Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for October 2018

What relevance have MCH, MCV, MCHC results have in possible B12 deficiency ?

I had some FBC tests done recently and the above plus Serum alkaline phosphatase were considered 'abnormal'. No treatment but combined with a low B12 serum...

I had some FBC tests done recently and the above plus Serum alkaline phosphatase...

jib70

•6 years ago

4 Replies

Vitamin B12 injections

Has anyone used this place please? http://www.skinbrighton.co.uk/b12-injections/

Has anyone used this place please? http://www.skinbrighton.co.uk/b12-injections/...

Butterflies1919

•6 years ago

9 Replies

Battle with Doctor re: travel abroad

Hi, I'm off to Nepal in a couple of days for 3 weeks+ for a high altitude trek. I already self inject - officially monthly, but I supplement with my own B12...

Hi, I'm off to Nepal in a couple of days for 3 weeks+ for a high altitude trek. ...

Bristlyridge

•6 years ago

7 Replies

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Lab results - PA?

Hi, Since this April I've been dealing with depression, anxiety, and starting in July I experienced extreme fatigue (couldn't sit up at my work desk) and...

Hi, Since this April I've been dealing with depression, anxiety, and starting in...

reflected_glory

•6 years ago

4 Replies

Sublinguals

I’m currently taking 3000mcg sublinguals 2x/day in between my monthly injections. The lozenges generally dissolve very quickly and I end up accidentally...

I’m currently taking 3000mcg sublinguals 2x/day in between my monthly injections...

Betterdayz

•6 years ago

5 Replies

Folate

Hi , as I have posted previously I have been managing very well on my three monthly jabs and have been feeling my normal self 90% of the time . Three weeks ago...

Hi , as I have posted previously I have been managing very well on my three mont...

Av42

•6 years ago

4 Replies

Going abroad

Hi I am currently having b12 injections every other day. How do I get a prescription to have injections when on holiday.

Hi I am currently having b12 injections every other day. How do I get a prescrip...

B12symptoms

•6 years ago

5 Replies

B12 lower after supplementing

Hi, A few weeks ago I had my B12 and folic acid levels tested: Folic acid 9.1 nmol/l B12 154 pmol/l Since then I've been taking B12 supplements, 1000 mcg a...

Hi, A few weeks ago I had my B12 and folic acid levels tested: Folic acid 9.1 nm...

AmelieV12

•6 years ago

4 Replies

One injection

Had injection was hoping notice the change within 24hours one month on feel no different,When do I notice a change

Had injection was hoping notice the change within 24hours one month on feel no d...

Ken-ard20

•6 years ago

1 Reply

Joint Pain and tiredness following B12 injections

Hi, I am new to this platform but have been reading other posts since my diagnosis last month. I was diagnosed after 2 blood tests that showed my B12 level as...

Hi, I am new to this platform but have been reading other posts since my diagnos...

Girl5492

•6 years ago

3 Replies

B12 Injections & testing

Hi all. I just thought I would ask if there was any such test available where you can test your B12 levels at home & get the results at home instead of having...

Hi all. I just thought I would ask if there was any such test available where yo...

Ritchie1268

•6 years ago

17 Replies

PAS Awareness at Cardiff Half Marathon

Another PAS news item. https://pernicious-anaemia-society.org/pernicious-anaemia-society/raising-awareness-at-the-cardiff-half-marathon/ The people running to...

Another PAS news item. https://pernicious-anaemia-society.org/pernicious-anaemia...

Sleepybunny

•6 years ago

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Where next?

I don’t know where to go next. Been at gp this morning who suggested that the improvement I’ve had with tablet dose of b12 is psychosomatic. Ive been on...

I don’t know where to go next. Been at gp this morning who suggested that the i...

lumpymum

•6 years ago

11 Replies

Blood tests

Hello, Could anyone tell me whats included in a fbc please? Is mma and folate inculded please? Thankyou

Hello, Could anyone tell me whats included in a fbc please? Is mma and folate i...

Padeficiant12

•6 years ago

2 Replies

Hit a vein twice in a row. What's the odds?

Hi all. Last two times I have SI (i usually do it weekly) I have hit a vein and had quite a but of blood come out after taking the needle out. I also then get...

Hi all. Last two times I have SI (i usually do it weekly) I have hit a vein and ...

acdoore

•6 years ago

39 Replies

Folate to be added to flour

Link below I thought this had been shelved as it masks b12 deficiency?...

Dadvatar

•6 years ago

16 Replies

Martyn Hooper's blog post - PAS support groups

Hi All, Another new post on Martyn Hooper's blog, about PAS support groups. Link below to list of PAS support groups in UK, need to be PAS member to access...

Hi All, Another new post on Martyn Hooper's blog, about PAS support groups. Link...

Sleepybunny

•6 years ago

Be the first to reply

Should I get tested?

Hello, I am new to discovering what PA is. When I was born I was told I was anemic, however my mother never said or now cannot remember which form it is....

Hello, I am new to discovering what PA is. When I was born I was told I was anem...

Rent45

•6 years ago

3 Replies

8 weeks on 1000mcg cyanacobalim pills plus using B12 1200ug spray last 4 weeks. Help please, is it all working?

I hope someone can help me understand if I'm going in the right direction. I am trying to understand if my B12 has increased in accordance with what I'm...

I hope someone can help me understand if I'm going in the right direction. I am...

jib70

•6 years ago

14 Replies

Having doubts !!!!!!

After reading through your posts about all of you feeling awful most of the time, I am wondering if it's a mind over matter .as well. Brains are usually good...

After reading through your posts about all of you feeling awful most of the tim...

squeeler

•6 years ago

15 Replies

Tendonitis

. Is tendonitis B2related? It is not on the website symptom list.

Numbsew

•6 years ago

10 Replies

Vit d3

If B12 is low would recommend having Vit D3 checked Have been having B12 injections now for 2 1/5 years and mostly come away thinking they not working for me...

If B12 is low would recommend having Vit D3 checked Have been having B12 injecti...

may61

•6 years ago

1 Reply

Is it ok to go ahead with self injection when feeling so weak

Very weak with headache and zero energy . Can I go ahead ? Iv gad one at docs on Tuesday and self injected Friday of last week . Been feeling so unwell I’m...

Very weak with headache and zero energy . Can I go ahead ? Iv gad one at docs on...

Andypandy30

•6 years ago

10 Replies

Update about work of PAS (Pernicious Anaemia Society)

Hi All, Latest blog post about work of PAS and issues Martyn Hooper (chair of PAS) has been involved with over last few months....

Hi All, Latest blog post about work of PAS and issues Martyn Hooper (chair of PA...

Sleepybunny

•6 years ago

1 Reply

B12 side effects?

I received a reply to my complaint about the HCA’s cynicism towards my bidaily B12d injections. The practice manager discussed my treatment with 2 senior gp’s;...

I received a reply to my complaint about the HCA’s cynicism towards my bidaily B...

Wagonwheel

•6 years ago

12 Replies

PLEASE HELP!!!!

Hey guys! Which test should I do if I want to know my body uses vitamin b12 and absorbs it ? Any gene test?If you are in uk please could you suggest me any...

Hey guys! Which test should I do if I want to know my body uses vitamin b12 and ...

Ari3

•6 years ago

20 Replies

IS this for ever ???

I have had B 12 injections every three months ,for approx 3 years ,and ,I take a self inflicted Tablet, daily. In all honesty ...i feel no difference at all,...

I have had B 12 injections every three months ,for approx 3 years ,and ,I take a...

squeeler

•6 years ago

12 Replies

Diagnosis B12 deficiency/unclear as to cause

I was just diagnosed with B12 & Folate deficiency’s but I am unclear as to how my dr ruled out PA based on lab work??? Any insight and/or guidance is...

I was just diagnosed with B12 & Folate deficiency’s but I am unclear as to how m...

Hidden

•6 years ago

9 Replies

Admin Advisory Note: Reminder That Derogatory Comments or Personnal Insults Directed at Other Fourm Members Are NOT Permitted in the Forum

Dear All Sorry to have to do this but please can I reiterate that it is not permissbale to 'flame' or make derogatory or personnaly insulting comments about...

Dear All Sorry to have to do this but please can I reiterate that it is not perm...

Foggyme

Administrator•6 years ago

4 Replies

Advise on B12 and Folate supplements

Hello Members, I am on B12 and Folate supplements from around 3 months and recently I have done my bloods Serum b12 372 ng/L and Serum folate 12.8 ug/L. Can...

Hello Members, I am on B12 and Folate supplements from around 3 months and recen...

Cooljay

•6 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2018

What relevance have MCH, MCV, MCHC results have in possible B12 deficiency ?

Vitamin B12 injections

Battle with Doctor re: travel abroad

Lab results - PA?

Sublinguals

Folate

Going abroad

B12 lower after supplementing

One injection

Joint Pain and tiredness following B12 injections

B12 Injections & testing

PAS Awareness at Cardiff Half Marathon

Where next?

Blood tests

Hit a vein twice in a row. What's the odds?

Folate to be added to flour

Martyn Hooper's blog post - PAS support groups

Should I get tested?

8 weeks on 1000mcg cyanacobalim pills plus using B12 1200ug spray last 4 weeks. Help please, is it all working?

Having doubts !!!!!!

Tendonitis

Vit d3

Is it ok to go ahead with self injection when feeling so weak

Update about work of PAS (Pernicious Anaemia Society)

B12 side effects?

PLEASE HELP!!!!

IS this for ever ???

Diagnosis B12 deficiency/unclear as to cause

Admin Advisory Note: Reminder That Derogatory Comments or Personnal Insults Directed at Other Fourm Members Are NOT Permitted in the Forum

Advise on B12 and Folate supplements

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