Vitamin Deficiencies (Seeking Friends... - Pernicious Anaemi...

Pernicious Anaemia Society

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Vitamin Deficiencies (Seeking Friendship)

Cubies
Cubies

Okay so I don't have anaemia but I couldn't find anywhere else to post this. About a year ago I had really low vitamin deficiencies which I was unaware of no amount of sleep ever made me feel better I had extreme fatigue even after nine hours of sleep. Running for the bus (a couple of steps) had my almost floored and panting heavily. One day I was tucking into a bag of grated cheese while laying restless in bed (around 250g) and after an hour I got out of bed to go toilet and I noticed a surge of energy rush from the souls of my feel all the way to my shoulders it was the strangest feeling I've ever experienced. After this I went to my doctor and explained her about my strange experience then she sent me off to get blood tests taken. This is when it came back that various vitamins were really low and I spent around 3 to 6 months taking high doses everyday. Now after a year maybe one and a half years I'm about 75% better, I can shower, eat breakfast, get dressed, and walk around shops without constantly wanting to sit down or lay down in bed.

The reason for this post is I'm seeking friends who also have been in my shoes. I would like someone to befriend who I can talk to and can relate to what I am saying that we can support each other in times of need. I've spoken to people about this and even though they are understanding they can't relate to anything I've been saying and it makes me feel isolated.

Thank you for reading.

8 Replies
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Gambit62
Gambit62Administrator

Welcome,

This forum really isn't about anaemia - pernicious anaemia is a misnomer for a gastric condition that leads to B12 deficiency and was first documented - a few hundred years ago - via the anaemia that B12 deficiency will eventually cause.

There are many of us on this forum who don't have anaemia.

It would help to know which vitamins you need to supplement. PA particularly affects B12 but can also affect absorption of folate and iron.

There are other conditions that will affect absorption of other vitamins and minerals - such as crohn's and coeliacs.

Do you know what caused the absorption problems.

Cubies
Cubies in reply to Gambit62

I've finished all my prescribed medication issued to me from the pharmacy. Now I'm just seeking the company of those that share the same current symptoms as myself for advice and closure. I'd like to discuss where I've been, where I am now, and where I'm headed in terms of recovery.

Gambit62
Gambit62Administrator in reply to Cubies

As in my original reply - this form us really about B12 deficiency. Did you have B12 deficiency and if so do you know what caused it - sounds as if it was dietary (or your GP thinks it was dietary) if you have been given a course of tablets.

Most people with B12 deficiency have absorption problems and most on here need to treat this with injections.

This forum may not be the best place for you if your deficiencies weren't B12 or weren't the result of absorption problems but the result of diet.

That's why it is important to know which vitamins you were deficient in.

Cubies
Cubies in reply to Gambit62

B12 was the biggest deficiency and I was on three months of tablets instead of an injection. I'm covering so I'm assuming my body doesn't have an absorption problem and maybe it was dietary but now you've given me a lot to think about.

Gambit62
Gambit62Administrator in reply to Cubies

Keep a diary of your symptoms. If the tablets were around 50mcg and made you feel better that would imply it was dietary but if your diet contains good amounts of fish/meat/dairy/eggs then it is unlikely it was a dietary deficiency.

Gambit62 has said everything I was thinking.

This forum is more for specific information than chat but there are Facebook support groups which are likely to give you lots of understanding friends so you could try them.

Cubies
Cubies in reply to Gambit62

Can I ask dietitian questions here?

Gambit62
Gambit62Administrator in reply to Cubies

you can ask but please remember that Health Unlocked isn't a replacement for professional health care - would be best to start a new thread though as people tend not to come back to old posts.

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