Ocular migraines: So my B12 just barely... - Pernicious Anaemi...

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Ocular migraines

Kimme1029 profile image
8 Replies

So my B12 just barely made it into the range by 1 number at my last check. I had some recent issues in the past 2 weeks that I stopped taking the lozenges. I stopped my magnesium too. I developed this weird sunspot type image in my right eye. Not in the center but in the peripheral. I went to see the eye Dr and he said my eyes are healthy.. I have floaters and the sun spot is an ocular migraine. I don't get a migraine but I've had all sorts going on the past 2 weeks. Leg cramps(magnesium? Potassium?), very short headaches, teeth sensitive to cold. My blood pressure is high too now. Very strange things.

What happened.. ?My Dr gave me fulvic acid minerals to try. I stopped after a few days. I felt worse.

So are ocular migraines without the migraine caused by low B12? Low folate? Low magnesium? If my B12 was just in range.. Surely I can't possibly be that low on B12 this quickly.

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Kimme1029
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8 Replies

This happened to me and was one of the first signs of PA.

pitney profile image
pitney

I think I get this, little beads of light that come from the bottom of my eye and move up and off to the outside?

in reply topitney

That’s what I used to get but no more

thekeys46 profile image
thekeys46

I have ocular migraines. They come in episodes. 3 or 4 in a few days then nothing for a month or so. I was wondering if they were related to low B12 but I had had my last injection only a week before my last episode🙁

I had been getting central scotoma for many years- at least 12 yrs. Eye tests were normal so I just ignored it. After discovering I had low B12, 50 pets above the lowest level, and I supplemented with high dose sublingual B12, my scotoma have pretty much gone, maybe just happens 1-2 x a year now if stressed or tired.

More recently now though, I do often feel I need more b12. My eyes give me the first clue. Sometimes It’s uncomfortable to look up and I feel my right eye doesn’t move in time with the left. Bright light is also a problem. But within 30 mins of taking extra B12 , these feelings disappear. So definitely related .

Before b12 I had loads of headaches, pretty much every day, so bad I had to lie down . Since b12 hardly any .

Kimme1029 profile image
Kimme1029

So more specifically I see mine most often while looking at my phone. Bright screen or dim. If I look center screen I see what looks like an after image of the sun at the bottom right corner. I can still see it when I close my eye. It turns into a bright spot when my eye closes. Its like my eye is having a hard time adjusting to light or something. The eye Dr said it was an ocular migraine.

I don't know if that coincides with the recent high blood pressure. Does high blood pressure cause this in itself? Is it B12 gone low again? Low folate can cause high blood pressure right?

Low folate= high blood pressure= ocular migraine?

If I haven't been getting enough folate while I take high dose B12 lozenges can that B12 lower my folate? Does that work like iron? I know I have to watch my iron with B12. It causes my iron to drop.

Sorry I'm just thinking out loud.. Grasping at whatever I can to resolve this. High blood pressure is no joke and I need to lower that. The eye Dr told me the ocular migraine itself isn't dangerous I'm just worried about the cause of it. The cause may be more dangerous than the ocular migraine.

Ghound profile image
Ghound

Hi, sorry to hear you've been experiencing those alarming symptoms.

I get ocular migraines, i.e. visual disturbance but headache less severe than the usual type of migraine.

In fact had one yesterday evening, vision from each eye seemed to converge and cross over which made me dizzy, in addition to the usual zig zags and spots.

Have traced back start of these migraines to when I must have been becoming B12 deficient.

Self inject weekly but still get them , although thankfully rarely.

They occur when stressed, run down or 'coming down 'with something.

Good you had it properly checked out,

- hope you feel better soon. x

Coachlady11 profile image
Coachlady11

I get these. It usually starts with zig-zagged lines on the edge of my vision.

Sine I’ve been self injecting twice a week I don’t have them very often - usually only when I try to stretch the time between injections

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