B12 reinstated : Finally think its... - Pernicious Anaemi...

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B12 reinstated

Nackapan profile image
11 Replies

Finally think its sorted for my mum .

Wasnt done today as district nurses wanted to check prescription there.

They 'accepted referral ' put in for a third time. B12 injection was withdrawn after last one in August as district nurse said not going anymore? when I took it up with the surgery they said shes to have tablets and a b12 serum test . If okay only tablets!! )

Booked in for next week at home.

Only one irritating fact was a box of 5 b12 ampoules issued has an expiry of this month. So only one out of 5 will be used and it wont be there for next one due! I've informed the pharmacy who issued it .

So 🤞it will be done ad promised next week. No reason given why a change of decision. I didnt question it just thanked them .

Shocking to take so much perseverance to get a simple treatment for a 91 year old this month.

If she was alone she would not have got it and wouldve deteriorated. Thats the sad fact for many . 😔

Why is this happening????

P.s NHS England even though asking to be informed of anyone being denied b12 treatment were of little help. They said to *deal with the surgery! Then closed the case a day after opening it as they realised it was the local commissioning body that deals with district nurses. I did point out that it would be back with the Gp if request rejected again by DN who they do deal with. Hey ho .

I didnt make a complaint at this stage I was giving them information they asked for via the useful link sleepybunny posted. I also wanted advice on how to help my mum. *I had been dealing with her surgery obviously as I have done since 2004. (Since my mum became a widow.) The only problem I've had in all that time is around B12.

Anything elses has been sorted promptly

.

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Nackapan
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11 Replies
Janma123 profile image
Janma123

Looks like good news - hopefully. Well done for persevering.

I wonder how many older folk with a diagnosis of dementia are really just B12 deficient.

Take care, Jane

Nackapan profile image
Nackapan in reply toJanma123

Its worrying I agree

Greypaws profile image
Greypaws

I am glad to hear you have been successful.well done!

Nackapan profile image
Nackapan in reply toGreypaws

Well next week hopefully.

Yes very well done Nackapan but my god the stress they have put your family through is just heartless I really feel for you.

Now hopefully you can progress and sort through your own health issues while your in a good positive place you deserve some TLC yourself now take care xx

Nackapan profile image
Nackapan in reply to

Yes I need time yo

u are right. As much as others say step back I'm restless until sorted. I seen to have the tenacity.

Very wearing g though . Quiet day today

Thank goodness for batch cooking! Hope you brighter and tidy your garden lol

deniseinmilden profile image
deniseinmilden

Well done!

041051 profile image
041051

Great news Nackapan but having to fight like this is clearly not acceptable

Nackapan profile image
Nackapan in reply to041051

I know its happening everywhere

Sleepybunny profile image
Sleepybunny

Thank goodness for people like you who persevere. I'm sure it helps others...at least I hope your mum's surgery will be less likely to stop B12 injections for other patients now.

Nackapan profile image
Nackapan in reply toSleepybunny

Hope so

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