Newbie question: Just wondering from... - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members23,121 posts

Newbie question

BC1980 profile image
10 Replies

Just wondering from anyones experience with PA, if there's a specific vitamin supplementing combination plan that works the best with the B12 shots for optimal results? Another question; I seem to feel extremely fatigued after meals. Was wondering if that's a common symptom PA sufferers have?

Written by
BC1980 profile image
BC1980
To view profiles and participate in discussions please or .
Read more about...
10 Replies
fbirder profile image
fbirder

Yes, the best plan for supplements are those where you are deficient. Ask your doctor for blood tests.

People with PA are likely to have problems absorbing folate, Vitamin D and iron.

All women of childbearing potential are advised to take 400 mcg a day of folic acid. You you can assume that amount of supplementation will be safe. In almost all cases it will also be sufficient.

The NHS recommend that everybody take a low dose vitamin D supplement in autumn and winter (and throughout lockdown). So it's safe to take that.

Do not take iron supplements unless a doctor has told you that you are deficient. Too much iron can be harmful.

BC1980 profile image
BC1980 in reply to fbirder

You guys are lifesavers thanks so much for the info!

helvella profile image
helvella in reply to fbirder

Just want to point out that there are people who simply cannot tolerate vitamin D supplementation even though they would appear to need it.

D2 or D3. With or without vitamin K2. In oil, tablet, spray, spread on skin, even in tiny, tiny amounts.

Despite some of these people being able to raise vitamin D by sun exposure.

Litatamon profile image
Litatamon in reply to helvella

Helvella, can you elaborate please? What side effects are you referring to?

Thank you.

helvella profile image
helvella in reply to Litatamon

Feeling very ill - it isn't me and the person I know who is like this isn't to hand to get a personal description. Will see if I can get more detail.

For now, this link to a thread on Thyroid UK forum has some replies about the issues:

healthunlocked.com/thyroidu...

Litatamon profile image
Litatamon in reply to helvella

Thanks helvella. I can't get to the post without joining the thyroid section. Or maybe I could use my brain and join, read and then cancel it! (Well I am out of luck because it says the ability to read that post has been turned off)

Asking because I have always felt completely awful on vitamin d supplementation, and I have simply pushed through because it is necessary to get my numbers up.

It has mostly been lowered mood and simply "off" for me. A malaise of sorts. It has dumbfounded medical professionals. And me too, as low vitamin d affects mood yet my mood was fine before taking it. And of course supplementation is supposed to raise it.

Honestly in some ways I don't know why it is treated as such an anomaly because vitamin d is a hormone. So for everyone to react differently can't be that bizarre.

(@BC1980, sorry for taking this off track a bit,)

BC1980 profile image
BC1980 in reply to Litatamon

No worries thanks. Amazing info!

Nackapan profile image
Nackapan

I think digestion is slower and takes more energy than you think.

I sometimes too weary to digest properly .Its best to get bloods of levels like folate ferritin iron vit d and address anything lacking.

Certainly a standard multivitamin will be of no harm. I take omega twice a week too. Not too keen on oily fish with nausea.

I have gone by blood results where possible. Tried all sorts of vitamin regimes.

The above are the most common things that might get low through low absorbtion.

Also some are age related deficiencies that are more common.

Obviously food the best source if you csn absorb enough from it

Vit d is recommended for everyone .Finding a maintenance dose of things is quite individual.

Quite frankly difficult.

The advice on here frequently is add a little acidic drink to your meals to help digestion. Like cider vinegar on food or lime juice /lemon juice drink.

BC1980 profile image
BC1980 in reply to Nackapan

Thankyou for your reply! Im learning so much in a short time from u guys! One question i did have, is should i be limiting my water intake while in a time of frequent injections so i can hold on to more b 12 in my body or is it okay to drink a heavy dose of water?

Nackapan profile image
Nackapan in reply to BC1980

Drink as much water as you like. Good to stay hydrated.

You may also like...

Newbie with questions

here. My doc ran blood work but did not check for B12 specifically but my results are as follows -...

Newbie with some hope and a couple of questions!

was pointed in this direction from the thyroid board. I've been off work for 5 months with what...

Supplements before Diagnostic Blood Tests - Newbie Question

unexplained fatigue and neurological symptoms for 10+ years. I recently found out about PA. The...

B12 Deficient Newby - More Questions

circumstances before. So beyond the B12 deficiency at 113pg/ml (ref 145-914) it seems that my...

A question 🍗🐟🧀🧈🥛🥕🍆🍅🥬🍒

Helicobacter pylori. You have very low B12. You have many of the symptoms of B12 deficiency. What...