Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2017

Preparing for a Neurology Appointment

Hi Everyone, Hope you are all not feeling too bad. I finally have my long awaited neurology appointment in about 2 weeks. I would really like some help please...

Hi Everyone, Hope you are all not feeling too bad. I finally have my long awaite...

Cn13

•7 years ago

4 Replies

B12 deficiency

Hi all looking for some advice and feedback on this b12 deficiency. 2 months ago i was diagnosed with b12 deficiency, pernacious anemia, gastritis, low kidney...

Hi all looking for some advice and feedback on this b12 deficiency. 2 months ago...

Jo-jo47

•7 years ago

2 Replies

Feet

Does anyone else get painful feet my feet really have started hurting it's worse in the morning when I get out of bed

Does anyone else get painful feet my feet really have started hurting it's worse...

Newberryk

•7 years ago

10 Replies

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First time triumphant injector. Now I wait.....

Self injected for the first time using needles and syringes I bought at a chemist in Germany (was there on business last week) and it was amazingly easy and...

Self injected for the first time using needles and syringes I bought at a chemis...

Pingo

•7 years ago

13 Replies

Synthetic vs. natural B 12

Hello Community, I found out my B level was low last week, during m annual check up I requested my B level to be done AND it's a good thing I asked because my...

Hello Community, I found out my B level was low last week, during m annual check...

zuli

•7 years ago

12 Replies

Advice sought for a 12 year old with underactive thyroid

Looking for some advice please and was directed here by someone on Thyroid Unlocked. My 12 year old was diagnosed with an underactive thyroid. We were growing...

Looking for some advice please and was directed here by someone on Thyroid Unloc...

suzeb0406

•7 years ago

15 Replies

Hello all :)

So cut a long story short I have been feeling unwell for years, but this last week it's gone completely crazy my face is extremely pale I'm so breathless my...

So cut a long story short I have been feeling unwell for years, but this last we...

Naddy

•7 years ago

1 Reply

Do you need B12 and Folic Acid together

Hi Anyone, I have been supplementing with a lot of B12 both sublingual and the patch, but I have not been taking oral Folic Acid, except in a Stress B Complex...

Hi Anyone, I have been supplementing with a lot of B12 both sublingual and the p...

terrybraden

•7 years ago

2 Replies

Thank you

Just want to say thank you for all the advice, the nurse who has been doing my injections (last one mon) knows nothing bout b12 deficiency -so not useful.......

Just want to say thank you for all the advice, the nurse who has been doing my ...

Glitterbug83

•7 years ago

5 Replies

living with b12

I have been diagnosed with b12 def.can anyone tell me how long it takes to begin the healing ?been on sublingual liquid for 2 mo. but so far not seeing to much...

I have been diagnosed with b12 def.can anyone tell me how long it takes to begin...

vanarnam

•7 years ago

4 Replies

Spots

Was wondering if anyone else gets tiny bright red pin head spots under the skin when there feeling bad only last a while then they go don't hurt not raised and...

Was wondering if anyone else gets tiny bright red pin head spots under the skin ...

Parkes

•7 years ago

1 Reply

Folate deficiency + help understanding blood results

Hi all new to this group, made two posts on the thyroid group (linked here by Clutter). Here is a link to my story on my thyroid situation:...

Hi all new to this group, made two posts on the thyroid group (linked here by Cl...

vooxxy

•7 years ago

7 Replies

Losing my Internist!! Self injected first time today!

Today was stressful beyond belief. Had my oncologist appointment today and was informed my internist has put in his resignation at the medical practice! I...

Today was stressful beyond belief. Had my oncologist appointment today and was i...

CH52

•7 years ago

9 Replies

Copy of bloods

Asked for a copy of my latest blood tests was told it's £10 charge ?

Glitterbug83

•7 years ago

11 Replies

What are normal B12 levels

Hi, wondered if someone can tell me if my B12 levels are normal at 216 and Folate 9.42 ? I have a whole variety of symptoms such as breathlessness, dizziness...

Hi, wondered if someone can tell me if my B12 levels are normal at 216 and Folat...

Spellweaver1312

•7 years ago

11 Replies

Help with test results please.

Hi everyone - please can someone help with my latest test results - Active B12 128.6 pmol/L 25.10 - 165.00 range. Folate (serum) 4.14 ug/L range...

Hi everyone - please can someone help with my latest test results - Active B12 ...

xeena

•7 years ago

3 Replies

Last loading dose today and I feel my body is giving up

Even my nurse said I should of felt some difference but I dnt! Will this ever end..... I have no fight left 😢😢😢

Even my nurse said I should of felt some difference but I dnt! Will this ever en...

Dani82

•7 years ago

17 Replies

Anyone test positive for IF antibodies and still have GP who is reluctant on treatment?

Beginning of July I got a positive test. My Dr. started loading doses before the results came back and now my husband is giving me weekly injections. During...

Beginning of July I got a positive test. My Dr. started loading doses before th...

jstarkey

•7 years ago

6 Replies

Request for advice re B12 levels after receiving injections

Hello all, I am wondering whether any of you lovely people could offer me any advice. Here is my story so far: About 18 months ago, after feeling completely...

Hello all, I am wondering whether any of you lovely people could offer me any ad...

Laura_g

•7 years ago

8 Replies

Setting surgery precedents for treatment: should you tell your GP if you are self-injecting ?

Had letter from Haematologist yesterday morning, and appointment with GP later. Interestingly, although haematologist seems sure that I do not have functional...

Had letter from Haematologist yesterday morning, and appointment with GP later. ...

Cherylclaire

Forum Support•7 years ago

15 Replies

Haematologist

Just left hospital after seeing haematologist who info me I didn't have low B12 at 142 stating this was normal. Didn't think it could be PA even thought my dad...

Just left hospital after seeing haematologist who info me I didn't have low B12 ...

Goldcreast

•7 years ago

2 Replies

Pregabalin (Lyrica)

I was diagonsed with PA/AMAG 3 months ago and started to si methyilcobalamin every other day for the past 2 months. I was also taking pregabalin 150mg a day...

I was diagonsed with PA/AMAG 3 months ago and started to si methyilcobalamin eve...

cquadros

•7 years ago

4 Replies

long term side effects of b12?

Hi I'm wondering If anyone has knowledge of research that has been done for side effects of long-term injecting of B12?

Hi I'm wondering If anyone has knowledge of research that has been done for side...

pslmt

•7 years ago

16 Replies

Blood Test Results - Help please!

Hi, I have obtained my bloods from my doctor, who said (before the bloods were taken, based on test results 3 months ago) that I am anaemic, although I don't...

Hi, I have obtained my bloods from my doctor, who said (before the bloods were...

Rocketman69

•7 years ago

11 Replies

Dr's visit was nerve racking but he started listening...

So had my dr's appointment last night, i went in feeling very unwell my legs had gone hands & feet were burning with pins & needles feeling confused so glad i...

So had my dr's appointment last night, i went in feeling very unwell my legs had...

MissD1503

•7 years ago

21 Replies

Return of migraine headaches

Hi everyone, I was started on hydrocobalamin in May after. B12 167, Folate 17. I also have taken thyroxine for 15 years and my T4 is 11 TSH 3.6 All other...

Hi everyone, I was started on hydrocobalamin in May after. B12 167, Folate 17. I...

Countrylou

•7 years ago

2 Replies

Fed up with doctors

I was wondering if people would help me understand my levels my b12 is 134 my d is 46 I have a folic at 1.7 and my iron is 56 . My doctor gave me the six b12...

I was wondering if people would help me understand my levels my b12 is 134 my d ...

Parkes

•7 years ago

6 Replies

5th shot today

My legs and arms feel like I been weight lifting all week! Hopefully this is a sign something is working!? I have my 5th shot today, already feeling anxious...

My legs and arms feel like I been weight lifting all week! Hopefully this is a ...

Glitterbug83

•7 years ago

3 Replies

Advice please

My GP is only willing to give me 1 shot per week for a month and then test blood again. I'm hoping I can persuade him to continue at once a week until I have...

My GP is only willing to give me 1 shot per week for a month and then test blood...

Cali25

•7 years ago

3 Replies

B12. Numbness

I have taken 1b12 1ml ampuole per day for 30days and have become numb from the waist down. I have since stopped injections 4 days but the numbness persists....

I have taken 1b12 1ml ampuole per day for 30days and have become numb from the w...

toph

•7 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2017

Preparing for a Neurology Appointment

B12 deficiency

Feet

First time triumphant injector. Now I wait.....

Synthetic vs. natural B 12

Advice sought for a 12 year old with underactive thyroid

Hello all :)

Do you need B12 and Folic Acid together

Thank you

living with b12

Spots

Folate deficiency + help understanding blood results

Losing my Internist!! Self injected first time today!

Copy of bloods

What are normal B12 levels

Help with test results please.

Last loading dose today and I feel my body is giving up

Anyone test positive for IF antibodies and still have GP who is reluctant on treatment?

Request for advice re B12 levels after receiving injections

Setting surgery precedents for treatment: should you tell your GP if you are self-injecting ?

Haematologist

Pregabalin (Lyrica)

long term side effects of b12?

Blood Test Results - Help please!

Dr's visit was nerve racking but he started listening...

Return of migraine headaches

Fed up with doctors

5th shot today

Advice please

B12. Numbness

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