Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2020

High vitamin B12 level

Hi, I am a vegetarian and three years ago was diagnosed with low vitamin B12 (164ng/L range 190-800). I have been taking supplements ever since and my latest...

Hi, I am a vegetarian and three years ago was diagnosed with low vitamin B12 (16...

SheNew

•4 years ago

2 Replies

Buying b12

Am preparing a written complaint to PALS as my doctors surgery doesn’t have regular gp’s or a practice manager. I’m so low in b12 now having been refused my...

Am preparing a written complaint to PALS as my doctors surgery doesn’t have regu...

Parksy

•4 years ago

19 Replies

Nerve pain

Has anyone tried cbd oil for the nerve pain caused by b12 def. I’m injecting every other day which is working great for me I’ve dropped so many Of the nasty...

Has anyone tried cbd oil for the nerve pain caused by b12 def. I’m injecting eve...

Hidden

•4 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Endoscopy

Hello all: I just had an appointment with my gastroenterologist. I had an endoscopy that came back clean. I have lots of symptoms of b12 deficiency/PA. I...

Hello all: I just had an appointment with my gastroenterologist. I had an endosc...

Maggiez

•4 years ago

9 Replies

it gets worse before it gets better - experiences

Hi, my dad is on his loading doses (4 injections so far) and we suspect he's been deficient for a long time. The first injection made him super alert and...

Hi, my dad is on his loading doses (4 injections so far) and we suspect he's bee...

Hidden

•4 years ago

5 Replies

GP refuses to prescribe Hydroxocobalamin as B12 is within "Therapeutic levels"

Hi Everyone :) I have been diagnosed with Pernicious Anaemia since 2013 and have injections at my GP surgery every 10 weeks. I am due another injection in...

Hi Everyone :) I have been diagnosed with Pernicious Anaemia since 2013 and have...

sarahlouiseee

•4 years ago

19 Replies

For new members . PLEASE USE “AMAZON SMILE” WHEN MAKING AMAZON PURCHASES ,AND CHOOSE P.A.S. AS YOUR CHARITY— AT NO COST TO YOURSELVES !

I put up this message from time to time as a reminder . It’s only 0.5% , but every little helps as they say!

I put up this message from time to time as a reminder . It’s only 0.5% , but eve...

wedgewood

•4 years ago

4 Replies

Upper-right abdominal pain as a result of AAG?

Dear always-helpful members of this community — I have yet another set of questions for you. Four times in the past two months, with the most recent...

Dear always-helpful members of this community — I have yet another set of questi...

still_elsewhere

•4 years ago

6 Replies

Homozygous for C677T of MTHFR

Hello everyone, I received my results from 23andme and then used Promethease to analysis them which confirmed that I am homozygous for C677T of MTHFR. As my...

Hello everyone, I received my results from 23andme and then used Promethease to...

MCkit

•4 years ago

3 Replies

B12 frequency

Any one have to inject hydrox twice a day ? At all Is that safe with severe b12 defiency ? Thoughts please ? Sub injection ? Advice ? I SI myself Went in...

Any one have to inject hydrox twice a day ? At all Is that safe with severe b12...

Milley2

•4 years ago

5 Replies

Fed up and worn out

I am feeling very warn out and fatigued right now. I have had a hormoan test come back borderline but i don't think it is just that making me fatigued and worn...

I am feeling very warn out and fatigued right now. I have had a hormoan test com...

LittleA

•4 years ago

9 Replies

Do people take b12 1000ug & iron + b complex or multivitamins & minerals?

Just that I don’t want to over does with supplements?

Flinder

•4 years ago

4 Replies

Tingling in left thigh at night

Hi I have PA diagnosed in June 2020, b12 was 127. Been on 2 times a weeks for 8 weeks but last 10 weeks been on daily. At night when I lie on my back sometimes...

Hi I have PA diagnosed in June 2020, b12 was 127. Been on 2 times a weeks for 8 ...

PhilAB

•4 years ago

6 Replies

Lack of Intrinsic Factor

So after a wait of 2 & a half yrs I finally got my marker test, along with my regular thyroid, cholesterol & general tests. I’ve been told Ive lack of...

So after a wait of 2 & a half yrs I finally got my marker test, along with my re...

MrsSAcky

•4 years ago

4 Replies

B12 & Vitamin D Deficiencies

Hi all. I’m sort of new to the forum. This is my first post. About three months ago, I started experiencing neurological symptoms and muscle issues. After...

Hi all. I’m sort of new to the forum. This is my first post. About three months ...

NJPoet

•4 years ago

32 Replies

When will hair loss stop?

My daughter has been very upset. She had finished her injections three weeks and she will have another one in two days time. But she is still losing a lot of...

My daughter has been very upset. She had finished her injections three weeks and...

Flinder

•4 years ago

5 Replies

B12 worse

B12 injection. When I SI My ear burns inside more I get done say healing But it’s so bothersome I’m going out my mind with it Also more neck pain More...

B12 injection. When I SI My ear burns inside more I get done say healing But i...

Milley2

•4 years ago

7 Replies

B12 nauseous

Any one else on alternate day b12 hydrox inj Get nauseous I know it’s a b12 symptom But is it the b12 injections doing this Order mine Germany ? Not sure...

Any one else on alternate day b12 hydrox inj Get nauseous I know it’s a b12 sy...

Milley2

•4 years ago

3 Replies

Hello

I am wondering if anyone can help. I have been taking B12 injections for what was meant to have been 3 years but because of COVID-19 I have not received any....

I am wondering if anyone can help. I have been taking B12 injections for what wa...

LuciaRose

•4 years ago

8 Replies

Advice re contrast dye pl

I got my confirmation letter today about my ct kidney scan appointment next week.It says CT kidney triple phase Both! When I googled what that meant it...

I got my confirmation letter today about my ct kidney scan appointment next week...

Hidden

•4 years ago

16 Replies

Low folic acid fatigue

I have been feeling rubbish for the past few months (dizzy spells, fatigue, tingling feeling in arms and legs). Just had a blood test and diagnosed with low...

I have been feeling rubbish for the past few months (dizzy spells, fatigue, ting...

Sillysteph

•4 years ago

6 Replies

B12 injections and insomnia

Good morning all 😊. Can I please ask about people’s experience of going through the initial loading doses. I’m on my fourth, which I had about 8.30 in the...

Good morning all 😊. Can I please ask about people’s experience of going through...

Hebe2020

•4 years ago

1 Reply

PA and Neuro/Immune symptoms affecting diagnosis of secondary conditions?

Hi, I was wondering if anyone here has had experience with the neurological and the immune system affects of PA? I was diagnosed with autoimmune B12 deficiency...

Hi, I was wondering if anyone here has had experience with the neurological and ...

RoseFlowerDew

•4 years ago

4 Replies

B12 deficiency and menopause

I am currently three injections into the treatment for my B12 deficiency which has coincided with unexpected period pains and blood spotting. I am 57 and on...

I am currently three injections into the treatment for my B12 deficiency which h...

Hebe2020

•4 years ago

10 Replies

Update on my bloods

Good morning everyone :) I’ve recently just had my bloods back from my GP and my B12 level was in range, which I was really happy about! However folate...

Good morning everyone :) I’ve recently just had my bloods back from my GP and ...

Ellesbells12

•4 years ago

9 Replies

Bleeding and sore gums?

I’m finding when I’m very fatigued my gums bleed a lot amd I get sore gums. I do brush my teeth and all the usual things for good hygiene but is there a...

I’m finding when I’m very fatigued my gums bleed a lot amd I get sore gums. I do...

LittleA

•4 years ago

11 Replies

Long Covid: what we know so far

I posted this on Thyroid UK forum, and have been asked to post it here. Hope it is of interest/helps someone! Guardian article which, though strictly...

I posted this on Thyroid UK forum, and have been asked to post it here. Hope it ...

helvella

•4 years ago

25 Replies

B12 folate

Can low or high levels of b12 or folate cause joint pain ?

Nez1980

•4 years ago

25 Replies

Sudden Drops in B12?

Hello all I'm wondering if anyone else experiences sudden drops in b12 or whether there are any research articles available about this phenomenon? One of the...

Hello all I'm wondering if anyone else experiences sudden drops in b12 or whethe...

Roo32

•4 years ago

3 Replies

Does my daughter have B12 deficiency?

Hello, I am looking for some advice for my 15 year old daughter. She has PA (Pernicious Anaemia) symptoms and I will be phoning her doc as I was told blood...

Hello, I am looking for some advice for my 15 year old daughter. She has PA (Pe...

MCR77

•4 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2020

High vitamin B12 level

Buying b12

Nerve pain

Endoscopy

it gets worse before it gets better - experiences

GP refuses to prescribe Hydroxocobalamin as B12 is within "Therapeutic levels"

For new members . PLEASE USE “AMAZON SMILE” WHEN MAKING AMAZON PURCHASES ,AND CHOOSE P.A.S. AS YOUR CHARITY— AT NO COST TO YOURSELVES !

Upper-right abdominal pain as a result of AAG?

Homozygous for C677T of MTHFR

B12 frequency

Fed up and worn out

Do people take b12 1000ug & iron + b complex or multivitamins & minerals?

Tingling in left thigh at night

Lack of Intrinsic Factor

B12 & Vitamin D Deficiencies

When will hair loss stop?

B12 worse

B12 nauseous

Hello

Advice re contrast dye pl

Low folic acid fatigue

B12 injections and insomnia

PA and Neuro/Immune symptoms affecting diagnosis of secondary conditions?

B12 deficiency and menopause

Update on my bloods

Bleeding and sore gums?

Long Covid: what we know so far

B12 folate

Sudden Drops in B12?

Does my daughter have B12 deficiency?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive