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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for October 2018

Recent/new PA and B12 Diagnosis and Treatment. Need injections more regularly - persuading Dr?

Hi All, I'm new here - thought I'd join as I've been browsing the site for some time following being diagnosed with Pernicious Anaemia and B12 deficiency in...

Hi All, I'm new here - thought I'd join as I've been browsing the site for some...

honey1995

•6 years ago

6 Replies

GP advises against going on forums such as this as most people on “these types of forums” are likely to be mentally ill 😳

Just been to see third doctor in a week re B12 symptoms and informing them I will be self injecting from hereon. I’m being referred to a neurologist as these...

Just been to see third doctor in a week re B12 symptoms and informing them I wil...

Mandymoos8

•6 years ago

30 Replies

Grateful for any advice on taking a Vit B Complex plus a good mumtivitamin

I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take...

I’m currently taking Thorne Basic B Complex but also after advice on here lookin...

Mandymoos8

•6 years ago

2 Replies

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Having more than 1 B12 injection ?

Has anyone who self injects ever injected more than 1 injection just to see how they feel, like if you feel more energetic or if it has a greater effect than a...

Has anyone who self injects ever injected more than 1 injection just to see how ...

Ryaan

•6 years ago

6 Replies

Symptoms?

I've been self injecting B12 every week now for about 10 months and it's been going really well. I had problems before because I couldn't gage when I needed...

I've been self injecting B12 every week now for about 10 months and it's been go...

Hayley31

•6 years ago

3 Replies

Brexit and B12

Hi, Does anyone in the UK have a plan come Brexit? Without free trade we might not be able to get our B12 ampules abroad.

Hi, Does anyone in the UK have a plan come Brexit? Without free trade we might n...

Dottyspotspot

•6 years ago

15 Replies

Side effects of b12 methylcobalmin 1000 mcg subligual

Hello Members, I am on b12 methylcobalmin 1000 mcg subligual & holland and barret 400 folic acid from 45 days my bloods were on 2nd october Serum b12 372 ng/L...

Hello Members, I am on b12 methylcobalmin 1000 mcg subligual & holland and barr...

Cooljay

•6 years ago

9 Replies

'18 Things I bet you never knew about B12 deficiency....."a very lonely and secret illness"

Sorry about the language but a very interesting link :...

Polaris

•6 years ago

23 Replies

head pressure and poor vision

Hi i was low at b12 one year before,i was suffering with headaches,dizziness and weakness.still the head pressure is with me and my g.p is saying it's a kind...

Hi i was low at b12 one year before,i was suffering with headaches,dizziness and...

RaJender9666

•6 years ago

3 Replies

Still having symptoms

Hi i was low at b12 one year later,i was suffering with headaches,dizziness and weakness.still the head pressure is with me and my g.p is saying it's a kind of...

Hi i was low at b12 one year later,i was suffering with headaches,dizziness and ...

RaJender9666

•6 years ago

Be the first to reply

The Effect of Exercise of B12 levels?

Just a bit of advice really as I am coming to terms with a recent diagnosis of PA after a rough couple of months when the symptoms and my system said......

Just a bit of advice really as I am coming to terms with a recent diagnosis of P...

wiganer123

•6 years ago

4 Replies

Injections

Hi can anyone tell me when I can bye my own b12 injections . I have them at my gps every 12weeks but still feel awful tried, moody , ? Please can anyone help x

Hi can anyone tell me when I can bye my own b12 injections . I have them at my g...

Shellbes

•6 years ago

3 Replies

Post loading dose...

Hi there, I'm coming to the end of my 6 injection loading dose (one more to go and self injecting); I still have pins and needles in my hands and feet, but...

Hi there, I'm coming to the end of my 6 injection loading dose (one more to go a...

0406

•6 years ago

6 Replies

How does everyone feel the day of their b12 injection ?

I know we’re all different and react differently depending on circumstances and severity and length of time between injections etc bit interested to hear how...

I know we’re all different and react differently depending on circumstances and ...

Mandymoos8

•6 years ago

12 Replies

Help!

I wonder if I could have any thoughts from those that have been managing long term B12 deficiency? I had been suffering extreme tiredness/hair breakage/painful...

I wonder if I could have any thoughts from those that have been managing long te...

KazzyK

•6 years ago

3 Replies

Remember your B12

I'm on weekly injections that I give to myself. It's convenient because I can fit them in around my schedule, but it also means that's its up to me to remember...

I'm on weekly injections that I give to myself. It's convenient because I can fi...

Galixie

•6 years ago

5 Replies

Metallic poop

Hi Sorry sensitive question Does anyone have metallic smelling poop like iron smell With Vit b 12 injections for PA?

Hi Sorry sensitive question Does anyone have metallic smelling poop like iron sm...

ben1988

•6 years ago

4 Replies

Requesting blood tests

Im trying to find out of pernicious anemia is the cause of my b12, would requesting to have tests done at the doctors be of use? Im thinking of asking for MMA...

Im trying to find out of pernicious anemia is the cause of my b12, would request...

Padeficiant12

•6 years ago

4 Replies

Still So Tired

Hi, I got diagnosed with Pernicious Anemia 3 years ago. The injections helped for a while. But now I just feel tired all the time. When I asked my GP if I...

Hi, I got diagnosed with Pernicious Anemia 3 years ago. The injections helped ...

Ry_Anth

•6 years ago

9 Replies

Anyone else having to battle each time they need an iron infusion?

I’ve had PA since I was a teenager, although it took them years to identify it and I was 23 by the time I received my first loading doses. The main reason they...

I’ve had PA since I was a teenager, although it took them years to identify it a...

Katyluisa

•6 years ago

22 Replies

Weight loss and head numbness, low b12 , folate and D

Hello Members, I was deficient on B12 ,Folate and vitamin D and taking supplements from around 3 months and 2 weeks back I have done my bloods Serum b12...

Hello Members, I was deficient on B12 ,Folate and vitamin D and taking supplem...

Cooljay

•6 years ago

2 Replies

Advice please - Out of range MCH

Hi New here after some advice. I recently had some private bloods done (thyroid and vitamins) as I have be feeling exhausted, achy, forgetful among other...

Hi New here after some advice. I recently had some private bloods done (thyroid...

Chickenlife

•6 years ago

7 Replies

1ml or 2ml

When I go for my 3 monthly jab I’ve noticed some months I get 1ml and sometimes I get 2mls? I self inject 1mls. Do I need 2mls?

When I go for my 3 monthly jab I’ve noticed some months I get 1ml and sometimes ...

Hidden

•6 years ago

1 Reply

Pins and needles

I keep getting pins and needles in my hands and feet. Does this mean I need more b12? I self inject usually every 2-3 days but recently not for a week and...

I keep getting pins and needles in my hands and feet. Does this mean I need mor...

Hidden

•6 years ago

5 Replies

Neurological symptoms

Hi everyone bit of a long and complicated one but I’m really struggling. I have had pernicious anaemia for 8 years. I had my loading doses and then went to 12...

Hi everyone bit of a long and complicated one but I’m really struggling. I have...

Littledancingtiger

•6 years ago

12 Replies

Gastritis leading to anaemia

I have just had a gastroscopy and have gastritis and duodenitis, they now want to do a colonoscopy because I have low trasnsferrin (10) and haemaglobin levels...

I have just had a gastroscopy and have gastritis and duodenitis, they now want t...

RainyDayMarisa

•6 years ago

Be the first to reply

B12 level

I have no pernicious anaemia problem and my B12 level is 345.Is this level is ok?

I have no pernicious anaemia problem and my B12 level is 345.Is this level is ok...

naveed123

•6 years ago

8 Replies

new to this ,

on my 2nd quarterly injection for p/a,totally done in nearing end of each quarter,doctor has now agreed to injection every 10 weeks.would lack of oxygen which...

on my 2nd quarterly injection for p/a,totally done in nearing end of each quarte...

burnscottage

•6 years ago

4 Replies

Advice on self injecting please

Hi I am looking at starting to self inject and have found a German pharmacy called Versandapo and the B12 depot is in a box of 10 - 1mg each. They are 8.49...

Hi I am looking at starting to self inject and have found a German pharmacy call...

Mandymoos8

•6 years ago

11 Replies

Stopping breathing, and or gasping for air.

Hi everyone. Just wondered if what I get is what I've heard is air hunger where Im fine one minute, then suddenly gasp for breath as if I'm not getting enough...

Hi everyone. Just wondered if what I get is what I've heard is air hunger where...

Ritchie1268

•6 years ago

11 Replies

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Various B12D/PA resources

Reminder - posts offering injectable B12

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2018

Recent/new PA and B12 Diagnosis and Treatment. Need injections more regularly - persuading Dr?

GP advises against going on forums such as this as most people on “these types of forums” are likely to be mentally ill 😳

Grateful for any advice on taking a Vit B Complex plus a good mumtivitamin

Having more than 1 B12 injection ?

Symptoms?

Brexit and B12

Side effects of b12 methylcobalmin 1000 mcg subligual

'18 Things I bet you never knew about B12 deficiency....."a very lonely and secret illness"

head pressure and poor vision

Still having symptoms

The Effect of Exercise of B12 levels?

Injections

Post loading dose...

How does everyone feel the day of their b12 injection ?

Help!

Remember your B12

Metallic poop

Requesting blood tests

Still So Tired

Anyone else having to battle each time they need an iron infusion?

Weight loss and head numbness, low b12 , folate and D

Advice please - Out of range MCH

1ml or 2ml

Pins and needles

Neurological symptoms

Gastritis leading to anaemia

B12 level

new to this ,

Advice on self injecting please

Stopping breathing, and or gasping for air.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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