Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2018

Low B12 possible pernicious anemia and allergic to B12 /Cobalt

I have had anaphylactic shock several times when taking B12 supplements....B12 is low and Drs here think I'm crazy when I tell them I have an allergy to...

I have had anaphylactic shock several times when taking B12 supplements....B12 ...

Lasga56

•6 years ago

6 Replies

Low iron and very low ferritin, but "Not classed as anaemic"

Hope people don't mind me posting in here but just want some advice and to hear from people who are or have been in the same boat. Had blood test results after...

Hope people don't mind me posting in here but just want some advice and to hear ...

Glaura1012

•6 years ago

4 Replies

Stopping injections with pa

Hi iv had my bloods done since around a year ago when my b12 was high and tried stop b12 but i went mad and its high again but have low vitamen d also was low...

Hi iv had my bloods done since around a year ago when my b12 was high and tried ...

Leigh6873

•6 years ago

4 Replies

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Daughter's results

Hi. Just got these results back for my daughter. I am a bit confused as she has suffered with B12 deficiency as her B12 went down to 74 despite eating a diet...

Hi. Just got these results back for my daughter. I am a bit confused as she has ...

Catlover3

•6 years ago

8 Replies

Does anyone else get the 'sighs' when levels low?

As I'm new here I would love to know if anyone else get's what I can only call the 'sighs' when their levels are low, I was diagnosed with PA about 7 years ago...

As I'm new here I would love to know if anyone else get's what I can only call t...

flyingsolo

•6 years ago

10 Replies

Weight gain

Weight gain .Having initial six loading injections body was extremely swollen .Have gained 12 lbs in six months ,is this normal ?never had a wight problem...

Weight gain .Having initial six loading injections body was extremely swollen .H...

Isycampbell

•6 years ago

5 Replies

We don't all fit in to 'normal'?

Hello, hoping for some advice now I've found my way to this forum. To cut a long story short I was diagnosed with B12 deficiency pernicious anaemia about 7...

Hello, hoping for some advice now I've found my way to this forum. To cut a long...

flyingsolo

•6 years ago

14 Replies

Being referred to another Neurologist

About 4 months ago I posted about the 'one size fits all' approach of the Neurologist I had seen. Well I am glad to say that he is referring me on to another...

About 4 months ago I posted about the 'one size fits all' approach of the Neurol...

Panpal

•6 years ago

2 Replies

Testing for Functional B-12 Deficiency

Is there a testing method that has been shown to be accurate for determining functional B-12 Deficiency. I am currently on a monthly injection regimen. Here...

Is there a testing method that has been shown to be accurate for determining fun...

elvistoronto1

•6 years ago

11 Replies

Severe b12 deficiency for 18 months now

Hello to everyone. Please am suffering from serious neurological symptoms, its been 1year and 6 months now. These symptoms are accompanied by fatigue, weight...

Hello to everyone. Please am suffering from serious neurological symptoms, its ...

Suffolkh

•6 years ago

6 Replies

Possible pernicious Anaemia

Hi folks, I was advised by the thyroid group to add a post here as some of my levels are low, I’m not sure all what I need to add here but here are some of my...

Hi folks, I was advised by the thyroid group to add a post here as some of my le...

SLM81

•6 years ago

2 Replies

H pylori test negative

So had my result from H pylori test today, Negative! I am now in the process of writing my 2nd letter to the practice manager, this will be my final letter, if...

So had my result from H pylori test today, Negative! I am now in the process of ...

Padeficiant12

•6 years ago

10 Replies

Thyroid results - should I have MMA, homocysteine checked too?

Hi all. I received the results of thyroid tests from Blue Horizon. TOTAL THYROXINE(T4) 99 nmol/L 59 - 154 THYROID STIMULATING HORMONE 2.69 mIU/L 0.27 - 4.2...

Hi all. I received the results of thyroid tests from Blue Horizon. TOTAL THYROX...

pj16

•6 years ago

5 Replies

High B12, High Folate, High MCH

Hi all, I have high b12 of 986, high folate >20, and high MCH 32.7. My symptoms are fatigue, burning swollen tongue, joint pain, muscle aches, brain fog. I...

Hi all, I have high b12 of 986, high folate >20, and high MCH 32.7. My symptoms...

thyroidrose

•6 years ago

20 Replies

What resource can I show GP to show some people need B12 injections more often than the standard 3 months ?

Good evening all - just wondered if any fair weathered b12 friends might be able to point me in the direction of any links which show a GP or nurse (in my case...

Good evening all - just wondered if any fair weathered b12 friends might be able...

Mandymoos8

•6 years ago

14 Replies

Low TIBC

Hello, can anyone elaborate on the significance of a low TIBC of 42.6 (range 47-80) in relation to PA, and what can be done to remedy? TIA

Hello, can anyone elaborate on the significance of a low TIBC of 42.6 (range 47-...

Hipgnosis

•6 years ago

2 Replies

New NICE guidelines - Thanks to PAS.

Today (17th October) we received an email from the Director of Guidelines at the National Institute for Health and Care Excellence (NICE). They have been...

Today (17th October) we received an email from the Director of Guidelines at the...

fbirder

•6 years ago

18 Replies

PAS - Neurological Alliance survey

PAS news item on patient experience survey for Neurological Alliance....

Sleepybunny

•6 years ago

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Martyn Hooper needs our support

Just to let everyone know, in case you may have missed it. Martyn (Chair of the Pernicious Anaemia Society) is going to give a speech at the House of Commons...

Just to let everyone know, in case you may have missed it. Martyn (Chair of the...

Cherylclaire

Forum Support•6 years ago

6 Replies

H Pylori

Hello everyone. As part of my ongoing journey to identify reasons for my B12 problem I have today received the first couple of results of blood work: Ferritin...

Hello everyone. As part of my ongoing journey to identify reasons for my B12 pro...

Frank77

•6 years ago

15 Replies

Low b12

Hi can anyone answer my question i was told after blood test my b12 was low I was sent for another blood test wen it came back my doctor said no action taken...

Hi can anyone answer my question i was told after blood test my b12 was low I w...

Carter2

•6 years ago

7 Replies

B12 deficiency, injections and blood test results

Hello, I wondered whether there's anyone out there with knowledge of B12 deficiency? I've been feeling rubbish with loads of strange symptoms for at least a...

Hello, I wondered whether there's anyone out there with knowledge of B12 deficie...

BlackInk

•6 years ago

6 Replies

Looking for B12 Hydroxo Injection fluid

Under 50.00 for 100 phials! https://goo.gl/3SAfD9

Hidden

•6 years ago

1 Reply

First hydroxy SI done!

Wow can’t believe it, I just did it! Didn’t feel a thing :) I have one question is my needle long enough? Blue pkt 0.60 x 25mm BL/LB. I have got stupidly...

Wow can’t believe it, I just did it! Didn’t feel a thing :) I have one question...

Wagonwheel

•6 years ago

4 Replies

B12 findings

In regards to B12 , I have a hiatus hernia and have fond the swelling has all gone from my tummy area, also an increase in heartburn and tummy acid.......I...

In regards to B12 , I have a hiatus hernia and have fond the swelling has all go...

Albinaaa

•6 years ago

2 Replies

Numbness in ring and little fingers

Hi all. I wanted to check if symptoms like numbness can recur or appear after B12 injections are underway. I had the loading dose in June then the next...

Hi all. I wanted to check if symptoms like numbness can recur or appear after B1...

Csl1

•6 years ago

4 Replies

GP refusing treatment - what to do next?

I wrote to my doctor requesting confirmation of diagnosis of B12D, (diagnosed February and initially on 3 mthly injections). W anted to know and reasons for...

I wrote to my doctor requesting confirmation of diagnosis of B12D, (diagnosed Fe...

JillMaryC

•6 years ago

11 Replies

Looking for Advice

Hi, So I have jumped over from the Thyroid Support Group at their suggestion. I am trying to get a diagnosis for my many symptoms which are similar to PA and...

Hi, So I have jumped over from the Thyroid Support Group at their suggestion. I ...

Furmummy

•6 years ago

4 Replies

Vitamin Deficiencies (Seeking Friendship)

Okay so I don't have anaemia but I couldn't find anywhere else to post this. About a year ago I had really low vitamin deficiencies which I was unaware of no...

Okay so I don't have anaemia but I couldn't find anywhere else to post this. Abo...

Cubies

•6 years ago

8 Replies

Blood results

Please could you tell me if fbc looks ok please? This is result of my last blood test, b12 last time was 217, im due to be retested for b12 levels in December...

Please could you tell me if fbc looks ok please? This is result of my last blood...

Padeficiant12

•6 years ago

26 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2018

Low B12 possible pernicious anemia and allergic to B12 /Cobalt

Low iron and very low ferritin, but "Not classed as anaemic"

Stopping injections with pa

Daughter's results

Does anyone else get the 'sighs' when levels low?

Weight gain

We don't all fit in to 'normal'?

Being referred to another Neurologist

Testing for Functional B-12 Deficiency

Severe b12 deficiency for 18 months now

Possible pernicious Anaemia

H pylori test negative

Thyroid results - should I have MMA, homocysteine checked too?

High B12, High Folate, High MCH

What resource can I show GP to show some people need B12 injections more often than the standard 3 months ?

Low TIBC

New NICE guidelines - Thanks to PAS.

PAS - Neurological Alliance survey

Martyn Hooper needs our support

H Pylori

Low b12

B12 deficiency, injections and blood test results

Looking for B12 Hydroxo Injection fluid

First hydroxy SI done!

B12 findings

Numbness in ring and little fingers

GP refusing treatment - what to do next?

Looking for Advice

Vitamin Deficiencies (Seeking Friendship)

Blood results

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