Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2020

Very confused with health issues.

Hi everyone, I’m following HealthUnlocked from last 2-3 years and found very useful information time to time. 3 years back had low b12 levels around 175 , had...

Hi everyone, I’m following HealthUnlocked from last 2-3 years and found very use...

Jotk9

•4 years ago

6 Replies

P.A. test result negative

So results are back for my 15 year old and no PA has been diagnosed. Her B12 was 86 before loading injections. What does this mean now in terms of future...

So results are back for my 15 year old and no PA has been diagnosed. Her B12 wa...

Dogwalker123

•4 years ago

3 Replies

Battling for B12

I was diagnosed with low b12 in January 2019. I initially had the loading doses and was told I would need 3 monthly injections for life. The initial doses...

I was diagnosed with low b12 in January 2019. I initially had the loading dose...

Fullondoglover

•4 years ago

10 Replies

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B12 injections - how long to take effect?

My neurological symptoms began many, many years ago. I’m hoping to start B12 injections soon. Can somebody who has been in the same situation advise me how...

My neurological symptoms began many, many years ago. I’m hoping to start B12 i...

Oundle

•4 years ago

12 Replies

Does anyone know the absorption rate of b12 injections?

Some websites said 1% for tablets. But I can’t find any website gives any absorption rate of injections.

Some websites said 1% for tablets. But I can’t find any website gives any absorp...

Flinder

•4 years ago

12 Replies

New here, please help.

Hello I'm new here. I recently decided to go to my GP and get a blood test after experiencing issues with my memory (specifically remembering names and......

Hello I'm new here. I recently decided to go to my GP and get a blood test after...

RunTenKay

•4 years ago

12 Replies

B12 injections stopped

Well the end to the tale for now is the Gp surgery have basically bullied my mum into submission. They rang her . She can hardly hear. Deaf in one and partial...

Well the end to the tale for now is the Gp surgery have basically bullied my mum...

Nackapan

•4 years ago

24 Replies

Buying from abroad, B12

If I buy B12 injection stuff from Germany or wherever, to do alternate day injections, what sort of quantity is recommended, and does it need to be...

If I buy B12 injection stuff from Germany or wherever, to do alternate day inje...

Oundle

•4 years ago

16 Replies

How long before I can recover from vitamin deficiency?

I got diagnosed with vitamin deficiency likely b12. I get tinglings everywhere mostly on my back, hands and feet. It's very frustrating and I've been deficient...

I got diagnosed with vitamin deficiency likely b12. I get tinglings everywhere m...

Losxanthoz

•4 years ago

5 Replies

Post-treatment lab results -- interpretation help appreciated!

Hi, everyone! I'm hoping those of you who have more experience appraising lab results can help me here, since I still have two weeks before I can go to the...

Hi, everyone! I'm hoping those of you who have more experience appraising lab r...

still_elsewhere

•4 years ago

12 Replies

Fuming

I've been trying to get the district nurses back to do my 90 year old mums b12 injection. They cancelled her by phone. The surgery were helpful when I...

I've been trying to get the district nurses back to do my 90 year old mums b12 i...

Nackapan

•4 years ago

22 Replies

Nerve pain? - in heal and ball of foot - Desperate

Hi, From tests I do not have PA. I have however always had B12 and B co injections and always feel better when I do. I do have gut issues though and PMR which...

Hi, From tests I do not have PA. I have however always had B12 and B co injectio...

Slosh

•4 years ago

12 Replies

Tibial Nerve Stimulation.

Hi all, hope everyone is keeping safe. This is not really a PA issue. It is back damage. I am due to start a 6 week course of Percutaneous Tibial nerve...

Hi all, hope everyone is keeping safe. This is not really a PA issue. It is back...

Mannequin18

•4 years ago

2 Replies

Tests to prove B12 injection need to my doctor: Schillings, Active B12 MMA (are they the same?)

I’m asking because I’ve convinced her to prescribe injections for once a week, but am always concerned that my extra supply from Germany might run out. I’ve...

I’m asking because I’ve convinced her to prescribe injections for once a week, b...

KEFNB

•4 years ago

5 Replies

What neurologic symptoms did you have (or are having)?

Hello, I'm new here! I'm trying to figure out if my neurologic symptoms are being caused by a b12 deficiency. I have a lot of strong indications, but I'm...

Hello, I'm new here! I'm trying to figure out if my neurologic symptoms are bein...

anon4035

•4 years ago

10 Replies

Attitude of GPs to self medication?

How are GPs reacting to patients who are self medicate with imported B12? Is it better to not inform them, or should one tell them what one is doing? I...

How are GPs reacting to patients who are self medicate with imported B12? Is i...

Oundle

•4 years ago

23 Replies

Hydroxocabalamin Ampoules from abroad

Hi, can anyone tell me if it is still possible to order hydroxocabalamin ampoules from Germany ? If so , can you give a website address please. Many thanks

Hi, can anyone tell me if it is still possible to order hydroxocabalamin ampoule...

mabbutt

•4 years ago

12 Replies

Implications of elevated HoloTC (active B12) and HoloTC > 20% of serum B12?

I've read a few times here and in research papers that HotoTC (active B12) is generally up to 20% of serum B12. Mine is not (in my case: HoloTC = 31% of serum...

I've read a few times here and in research papers that HotoTC (active B12) is ge...

looking_for_answers

•4 years ago

13 Replies

Another Gazinia or dahlia

Theres only 4 of them in total. They grew in that spot when the cosmos didnt flower there.

Theres only 4 of them in total. They grew in that spot when the cosmos didnt flo...

Nackapan

•4 years ago

6 Replies

Amazing feat !!

Hope you are all ok only this stormy day. At the end of February, I visited a reflexologist as I was struggling with acute abdominal pain amongst other...

Hope you are all ok only this stormy day. At the end of February, I visited a r...

Narwhal10

•4 years ago

1 Reply

Hope

Having injections every ten weeks hadn't felt good so took b 12suppliments.i askt doctor what was my b12 he said 2000 it was fine. Is it it.

Having injections every ten weeks hadn't felt good so took b 12suppliments.i ask...

Wllliam

•4 years ago

2 Replies

The positive side of b12 injections!

I’ve been self injecting for just over 6 months now as I have confirmed pernicious anemia.The first few months I thought I was dying I had such horrible...

I’ve been self injecting for just over 6 months now as I have confirmed pernicio...

Hidden

•4 years ago

9 Replies

Hip and Lower back pain that’s causing issues with my legs

Hi all! Hope everyone is keeping well! The last few weeks on and off, have been experiencing like a dull achy sensation in my hips back and sometimes lower...

Hi all! Hope everyone is keeping well! The last few weeks on and off, have b...

Ellesbells12

•4 years ago

8 Replies

Do you still absorb B-12 if your can’t tolerate a certain type?

I am back to square one again after trying two types of B-12 after a few days I react quite badly .. the symptoms are lingering and I feel worse now than I did...

I am back to square one again after trying two types of B-12 after a few days I ...

Tad122

•4 years ago

11 Replies

Ive recently been diagnosed with pernicious Anemia. I'm having 3 monthly B12 injections, Ferrous Sulphate and Folic acid I'm still asleep

My Dr has said he feels I need monthly B12 injections as I am constantly falling asleep. My family doesn't understand & I can't get my Dr to give me monthly...

My Dr has said he feels I need monthly B12 injections as I am constantly falling...

Shergar1810

•4 years ago

12 Replies

Brain fog

Had 2 months of 2 times per week injections but for last 8 weeks been on daily injections. I have PA and my b12 was 127 when I got loading doses. I am really...

Had 2 months of 2 times per week injections but for last 8 weeks been on daily i...

PhilAB

•4 years ago

15 Replies

Gazania

I think!

Nackapan

•4 years ago

9 Replies

Advice on EGD- to sedate or not sedate

Hi everyone! I will be undergoing an EGD/endoscopy very soon. I’m very anxious because I’ve had a terrible reaction to Reglan and Benadryl through IV a few...

Hi everyone! I will be undergoing an EGD/endoscopy very soon. I’m very anxious b...

Dolansan

•4 years ago

24 Replies

B12 deficiency and ongoing health issues

Hi, I am new here and wondered if you could help me understand my blood results in the context of ongoing health issues. In brief, last year I suffered a...

Hi, I am new here and wondered if you could help me understand my blood results ...

Hebe2020

•4 years ago

12 Replies

A thank you

I just wanted to express my gratitude for this community, to be educated, to be listened to, to share both the good, amusing and difficult times. Best wishes...

I just wanted to express my gratitude for this community, to be educated, to be ...

Narwhal10

•4 years ago

2 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2020

Very confused with health issues.

P.A. test result negative

Battling for B12

B12 injections - how long to take effect?

Does anyone know the absorption rate of b12 injections?

New here, please help.

B12 injections stopped

Buying from abroad, B12

How long before I can recover from vitamin deficiency?

Post-treatment lab results -- interpretation help appreciated!

Fuming

Nerve pain? - in heal and ball of foot - Desperate

Tibial Nerve Stimulation.

Tests to prove B12 injection need to my doctor: Schillings, Active B12 MMA (are they the same?)

What neurologic symptoms did you have (or are having)?

Attitude of GPs to self medication?

Hydroxocabalamin Ampoules from abroad

Implications of elevated HoloTC (active B12) and HoloTC > 20% of serum B12?

Another Gazinia or dahlia

Amazing feat !!

Hope

The positive side of b12 injections!

Hip and Lower back pain that’s causing issues with my legs

Do you still absorb B-12 if your can’t tolerate a certain type?

Ive recently been diagnosed with pernicious Anemia. I'm having 3 monthly B12 injections, Ferrous Sulphate and Folic acid I'm still asleep

Brain fog

Gazania

Advice on EGD- to sedate or not sedate

B12 deficiency and ongoing health issues

A thank you

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