B12 deficiency and headaches - Pernicious Anaemi...

Pernicious Anaemia Society

32,623 members23,983 posts

B12 deficiency and headaches

Sunshine1932 profile image
8 Replies

I have been self injecting now for a good 6 to 8 months and previous to that having one injection every 3 months from my GP for 18 months.

Before finding out I was b12 deficient amongst many other things I would get excruciating headaches. Almost as if my brain wanted to crunch on bone. Very bizarre I know.

Anyway I'm having another episode and I inject either once or twice a week.

What I have increased is my exercise from walking to running.

I dont feel tired or have any standard b12 symptoms at this stage, as I get if I dont inject, but I was wondering if anyone experiences something similar with headaches.

My other theory is perhaps the pain is from my neck and the jolting from running is causing the pain.

The headache is there from when I wake up until I fall asleep.

Thank you

Written by
Sunshine1932 profile image
Sunshine1932
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Nackapan profile image
Nackapan

Yes I'm 18m in.

My initial symptoms were virtigo

Migrain chronic ic tension heads

Daily head pain continues

The latest I was told was continuos contracting nuchal muscles . They do run from base of neck.

I've had and have very fragile nerve head pain .

What has improved ate the severe headaches that made me bedbou d a d in a dark room for days

WhT I do notice is less headaches more off balance A vestibular disturbance

It was also pur on a letter damage to the cerebellum from b12 deficiency. I dont dwell on that now as it was thoughts I think from a neuriologist rather than a diagnosis. He thought my headaches were rebound Theh were not as I puf it ti the test with great pain.

I'm slowly slowly maki v improvements buf my head hurts every morning to different degrees.

No patterns af present apart from so e basic.

Pattern glare from stripes and a u artificial light and j csnt walk straight. Aksi sets buxmzzing off as though u might pass out.

Cant read a book or watch tv. If u try I get very irritable as my head hurts and gets too busy.

I would concentrate on tour neck. I do neck stretching exercises which relaxes it and will strengthen it I paid to see a pysio that specialised with head pain.

I've since seem a NHS pysio twice. He hS given me similar but much more gentle exercises that suit me better using a thera band.

The former exercises coukd trigger a headache!!

If yih are able to run I'm sure toh could tolerate more pysio

I dud have a brain and neck MRI.

I know all about crunchy necks and head! This has all been since b12 deficiency diagnosed no problems before that.

Hioe that helps. Akso considering a cranial Osteopathy when possible as rinni g oug of ideas.

Am having frequent b12 injections and vitamins

Sunshine1932 profile image
Sunshine1932 in reply toNackapan

Thank you very much. I'm thinking it's my neck also and perhaps I shall do some stretches and ease up on the running. I forgot how debilitating they can be.

wedgewood profile image
wedgewood

If I were you , I would revert to walking . Also , sometimes you feel worse before you feel better . Also full recovery depends on how long you have been B12 deficient . Best wishes .

Sunshine1932 profile image
Sunshine1932 in reply towedgewood

Makes sense.

I guess one can forget it takes time

Thanks

Marz profile image
Marz

If your B12 was low I am wondering if other vitals were also low - Folate - Ferritin - VitD ? Have you ever suffered with anaemia ?

Sunshine1932 profile image
Sunshine1932

I did have everything checked and I am quite rigid with my vitamin taking from vitamin B complex, magnesium, acerola cherry for vitamin C and an all round multivitamin and organic spirulina.

Perhaps I have over done it and need to ease myself back into exercise.

Cheers for the thought

Auntya profile image
Auntya

I have suffered with daily headaches & migraine for the past 30 years & have tried all sorts of medications from paracetamol, triptans & anticonvulsants. Neurologist were of no help, just told yes you suffer from migraines!

I am now daily headache free & only had one 3 day migraine rather than weekly since I started B12 myself. I do also take B complex, magnesium, D3 with K and folic acid (which I have taken for years with no noticeable improvement) I have been injecting daily for the past 4 months & this is working but will reduce to weekly. This may seem a little extreme but reluctant to reduce whilst I’m headache, brain fog free & able to function better!

I had not been tested for B12 deficiency but it was picked up I was low in folic acid.

JanD236 profile image
JanD236

Maybe a contributing thing rather than the main cause but make sure you’re not dehydrated after your runs?

Not what you're looking for?

You may also like...

B12 deficiency?

I had blood tests a few weeks ago as I'd been feeling exhausted all the time. I was told My b12 is...
kbel88 profile image

Daily headaches after b12 deficiency

Hi everyone. 3 months ago I suddenly started getting daily headaches . Not the extreme kind, but a...

B12 deficiency

Hi everyone!! :) So a couple of weeks ago I discovered my b12 was 131 ng/L and my doctor refused to...
xiarei profile image

B12 deficiency and peri menopausal

Hi I'm new here I'm 45 and for the past 6 months I've went through loads with my health I have...
Kirstiet profile image

B12 deficiency and MS

I recent got the "Could it be B12" book. I first read the chapter about B12 and MS. I have been...
xyz011 profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.