Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for June 2019

Large unstained cell count

I have been feeling very tired and unwell for 2 months now. My large unstained cell count was abnormal reading 0.28 10*9L and my doctor says my bloods are fine...

I have been feeling very tired and unwell for 2 months now. My large unstained c...

Suz71

•5 years ago

5 Replies

METHYL B6 MethylyCobalamin - Is there a CHEMIST in the house

Hi - My first post. By way of brief background ... I have read everthing here on the subject of B12 (Types, injection/oral route etc) and benefited from it -...

Hi - My first post. By way of brief background ... I have read everthing here o...

GazKaz

•5 years ago

33 Replies

Got print out of results

Got the print out of my results Any feed back would be greatly appreciated👍 Serum vitamin b12 364ng/L (191 - 663) Serum folate 9.1 ug /L (3.9 - 26.8)...

Got the print out of my results Any feed back would be greatly appreciated👍 S...

Calamity4

•5 years ago

1 Reply

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At the end of my tether

After yet another appointment with my GP today after 6 months of fatigue, balance problems, numbness and tingling in fingers, - to name a few. I have been...

After yet another appointment with my GP today after 6 months of fatigue, balanc...

Awil

•5 years ago

17 Replies

Unexpected painful loading doses have me looking for alternatives, I may (reluctantly) give up self injecting.

I've just SI for the third time in 7 days and the spot on my thigh is still smarting one hour later, this pain is lingering the longest so far and I...

I've just SI for the third time in 7 days and the spot on my thigh is s...

_Rose

•5 years ago

23 Replies

Examinations

I think I read on this forum somewhere that a yearly colonoscopy was a good idea ? Does this include endoscopy as well ? I have PA.. my tummy has been sore on...

I think I read on this forum somewhere that a yearly colonoscopy was a good idea...

lifegems

•5 years ago

2 Replies

How to deal with exhaustion

Morning. I'm a 47 year old woman diagnosed with PA and B12 deficiency about 7 years ago. Following loading shots I have injections every 3 months but haven't...

Morning. I'm a 47 year old woman diagnosed with PA and B12 deficiency about 7 y...

Curlywoo

•5 years ago

19 Replies

Accessing UK data from elsewhere

Someone had posted previously about being unable to access some UK sites from the US, as access is sometimes limited to UK residents. I had not encountered...

Someone had posted previously about being unable to access some UK sites from th...

SouthSounder

•5 years ago

2 Replies

Symptoms returning?

I was given loading dose injections for vit b12 defiency,last one was 5 weeks ago.today I’ve had annoying tingling in my feet today.could this be caused by vit...

I was given loading dose injections for vit b12 defiency,last one was 5 weeks ag...

Mollieharry

•5 years ago

2 Replies

Homocysteine test

Which lab offers homocysteine tests. I have had Vitamin b12 injections on and off for 30 yrs. Recently I had a weird reaction when having a hydroxy cobalamin...

Which lab offers homocysteine tests. I have had Vitamin b12 injections on and ...

Slosh

•5 years ago

2 Replies

Third Neurologist

Thank you for your thoughtful posts. Trying to disipher consultation. Glad my husband was with me as concentration went...great! He dId know about b12...

Thank you for your thoughtful posts. Trying to disipher consultation. Glad my h...

Nackapan

•5 years ago

6 Replies

Further update - GP agreed to give me injections!

Hi everyone! Hope you don't mind my continual posting I hope that my experience might help others who also come searching! I managed to get a face to face...

Hi everyone! Hope you don't mind my continual posting I hope that my experience ...

liaratsoni

•5 years ago

16 Replies

Nurses poor injection technique

I get my injection weekly in my surgery at the moment and the appointments I’m getting is always on a Tuesday afternoon. This particular nurse a few weeks ago...

I get my injection weekly in my surgery at the moment and the appointments I’m g...

Andypandy30

•5 years ago

15 Replies

Has anyone used these people?

Been looking around for b12 ampoules online and found these in the UK. Has anyone used them? https://www.ampavit.com/product-category/b12-ampoules Also found...

Been looking around for b12 ampoules online and found these in the UK. Has anyon...

buster_uk

•5 years ago

6 Replies

New B12 deficiency book

Hi, Just wondered if any of you had read this recently published book and what you thought of it. "Vitamin B12 deficiency in clinical practice" It's written...

Hi, Just wondered if any of you had read this recently published book and what y...

Sleepybunny

•5 years ago

12 Replies

How much b12 shots

I have thyroid disease and I am near the bottom of the range for b12 how much to take and when to boost my levels please, self injecting

I have thyroid disease and I am near the bottom of the range for b12 how much to...

Joanneconnor

•5 years ago

23 Replies

Absorption and all of that...

Hello All. This may be a naïve question, but I could not find any direct answer to it in previous posts on this site, though possibly I didn't look hard...

Hello All. This may be a naïve question, but I could not find any direct answer ...

Frank77

•5 years ago

7 Replies

New to this realm, some basic questions....

Hello! So glad to have found this lovely support site! Just diagnosed with PA and my GP is starting me out with injections 1x per week for 4 weeks then 1x per...

Hello! So glad to have found this lovely support site! Just diagnosed with PA an...

EllieMayNot

•5 years ago

32 Replies

Summer Weather

Does anyone else find they need more frequent B12 injections when the temperature rises. This is my second summer since starting B12 shots and, once again, I...

Does anyone else find they need more frequent B12 injections when the temperatur...

MoKayD

•5 years ago

8 Replies

Frequency of self injections

jaybirdxNHM How long is it before the benefit of an IM...

jaybirdxNHM ...

jaybirdxNHM

•5 years ago

18 Replies

Advice please

Hi everyone have any of you tried the B12 patches? Just wondering before I go down the self inject route. Thanks

Hi everyone have any of you tried the B12 patches? Just wondering before I go d...

Star-crossed

•5 years ago

8 Replies

B12 or Parkinsons?

Has anyone been incorrectly diagnosed as having Parkisnobs when in fact it turned out to be B12 deficiency.

Has anyone been incorrectly diagnosed as having Parkisnobs when in fact it tur...

Damseltree

•5 years ago

9 Replies

Twitching - reassurance needed

Hi all, So I have been on b12 injections since August last year and due to pins and needles and no improvement in symptoms went to injections every 8 weeks....

Hi all, So I have been on b12 injections since August last year and due to pins...

Sbmaurice

•5 years ago

46 Replies

Doctors believe b12 injections toxic

I went to see my neurologist specialising in Ms and then told him about my b12 injections but I take. He believes b12 injections are toxic...,I think he...

I went to see my neurologist specialising in Ms and then told him about my b12 i...

toph

•5 years ago

16 Replies

Disappointment with DNA consultant

I went to my appointment with the inherited metabolic diseases consultant, after waiting over a year for DNA tests, and having appointment altered because he...

I went to my appointment with the inherited metabolic diseases consultant, after...

Cherylclaire

Forum Support•5 years ago

53 Replies

Snap, Crackle & Pop: PA, B12 and tendon pain?

I've had a long history (nearly 4 decades) of idiopathic health issues which may be related to B12 & PA. Recent testing has shown low B12 & blood factors which...

I've had a long history (nearly 4 decades) of idiopathic health issues which may...

SouthSounder

•5 years ago

7 Replies

iron defiency anemia

I have iron defiency anemia and last yr aug 2018 i had a ferritin transfusion. a yr later now june 2019 i have it again but i cant get a transfusion cause my...

I have iron defiency anemia and last yr aug 2018 i had a ferritin transfusion. ...

joe123456

•5 years ago

9 Replies

What's happened to the old Perncious Anaemia forum?

What's happened to the old Perncious Anaemia forum at http://www.pernicious-anaemia-society.org/phpbb/. I read someone's sig here and it referred me to the...

What's happened to the old Perncious Anaemia forum at http://www.pernicious-ana...

Cetus

•5 years ago

2 Replies

warfarin v rivaroxabin

has anyone changed from warfarin to other blood thinner .if so what was the comparison?

has anyone changed from warfarin to other blood thinner .if so what was the comp...

cassie17

•5 years ago

1 Reply

Doctors refusing to listen

Hi everyone, I made a post recently about my issues and waiting for my intrinsic factor test to come back and thought I would make the updated info into a new...

Hi everyone, I made a post recently about my issues and waiting for my intrinsic...

liaratsoni

•5 years ago

21 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2019

Large unstained cell count

METHYL B6 MethylyCobalamin - Is there a CHEMIST in the house

Got print out of results

At the end of my tether

Unexpected painful loading doses have me looking for alternatives, I may (reluctantly) give up self injecting.

Examinations

How to deal with exhaustion

Accessing UK data from elsewhere

Symptoms returning?

Homocysteine test

Third Neurologist

Further update - GP agreed to give me injections!

Nurses poor injection technique

Has anyone used these people?

New B12 deficiency book

How much b12 shots

Absorption and all of that...

New to this realm, some basic questions....

Summer Weather

Frequency of self injections

Advice please

B12 or Parkinsons?

Twitching - reassurance needed

Doctors believe b12 injections toxic

Disappointment with DNA consultant

Snap, Crackle & Pop: PA, B12 and tendon pain?

iron defiency anemia

What's happened to the old Perncious Anaemia forum?

warfarin v rivaroxabin

Doctors refusing to listen

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