years ago

55 Replies

Help for my daughter's diagnosis please

need to help my daughter with diagnosis... She is 28, and for 5 years has suffered numbness in toes and finger and optic neuritis twice. Originally we paid...

need to help my daughter with diagnosis... She is 28, and for 5 years has suffer...

Hidden

•4 years ago

15 Replies

World Kindness Day

Nov 13 is world kindness day. It’s important to be kind to others but if you have PA remember to also be kind to yourself. I’m a few days off getting my...

Nov 13 is world kindness day. It’s important to be kind to others but if you ha...

LadyBothwell

•4 years ago

2 Replies

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B12 on sale

I've just noticed that 100 vials of B12 is down to €50 on versandapo https://www.apo.com/vitamin-b12-depot-rotexmedica-injektionsloesung-100x1ml-pzn-03862305

I've just noticed that 100 vials of B12 is down to €50 on versandapo https://www...

Luac

•4 years ago

6 Replies

B12 reinstated

Finally think its sorted for my mum . Wasnt done today as district nurses wanted to check prescription there. They 'accepted referral ' put in for a third...

Finally think its sorted for my mum . Wasnt done today as district nurses want...

Nackapan

•4 years ago

11 Replies

Should I stop b12 injections and iron supplementation prior to a liver functional blood test and platelet count test?

Would it be recommended to stop b12 and iron supplementation prior to a blood test that analysis liver function and platelet count? If so, by how long before...

Would it be recommended to stop b12 and iron supplementation prior to a blood te...

Dolansan

•4 years ago

2 Replies

ALS or Pernicious Anemia

My mother was diagnose with ALS and died Sep 1997. I was diagnose with Pernicious Anemia 6 months ago. Could she have been misdiagnosed with ALS.

My mother was diagnose with ALS and died Sep 1997. I was diagnose with Perniciou...

lavada12

•4 years ago

6 Replies

Hydroxo v’s Cyano (UK)

Apologies if this post has come up twice. I tried to post last night and the post appears ‘stuck’. This is the short version. I spoke to my GP on the phone...

Apologies if this post has come up twice. I tried to post last night and the pos...

Cinders70

•4 years ago

9 Replies

Any?

Is it anybody out there that's going through a b12 deficiency and acid reflux? And can you take magnesium with b12 liquid

Is it anybody out there that's going through a b12 deficiency and acid reflux? A...

Sochill53_

•4 years ago

10 Replies

Serc

Has anyone had this drug? I've been advised to try it . Ive had two bad experiences trialling two things early last year. I csnt seem to find any...

Has anyone had this drug? I've been advised to try it . Ive had two bad experi...

Nackapan

•4 years ago

12 Replies

NHS England update

I replied to keep the case open for my mum. I've now had a curt reply to say the case has been closed. NHS England do not commission district nurses. Centrak...

I replied to keep the case open for my mum. I've now had a curt reply to say the...

Nackapan

•4 years ago

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B12

Hi . Could anyone tell me if 424 is low, normal, or whatever. Thanks in advance

Hi . Could anyone tell me if 424 is low, normal, or whatever. Thanks in advance...

donnabrain

•4 years ago

11 Replies

NHS England

I wrote using the link sleepybunny kindly supplied. They advised to write to the practice manager. They offered to forward my concerns to the practice manager...

I wrote using the link sleepybunny kindly supplied. They advised to write to th...

Nackapan

•4 years ago

2 Replies

Can you recommend a video to show where to inject in thigh intramuscularly

Hello everyone I have started to inject and I seem to be doing ok but I’m plagued by endless questions that you will probably find daft. I’m worried I’m...

Hello everyone I have started to inject and I seem to be doing ok but I’m plague...

Scou

•4 years ago

10 Replies

Gas and chest pain

Sorry I’m very new to this, since having my course of 6 B12 jabs and taking a daily supplement of 150mcg of B12 I have a lot of wind and mild chest pain mainly...

Sorry I’m very new to this, since having my course of 6 B12 jabs and taking a da...

tantoller

•4 years ago

3 Replies

drop in b12.

A while ago a doctor ordered blood tests for my b12. These tests were taken just 2 weeks after I'd had my b12 injection. The resulting level was 571. 23rd...

A while ago a doctor ordered blood tests for my b12. These tests were taken jus...

barbegrub

•4 years ago

16 Replies

Worn out

Hi I'm new here, I've been on b12 injections every 8 weeks of many years my doctors told me i had to have a b12 holiday back in September 2018 because my...

Hi I'm new here, I've been on b12 injections every 8 weeks of many years my doct...

bettyboo2020

•4 years ago

9 Replies

I have b12 deficiency and severe acid reflux and don't know what to do

Hi I suffer from b12 deficiency and I haven't had my injections in 2 weeks and it's showing I have real bad anxiety and recently had a panic attack my gp said...

Hi I suffer from b12 deficiency and I haven't had my injections in 2 weeks and i...

Sochill53_

•4 years ago

2 Replies

How do you store your B12 med?

If you self inject how do you keep your b12 med in the fridge? Sorry I m only very new to b12 issues.

If you self inject how do you keep your b12 med in the fridge? Sorry I m only ve...

Flinder

•4 years ago

6 Replies

Battle update

A b12 injection request was put through to my mums Gp again this morning. I will get a ring back once Gp has decided if a district nurse already going will...

A b12 injection request was put through to my mums Gp again this morning. I wi...

Nackapan

•4 years ago

19 Replies

Positive for PA

Hello all, I had a positive result for the intrinsic factor test and my GP wants me to go back and get B12 and Iron Folate levels checked. I will refuse a b12...

Hello all, I had a positive result for the intrinsic factor test and my GP wants...

Luac

•4 years ago

14 Replies

B12 Injection Symptoms/Advice

Hi, Pretty new here but I was recently diagnosed with having low b12, results attached. I've had all 6 of my loading doses and finished these about 3 weeks...

Hi, Pretty new here but I was recently diagnosed with having low b12, results at...

CMJ202021

•4 years ago

8 Replies

Bodfeld Apotheke £50.34 for 100 Hydroxocobalamin ampules.

Thought I would put the latest price up again for those who may be struggling to find ampules.

Thought I would put the latest price up again for those who may be struggling to...

Ritchie1268

•4 years ago

3 Replies

WHat Is the Gold Standard test for Pernivious Anaemia ?

PA Standard

Ronsville2

•4 years ago

4 Replies

4 bulging discs and 1 tear

Good morning all I am b12 deficient and I inject weekly myself and 10 weekly at the GP surgery. I recently found myself in hospital for 7 days with the worse...

Good morning all I am b12 deficient and I inject weekly myself and 10 weekly at ...

Sunshine1932

•4 years ago

6 Replies

Newbie question

Just wondering from anyones experience with PA, if there's a specific vitamin supplementing combination plan that works the best with the B12 shots for optimal...

Just wondering from anyones experience with PA, if there's a specific vitamin su...

BC1980

•4 years ago

10 Replies

B12

On a b12 injection how much is actually utilised ? Does it all get used or only a tiny bit Wondering ?

On a b12 injection how much is actually utilised ? Does it all get used or only...

Milley2

•4 years ago

8 Replies

B12

many one else get gastro issue or had a level lower or 124 b12 By the way my Gp ssid thatlevek was all goid 😔 Still strughlingb

many one else get gastro issue or had a level lower or 124 b12 By the way my Gp...

Milley2

•4 years ago

4 Replies

Battle continues

Am still trying g to get my mothers b12 injections rei instated. They were stopped until she has a blood test to review!! and was offered tablets if doesnt...

Am still trying g to get my mothers b12 injections rei instated. They were stop...

Nackapan

•4 years ago

24 Replies

B12 and platelet drop

Hi I have b12 deficiency and noticed my platelet count dropped to 149000 my doctor says it’s ok , happens with b12 deficiency but I am a bit concerned on this...

Hi I have b12 deficiency and noticed my platelet count dropped to 149000 my doc...

Ulrich-vi

•4 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2020

Anybody recognise these symptoms

Help for my daughter's diagnosis please

World Kindness Day

B12 on sale

B12 reinstated

Should I stop b12 injections and iron supplementation prior to a liver functional blood test and platelet count test?

ALS or Pernicious Anemia

Hydroxo v’s Cyano (UK)

Any?

Serc

NHS England update

B12

NHS England

Can you recommend a video to show where to inject in thigh intramuscularly

Gas and chest pain

drop in b12.

Worn out

I have b12 deficiency and severe acid reflux and don't know what to do

How do you store your B12 med?

Battle update

Positive for PA

B12 Injection Symptoms/Advice

Bodfeld Apotheke £50.34 for 100 Hydroxocobalamin ampules.

WHat Is the Gold Standard test for Pernivious Anaemia ?

4 bulging discs and 1 tear

Newbie question

B12

B12

Battle continues

B12 and platelet drop

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