Beginning of July I got a positive test. My Dr. started loading doses before the results came back and now my husband is giving me weekly injections. During my last appointment, Dr. wanted to check my levels. I have researched this enough to know that it was going to be meaningless. I requested that I stay on weekly injections, at least until my blood has a chance to FULLY cycle and regenerate new RBC (I said 120-180 days). I am also keeping a symptom log and see returning symptoms after 5 days, if not sooner. First sign is usually numb toes.
I wanted to see how many of you who have a positive result have problems getting enough B12 to treat your symptoms? Have most of you who have doctors who are not giving frequent doses gotten a (probably inaccurate) negative IF antibody result?
Just curious if I need to prepare a bit more in regards to getting what I need.
Thank you in advance,
Jen- I am in the US
Written by
jstarkey
To view profiles and participate in discussions please or .
Thank you, I have read Martyn's book and most of what you listed is what I have used to research. I really wanted to know if people who are positive for IF antibodies are still dealing with doctors providing inadequate treatment....
injectable hydroxocobalamin (B12) is only licenced in the UK for use at intervals of 8 weeks (one of the vagaries of the licensing process is that it is reliant upon manufacturers to apply for licensing rather than a general review of safety etc.
Although GPs should be using professional judgement many do interpret the licensing rules as indicating that the product probably isn't safe for use more frequently which means that trying to get a GP to treat you more frequently is generally an uphill battle and there are many many people out there who end up taking treatment into their own hands as a result.
Thank you, Gambit62. I have just been in awe of how difficult this is for people, it is extremely maddening that it all boils down to the fact that there is no money to be made on B12. Knowing this, I can see how no one is hyperactive on things like licensing, etc.
Yep, I had problems. Positive I.F but 'normal' serum B12 (250). One Doc literally laughed at me and said that I didn't need ANY treatment. Another begrudgingly gave me one injection only, a third said that I could have one every three months, (still said no to loading doses) despite obvious and debilitating neuro symptoms.
This is unbelievable. I will do the same if I encounter issues with the amount prescribed. I am convinced that this is the root of a bulk of issues I have suffered from for over 25 years...
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
B12 in Multivitamin
GP stopped my injections and referred me to the neurologist. How long before I can have another B12 test?
My doctor says too much B12 is Dangerous and Toxic ! (Tell me “A doctor” who says it’s safe and I’ll give you B12)
Could i have pa and mfthr? Will injections help mfthr and why havent i had them if i have positive mfthr... confused x 
