Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for November 2020

ADVICE FOR EXTREMELY ELEVATED B12 LEVEL

Hello , my daughter developed severe neurological symptoms 18 months ago , fatigue , mood disorders , intractible insomnia , body pain , memory loss and...

Hello , my daughter developed severe neurological symptoms 18 months ago , fatig...

laal

•3 years ago

5 Replies

B12 deficiency?

Hello there, I have recently had 2nd set of bloods done. My first ones showed that I was folate deficient. I have recently changed my diet to help. In my...

Hello there, I have recently had 2nd set of bloods done. My first ones showed t...

Sillysteph

•3 years ago

12 Replies

B12 more than 2000

I recently completed 5 injections of b12 and my lab results after 10 days came in as more than 2000. Is this a sign of worry or will it go down . I am...

I recently completed 5 injections of b12 and my lab results after 10 days came i...

Ulrich-vi

•3 years ago

11 Replies

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Question about PA diagnosis.

How are you diagnosed wit PA?

Tiredallthetime2020

•3 years ago

6 Replies

I’m not getting better :( advice??

Hi, New here.. Hoping to get some info on how long after loading doses before I should start to feel better I’m 23 years old and have always been very active...

Hi, New here.. Hoping to get some info on how long after loading doses before I ...

Runnerblue7

•3 years ago

11 Replies

Newbie...

Hi guys I’m very new to this I was only diagnosed yesterday with PA so iv not quiet had chance to diagnose it all, iv just been told I need to go to the...

Hi guys I’m very new to this I was only diagnosed yesterday with PA so iv not qu...

Hobbs1980

•3 years ago

11 Replies

Ringing in my ears , right index finger twitching

I have completed 5 doses as suggested by my neurologist for b12 deficiency but 2 days after it I have this ringing sensation in my ear and also noticed right...

I have completed 5 doses as suggested by my neurologist for b12 deficiency but ...

Ulrich-vi

•3 years ago

2 Replies

Feels like I’m on life’s roundabout again.

I’ve been plodding away in the background trying my best to get answers without going down too many invasive routes as it terrorises me.Everything bad for me...

I’ve been plodding away in the background trying my best to get answers without ...

Hidden

•3 years ago

24 Replies

B12

Quick question Daily or alternate day b12 Is it advisable to take methyfolate along side the days you inject or a certain amount that week My folate is 17.6...

Quick question Daily or alternate day b12 Is it advisable to take methyfolate ...

Milley2

•3 years ago

18 Replies

Site reactions

I’m self injecting B12 from reputable German chemist. I had no reaction from my first injection but every one after I’ve developed a small ( 10p sized)...

I’m self injecting B12 from reputable German chemist. I had no reaction from my ...

Funtimefrankie

•3 years ago

21 Replies

Why are my b12 constantly changing?

Back in June I had a blood test as I began to feel extremely fatigued, with heart palpitations and eye sensitivity to light. My b12 came back as 200 and...

Back in June I had a blood test as I began to feel extremely fatigued, with hear...

AJ112

•3 years ago

16 Replies

A shift

Seemingly not for the better at present. Head fragility. Feels like I've just hit it hard on a wall.but constant Low key constant tinnitus back Numb nose...

Seemingly not for the better at present. Head fragility. Feels like I've just ...

Nackapan

•3 years ago

4 Replies

Here we go!

Just had a call from a locum doctor from our surgery as I'd asked for a replacement inhaler. She started by saying that I was overdue a medication review...

Just had a call from a locum doctor from our surgery as I'd asked for a replacem...

sueeaton

•3 years ago

14 Replies

survivors

November and still pretty.

Nackapan

•3 years ago

11 Replies

Does it matter what muscle you inject into.

Hi everyone, I am very new to this I finished my 6 loading shots 10 days ago, I feel so much better now all gratitude to the doctor from Jordan I saw at my...

Hi everyone, I am very new to this I finished my 6 loading shots 10 days ago, I ...

JohnnyConger

•3 years ago

3 Replies

Apple cider vinegar

Has anyone tried apple cider vinegar and does it work for them I heard it increase your stomach acid which helps with b12?

Has anyone tried apple cider vinegar and does it work for them I heard it increa...

Sochill53_

•3 years ago

5 Replies

Blood Circulation Booster

I was diagnosed with PA back in 2018 after a blood test reading of under 50. I was also suffering with peripheal neuropathy in my feet and hands. I was...

I was diagnosed with PA back in 2018 after a blood test reading of under 50. I w...

Swinging-Chandelier

•3 years ago

13 Replies

MCV and MCH

Hi I have a reading of MCV 110.6 and 34.3 MCH, does anyone know if these are considered high? Thanks Gillian

Hi I have a reading of MCV 110.6 and 34.3 MCH, does anyone know if these are con...

gillyjohnny

•3 years ago

7 Replies

Blood Test Results - some changes

I was tested positive for PA and the GP asked for a full blood test to check iron levels. From what I can see the haemoglobin estimation and MCV are in normal...

I was tested positive for PA and the GP asked for a full blood test to check iro...

Luac

•3 years ago

4 Replies

Vitamin & Mineral

Hi, Please can someone break down the vitamin & mineral I need as I have PA suffer?. Currently I'm taking: Magnesium 2 tablets per day 375mg Methyl Folate 1...

Hi, Please can someone break down the vitamin & mineral I need as I have PA suf...

Iheart_TS

•3 years ago

2 Replies

B12 injections and increase in TSH

I had two B12 1000mcg cynocobalimin injections per week for 3 months. My TSH went from under 1 to 6.7. Why would that be? I did not do anything else bar...

I had two B12 1000mcg cynocobalimin injections per week for 3 months. My TSH we...

Liyaelize

•3 years ago

3 Replies

B12 injections

Anyone else here on b12 shots?

Cristaraujo

•3 years ago

6 Replies

Ongoing symptoms

Hello, I was diagnosed with PA about 16 months ago. My cycle for injections has been reduced slightly following lingering symptoms following a delay in getting...

Hello, I was diagnosed with PA about 16 months ago. My cycle for injections has ...

Maxie902

•3 years ago

15 Replies

Locating posts

Is there a way to locate posts that are full of information about : 1. Step be step buying online (fbirder) 2. What you need to self inject (fbirder and...

Is there a way to locate posts that are full of information about : 1. Step be ...

Nackapan

•3 years ago

8 Replies

Haptocorrin and B12 Absorption

I've pasted below an excerpt from a paper which described how low vitamin D levels can cause insomnia. It also discussed why low vitamin D can lead to B12...

I've pasted below an excerpt from a paper which described how low vitamin D leve...

MoKayD

•3 years ago

12 Replies

B12 serum level of 52

Hi I’m new here and just looking for advice. 12 years ago I was diagnosed with b12 deficiency with a level of 52 ng/l. At the time my symptoms were brain fog,...

Hi I’m new here and just looking for advice. 12 years ago I was diagnosed with b...

Inkworks

•3 years ago

14 Replies

PA effecting work and need advice on how to approach my employer. Don’t know what I’m entitled to..please help!

Hi, I have PA due to lack of intrinsic factor. I’m really struggling at the minute with basic tasks, like writing a sentence. I tend to miss a odd word out...

Hi, I have PA due to lack of intrinsic factor. I’m really struggling at the min...

Iheart_TS

•3 years ago

11 Replies

Pernicious anaemia, arthritis and spondylolisthesis

Hi, I was diadnosed with Pernicious Anaemia in 2006 and later started suffering back pain. Finally after a few years of complaining to my doc and being fobbed...

Hi, I was diadnosed with Pernicious Anaemia in 2006 and later started suffering ...

Kenia2455

•3 years ago

2 Replies

New symptoms

Hi I am new to this forum so please bear with me. Although I have suffered with strange symptoms for many years I eventually diagnosed myself as having...

Hi I am new to this forum so please bear with me. Although I have suffered with...

mbb323

•3 years ago

20 Replies

Letter to GP

I’m sorry if this has been posted previously, I used the search bar but it took me away from b12/pernicious anaemia pages. Is there a link for a template for a...

I’m sorry if this has been posted previously, I used the search bar but it took ...

Parksy

•3 years ago

5 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for November 2020

ADVICE FOR EXTREMELY ELEVATED B12 LEVEL

B12 deficiency?

B12 more than 2000

Question about PA diagnosis.

I’m not getting better :( advice??

Newbie...

Ringing in my ears , right index finger twitching

Feels like I’m on life’s roundabout again.

B12

Site reactions

Why are my b12 constantly changing?

A shift

Here we go!

survivors

Does it matter what muscle you inject into.

Apple cider vinegar

Blood Circulation Booster

MCV and MCH

Blood Test Results - some changes

Vitamin & Mineral

B12 injections and increase in TSH

B12 injections

Ongoing symptoms

Locating posts

Haptocorrin and B12 Absorption

B12 serum level of 52

PA effecting work and need advice on how to approach my employer. Don’t know what I’m entitled to..please help!

Pernicious anaemia, arthritis and spondylolisthesis

New symptoms

Letter to GP

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive