Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2020

Proton inhibitors

My G.P. Wants me to take proton inhibitor as a side effect is the reduction of B12 is that advisable as I already have pernicious anaemia.? My ampoules of B12...

My G.P. Wants me to take proton inhibitor as a side effect is the reduction of B...

Mrsannabbott

•4 years ago

7 Replies

B12 folic acid or folate

So I’m not any better Was in hospital last week nearly collapsed can’t find nothing wrong so I’m assuming it’s my b12 Monthly at Gp But I get sick every...

So I’m not any better Was in hospital last week nearly collapsed can’t find not...

Milley2

•4 years ago

8 Replies

Healing process

Was just wondering since I've been self injecting every 4 weeks down from 12 I've noticed different parts of my body going warm like I've got a heat pads on...

Was just wondering since I've been self injecting every 4 weeks down from 12 I'...

Mozza127

•4 years ago

14 Replies

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Testing query

I understand that the IFAB has to be done preferably 3/4 weeks after an injection does the same apply to the gastric parietal antibodies test please. Also how...

I understand that the IFAB has to be done preferably 3/4 weeks after an injectio...

Parksy

•4 years ago

1 Reply

B12 deficiency treatment

Hello, I have been deficient for over 5 years I believe, at the least. My main symptoms are burning and weak muscles (can't even dress my child!!) And I cant...

Hello, I have been deficient for over 5 years I believe, at the least. My main s...

Cheekycow8

•4 years ago

25 Replies

On folic acid tablets but feeling worse than ever

A month ago I went for full bloods due to not feeling right for as long as I can remember now, I can’t remember the last time I didn’t feel tired or exhausted!...

A month ago I went for full bloods due to not feeling right for as long as I can...

rosedream

•4 years ago

6 Replies

Low B12 advice

I have been told that I have low B12 and my level is 101 and have been started on Cyanocobalamin 50mcg tablets 1 tablet twice a day between meals for 28 day’s...

I have been told that I have low B12 and my level is 101 and have been started o...

NightOwl19

•4 years ago

11 Replies

Shortage of b12 testing?

Hi, wondering if anyone else has been told this. My daughter had nurse come and do a blood test last week for b12 and folate. I rang the surgery this...

Hi, wondering if anyone else has been told this. My daughter had nurse come and...

Meggydo

•4 years ago

13 Replies

Can restless legs be recovered?

Can people recover from restless legs once b12 has been correct?

Flinder

•4 years ago

7 Replies

B12 Oral/Sublingual Spray - is it any good?

I was originally having B12 injections every 12 weeks. I was feeling really tired after around 7 weeks after the injections, so I was advised to go every 6...

I was originally having B12 injections every 12 weeks. I was feeling really tir...

Barneyboy48

•4 years ago

8 Replies

Flu shot

I had my flu shot yesterday and today I feel really ill. Has anyone else found this? I am 3 months into b12 injections .. on and off but currently injecting...

I had my flu shot yesterday and today I feel really ill. Has anyone else found t...

Rex2020

•4 years ago

13 Replies

Low folic acid result even with a good diet?

So I’ve had my blood test results back, all normal apart from my folic acid level was 3.6. My question is, is it normal to feel really ill, over the past month...

So I’ve had my blood test results back, all normal apart from my folic acid leve...

Loulou112

•4 years ago

2 Replies

Does anyone know a good GP or Heamatologist in Sydney AU

I'm new here so please forgive me if this has been posted already. Currently on the long and horrible journey of diagnosis which to date has involved multiple...

I'm new here so please forgive me if this has been posted already. Currently on ...

ottiliefloyd

•4 years ago

22 Replies

GP says I am not anaemic but I am B12 deficient. I am confused!

Hello lovely PA people. Can you please help me understand the conversation I have had with my GP? I have recently had blood tests showing an elevated MCV and a...

Hello lovely PA people. Can you please help me understand the conversation I hav...

Hebe2020

•4 years ago

10 Replies

Do Hydroxocobalamin B12 injections cause constipation?

I’m just over one month in of SI every other day and I have just started to suffer with terrible constipation during the last few days. I have read many times...

I’m just over one month in of SI every other day and I have just started to suff...

Hidden

•4 years ago

13 Replies

Doctors refusing B12 on prescription

I have been on B12 for for nearly 30 years I was advised my doctors would no longer do injections due to Covid. I have been getting these done routinely by my...

I have been on B12 for for nearly 30 years I was advised my doctors would no lo...

lynn2909

•4 years ago

3 Replies

Face to face

Are any surgeries offering face to face appointments yet? I find it amazing the Gps are so illusive still. ?? The 2 nurses and phlebotomist and many reception...

Are any surgeries offering face to face appointments yet? I find it amazing the...

Nackapan

•4 years ago

18 Replies

B12 folic acid please help me

So I inject b12 daily as so many symtoms Just not getting better Gp says my b12 is high in range ? -1577 It’s going to be high as I supplement Every one I...

So I inject b12 daily as so many symtoms Just not getting better Gp says my b1...

Milley2

•4 years ago

34 Replies

B12 deficiency, fatigue, twitching, anxious, insomnia

About three months back I was diagnosed with B12 deficiency 182 pg/ml after multiple doctor visits to find out my strange symptoms.The doctor took it very...

About three months back I was diagnosed with B12 deficiency 182 pg/ml after mult...

Aaryan_93

•4 years ago

10 Replies

Sleep problems

I have terrible issues with sleep my patterns not been good for years like a lot of people here the slightest thing wakens me,it’s always been go to bed read a...

I have terrible issues with sleep my patterns not been good for years like a lot...

Hidden

•4 years ago

15 Replies

Strange feeling when breathing in sometimes

Morning everyone! I’m speaking with GP today, as keep having awful symptoms! But since the beginning of this year on and off. Have noticed I get random...

Morning everyone! I’m speaking with GP today, as keep having awful symptoms! ...

Ellesbells12

•4 years ago

16 Replies

Did I do the right thing?

Hi all, new here but finding the forum a very helpful resource. I am a male in the UK and 61 years old. To try and cut a long story short, I was diagnosed with...

Hi all, new here but finding the forum a very helpful resource. I am a male in t...

Hidden

•4 years ago

11 Replies

Stool colour

I apologise in advance about not nice subject, but having my initial 6 doses of b12 injection, has anyone noticed strange colour of stools please xx

I apologise in advance about not nice subject, but having my initial 6 doses of ...

Louloulou72

•4 years ago

5 Replies

Dizziness

Hi all! I’m really struggling today and feeling very very hot and dizzy! To the point I think I’m going to faint. Is this normal and does anyone else ever...

Hi all! I’m really struggling today and feeling very very hot and dizzy! To th...

Ellesbells12

•4 years ago

7 Replies

Extreme leg pain is it pernicious anemia or something else???

My health has gone down hill in the last few months. I've had pernicious anemia since my early 20s and I'm now nearly 40. I've been getting B12 injections...

My health has gone down hill in the last few months. I've had pernicious anemia ...

CrazyCatLady39

•4 years ago

13 Replies

Need a rant feeling fed up

Why is it that we seem to solve one issue that then gets replaced with two new ones. I’m fairly happy now with the b12 situation not ideal but at least I’ve...

Why is it that we seem to solve one issue that then gets replaced with two new o...

Hidden

•4 years ago

24 Replies

Itchy Bumps

Hello, are itchy bumps a symptom of PA or vitamin D deficiency? I am doing loading doses. I can't remember if I had itching before injections but I have them...

Hello, are itchy bumps a symptom of PA or vitamin D deficiency? I am doing loadi...

Maggiez

•4 years ago

18 Replies

Can apple cider vinegar help with b12 absorption problems?

Hiya all, I'm a little confused. My friend just showed me a YouTube video from a doctor, which says drinking apple cider vinegar can generate the stomach acid...

Hiya all, I'm a little confused. My friend just showed me a YouTube video from ...

luckymaria

•4 years ago

35 Replies

Had 1st appiontment with neurologist today.

This morning i have had my first appointment with a neurologist, he seemed nice i told him everything and that i had been SI. He didnt even seem to care about...

This morning i have had my first appointment with a neurologist, he seemed nice ...

Zc66

•4 years ago

40 Replies

District Nurse

A district nurse went to my mum this morning apparently. No one told us . My mum didnt hear the door so no entry. They rang and said going back to her...

A district nurse went to my mum this morning apparently. No one told us . My mu...

Nackapan

•4 years ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2020

Proton inhibitors

B12 folic acid or folate

Healing process

Testing query

B12 deficiency treatment

On folic acid tablets but feeling worse than ever

Low B12 advice

Shortage of b12 testing?

Can restless legs be recovered?

B12 Oral/Sublingual Spray - is it any good?

Flu shot

Low folic acid result even with a good diet?

Does anyone know a good GP or Heamatologist in Sydney AU

GP says I am not anaemic but I am B12 deficient. I am confused!

Do Hydroxocobalamin B12 injections cause constipation?

Doctors refusing B12 on prescription

Face to face

B12 folic acid please help me

B12 deficiency, fatigue, twitching, anxious, insomnia

Sleep problems

Strange feeling when breathing in sometimes

Did I do the right thing?

Stool colour

Dizziness

Extreme leg pain is it pernicious anemia or something else???

Need a rant feeling fed up

Itchy Bumps

Can apple cider vinegar help with b12 absorption problems?

Had 1st appiontment with neurologist today.

District Nurse

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