Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

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All posts for June 2019

Vertigo issues?

Ive been having B12 injections for 5 months now and vertigo has always been my worst symptom. Ive had the vertigo chronically every day all day long. It has...

Ive been having B12 injections for 5 months now and vertigo has always been my w...

Pinklady95

•5 years ago

18 Replies

B12 injections

Do anyone use this b12 to inject.

Dogs6188

•5 years ago

25 Replies

B12 injections

I have recied my b12 loading injections and felt great after them, i was told i will recieve one every 3 months, spoke to GP and he said i was having enough...

I have recied my b12 loading injections and felt great after them, i was told i ...

Dogs6188

•5 years ago

2 Replies

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Morning fatigue (again)

Hi all I’m posting this as a separate thread rather than hijacking the last one. I would be interested to hear more about the morning fatigue as this has been...

Hi all I’m posting this as a separate thread rather than hijacking the last one....

Csl1

•5 years ago

2 Replies

Advice on Iron

Would like to hear from others with PA, my 14 year old daughter we think has PA, she tested positive for partiel cell antibody but negative for instrinsic...

Would like to hear from others with PA, my 14 year old daughter we think has PA,...

sbadd

•5 years ago

8 Replies

Family history of PA

I have over 20 relatives on both sides of my family that have PA. I am Fatigued and often experience confusion and memory loss. Every blood test I have had...

I have over 20 relatives on both sides of my family that have PA. I am Fatigued...

txttuff

•5 years ago

2 Replies

Could this have been happening this long without me realising?

Thinking about my current position. Five or six years ago it was winter and I went to bed with a hot water bottle because of lower back pain and when the...

Thinking about my current position. Five or six years ago it was winter and I we...

buster_uk

•5 years ago

3 Replies

Morning fatigue

After my first initial load I’ve been injecting cyanocobalamin monthly for 6 months. My only initial symptom was a sore tongue. Not sure why I would start...

After my first initial load I’ve been injecting cyanocobalamin monthly for 6 mon...

Freezeframe

•5 years ago

10 Replies

Does anyone take this?

Hello all. After reading about lots of you who take a "broad range multi vitamin" supplement, I don't have a clue what to take after asking at health shops...

Hello all. After reading about lots of you who take a "broad range multi vitami...

Ritchie1268

•5 years ago

4 Replies

digestion problems - b12 deficiency?

I have recently started treatment for a b12 deficiency and am currently receiving loading doses. I have also had bad problems with digestion for a while that...

I have recently started treatment for a b12 deficiency and am currently receivin...

owl87

•5 years ago

46 Replies

confused but mostly about intrinsic factor antibodies.

I am a little confused about intrinsic factor antibodies. How do they test for these? when I was diagnosed with b12 def they did not find antibodies. can...

I am a little confused about intrinsic factor antibodies. How do they test for ...

lesbud1

•5 years ago

25 Replies

B12 neurological symptoms

What symptoms of B12 deficiency are defined as 'neurological' as opposed to physical?

What symptoms of B12 deficiency are defined as 'neurological' as opposed to phys...

Hidden

•5 years ago

7 Replies

PA advice on next steps please

Hi all, The good folks on Thyroid UK pages suggested I post here. Please click on the image to show all the results. I’m being treated already for...

Hi all, The good folks on Thyroid UK pages suggested I post here. Please click ...

MelonJ

•5 years ago

1 Reply

Are tongue and mouth soreness always present?

I haven't yet been diagnosed but moving towards it. I have almost all the symptoms but do not have any tongue or mouth soreness. How important is that. Scan...

I haven't yet been diagnosed but moving towards it. I have almost all the sympto...

Damseltree

•5 years ago

5 Replies

loading doses

i have only been prescribed 3 loading doses not 6. anybody come across this before?

i have only been prescribed 3 loading doses not 6. anybody come across this befo...

Hidden

•5 years ago

3 Replies

B12 Deficiency - Depression?

Does anyone else with a Vitamin B12 Deficiency struggle with bouts of depression? Normally I'm a happy and bubbly person. However, when I'm due my injection...

Does anyone else with a Vitamin B12 Deficiency struggle with bouts of depression...

Rachael1997

•5 years ago

35 Replies

Might be a daft question... BUT....

Might be a daft question... BUT... People with nerve pain associated symptoms do you find it gets worse on a night?

Might be a daft question... BUT... People with nerve pain associated symptoms do...

buster_uk

•5 years ago

23 Replies

Been to gp

Back from gp. May well have not bothered. Not been refered to anyone as yet. He saw the medicheck results. Told me my last bloods were OK with NHS. {over...

Back from gp. May well have not bothered. Not been refered to anyone as yet. He...

buster_uk

•5 years ago

4 Replies

does it get worse before it gets better

I have posted before as I have b12 deficiency (103 serum level), so here is the latest. After having an unfriendly conversation with my doctor she agreed to...

I have posted before as I have b12 deficiency (103 serum level), so here is the ...

Hidden

•5 years ago

11 Replies

Has anyone used http://www.canadadrugsuperstore.com ?

This looks like a good source for me, since I'm in WA & they are in British Columbia. Price also looks very good...

This looks like a good source for me, since I'm in WA & they are in British Colu...

SouthSounder

•5 years ago

6 Replies

Test results from medicheck

Active b12 normal range pmol/L37.5 - 188 Mine 22.6pmol Folate range ug/L> 3.89 - 20.58 Mine ug/L 2.78 Ferritin ug/L 30 - 400 Mine is 67ug/L Thyroid test OK...

Active b12 normal range pmol/L37.5 - 188 Mine 22.6pmol Folate range ug/L> 3.89 -...

buster_uk

•5 years ago

13 Replies

Muscle weakness and Fatigue

Has anybody experienced muscle weakness or muscle atrophy in the legs ( especially thighs) , no energy at all in the legs, excessive fatigue , body is always...

Has anybody experienced muscle weakness or muscle atrophy in the legs ( especial...

VaishaliG

•5 years ago

10 Replies

New GP seen today

Well I had my appointment with my new GP this morning and she said they had been told that they needed to put patients on oral b12 if they could absorb it from...

Well I had my appointment with my new GP this morning and she said they had been...

lesbud1

•5 years ago

5 Replies

Tests

Hi, I have PA and taking 500 mcg methycobalamin injections every alternate day. from 3 months. Some of the symptoms improved and it’s a roller coaster...

Hi, I have PA and taking 500 mcg methycobalamin injections every alternate da...

Thulasi1

•5 years ago

6 Replies

skin rash wont go away

can b12 cause rash have very low b12 101

weazle74

•5 years ago

6 Replies

B12 nasal spray

Can anyone tell me where I can source aB12 nasal spray? I am self injecting but I find it very painful and would like to alternate with a spray but can't find...

Can anyone tell me where I can source aB12 nasal spray? I am self injecting but ...

expatkerry

•5 years ago

9 Replies

Muscle Spasms

Hi everyone, I was diagnosed with vitamin b12 deficiency in September 2018 after visiting my GP with pins and needles in my arms, hands, legs and feet. Before...

Hi everyone, I was diagnosed with vitamin b12 deficiency in September 2018 after...

Emmalee045

•5 years ago

1 Reply

Doing some reading and found this.

It maybe of help to some people. https://www.symptoma.com/en/info/vitamin-b12-deficiency

It maybe of help to some people. https://www.symptoma.com/en/info/vitamin-b12-...

buster_uk

•5 years ago

2 Replies

New GP suggesting I don't meet criteria for B12 injections

I have just moved and my new GP tells me that I do not meet the criteria for b12 injections even though I have had them for over 9yrs every 2 months as I had...

I have just moved and my new GP tells me that I do not meet the criteria for b12...

lesbud1

•5 years ago

9 Replies

More B12 or not?

Hi all, I haven't posted for a while as I thought I was on the up! However, maintaining good health it seems is always complicated and I wondered whether...

Hi all, I haven't posted for a while as I thought I was on the up! However, main...

natcap1

•5 years ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2019

Vertigo issues?

B12 injections

B12 injections

Morning fatigue (again)

Advice on Iron

Family history of PA

Could this have been happening this long without me realising?

Morning fatigue

Does anyone take this?

digestion problems - b12 deficiency?

confused but mostly about intrinsic factor antibodies.

B12 neurological symptoms

PA advice on next steps please

Are tongue and mouth soreness always present?

loading doses

B12 Deficiency - Depression?

Might be a daft question... BUT....

Been to gp

does it get worse before it gets better

Has anyone used http://www.canadadrugsuperstore.com ?

Test results from medicheck

Muscle weakness and Fatigue

New GP seen today

Tests

skin rash wont go away

B12 nasal spray

Muscle Spasms

Doing some reading and found this.

New GP suggesting I don't meet criteria for B12 injections

More B12 or not?

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