UPDATE: Had my appointment with the nurse for my B12 shot yesterday. She said I see you enquired about taking B12 orally and I was like, eh, no, one of your GP’s told me it was a new treatment that they wanted me to try. She said and you can’t take B12 Orally because you have PA and you’ll never be able to absorb via your stomach and I said, that’s what I told the GP last week and on the phone on Monday. She couldn’t understand why they’d even had the conversation with me. I said it’s a risky game, if a GP is recommending oral B12 for PA patients.
UPDATE: Called the GP yesterday, advised that I’d researched oral B12 for PA and that it wasn’t the right treatment for me, especially since I couldn’t find any evidence or official guidance that the rules had changed. GP said that was fine and it was just something that’s being offered to patients and no one is being forced to change treatment and that was the end of the conversation. Let’s see what happens on Friday when I go for my injection.
Today I went to see my GP because I’ve got a bit of an infected foot (not PA related but the reason I went 😊).
The GP I was seeing today, said there was a note on my record from another GP, to offer me a new B12 treatment for PA that‘s taken orally, I was blown away. Had no idea that was an actual thing. I asked if that was suitable for me because I’m not just B12D, I have PA and she said yes, it’s a new treatment.
There’s a GP at the surgery who has been working on this with the Lothian Health Board and that she’s a champion and expert in B12 issues (I’ve never met this or heard of this GP). She tried to prescribe the meds to me but couldn’t find them on the system. I’m due back next Friday for my actual shot, which she said I won’t need but I’ll get my new drugs then. I’ve been doing self injections twice a week for about 5 months, haven’t told any GP or nurse about them but it’s been working for me. Nearly a year since I got diagnosed with PA.
Anyone got any idea about this new B12 treatment? I’m a bit worried that I’ll start to feel bad if I stop my Injections and go on to the pills. Seems like a huge change from you can’t absorb to oh yeah you can 🤷🏻♀️.
What’s everyone’s thoughts? Sorry if someone’s already posted on this, couldn’t find anything.
Thanks in advance 😊