hello Iv been looking for answers for 10 years b12 came normal folate high but still haves these symptoms does anybody relate to these , any input will be much appreciated
Tiredness
Weight gain
Cold hands and feet
Sweating a lot
Pins and needles in legs, feet, arms, hands and fingers
Breathlessness
Dizziness
Clumsiness
Bumping into walls
Stumbling
Lurching to one side when standing upright
Losing balance
Tremor
Broken sleep
Loss of libido
Muscle cramps in legs
Joint stiffness
Loss of stamina
Feeling cold
Muscle pain
Joint pain
Loss of appetite
Loose stools
Heavy periods
Poor focusing
Double vision
Puffy eyes, face, feet and ankles
Difficulty swallowing
Dry mouth and
eyes
Memory loss and confusion
Poor concentration
Mood swings, depression, nervousness, anxiety
Random ringing and rumbling in ears
Deafness
Dry, flaky, coarse, pale skin
Itchy skin
Muscle spasms
Burning
sensation in chest and throat,
Burning sensations down thighs
Numb sensations up lower legs
Poor circulation in legs, feet, hands and arms
Dry/chapped lips
Mucus buildup in throat
Bruising
Pain/fullness in ears
Pain in soles of feet
Visual snow
Have you had your thyroid checked. Many symptoms overlap. Some of thises symptoms cry out thyroid problems.
Thyroid healthunlocked will say which ate the most comprehensive tests to do.
Also a full iron panel including ferritin. And vit d.
Perhaps a referral to ENT
Thankyou very much for replying , sorry should have mentioned I was diagnosed with hypothyroid in 2017 it was due to having a baby and after a short while of treatment it stayed normal so they stopped my medication , Iv also had brain mri cervical mri thinking it could be my neck but came back normal , literally fed up feeling this way with no answers doctors look at my list of symptoms and think Im nuts.iv never posted in a forum but I googled my symptoms again and came across this website for P.A.
Iv had bowel issues since the age of 16 on and off doctor mentions gluten intolerance so past two days Iv gone gluten free aswel.
Also symptoms I forget to mention
Formication
Feeling like can’t take a deep breath it’s intermittent
For the past 10 years have been wobbly on my feet
Do you have blood tests to keep an eye on your thyroid levels.
Did you get a copy of your bloods to see what your b12 is?
Are you aware of functional b12 deficiency.
Keep going with eli.inating things to find out what is wrong. T C
Doctors so far have unfortunately been of no use will have to try finding answers my self , Thankyou
In that case you can get private blood tests done . ? And get referral s to specialists . Of courses you would have to see your Gp. Gateway to many services.
I'm sorry you've lost faith in doctors. I can understand that but we have to work within the system or go private . Do get investigations s done . Bit like having to kiss many frogs before the prince ...or something like that.
I do agree with you and also about you mentioning functional b12 , also would you say that b12 defiency symptoms move around the body for example one day your legs feel next day your arms then the feeling comes back but your hit with another symptoms
Also light and sounds bother me some days I can have a great appetite some days appetite is fully gone and smell of foods make me sick
The nausea comes and goes for me. I dont have the symptoms around the body like you explain. I do get aching hips I didnt before. Alot of my problems are nerves in my head . Maybe occipital neuralgia or visual vertigo or a general vestibula disturbance. I also have light sensitivity ans noises sensitivity. The noises sensitivity has greatly improved . The light sensitivity to artificial lights remains.
So as you csn see a huge variant.
Try and get onto the 'system ' to get seen . Thete ate some good ones put there . Its finding them. Everything on hold at present bit definitely get bloods done and keep a copy. I went through your list and I could add 5 and take away 5 as different .
See a neurologist.
thanks for replying I Have already seen a neurologist and a rheumatologist, the second suggested fibromyalgia, doesn’t really fit symptoms for that diagnosis .
If you have gut symptoms, have you been referred to a gastro enterologist?
In UK, guidelines suggest that GPs should seek advice from a haematologist for people with b12 deficiency with neuro symptoms .
Gastro specialist should be able to spot signs of gut damage from PA, Coeliac, H pylori infection and other gut conditions.
Is there any chance of internal parasite infection eg fish tapeworm?
Do you mind me asking which country you are in?
I'm asking because patterns of treatment and types of B12 used in treatment vary between countries.