Even my nurse said I should of felt some difference but I dnt! Will this ever end..... I have no fight left π’π’π’
Last loading dose today and I feel my... - Pernicious Anaemi...
Last loading dose today and I feel my body is giving up
Hi,
Sorry to hear that things are difficult for you,
Some people with b12 deficiency can take a long time to show improvements when they get treatment especially if they've been ill for a long time.
Response from Hidden
Many people have posted that they feel no improvement during their loading injections. I did not feel any improvement until much later.
Nurses don't know everything - mine told me "If 5 loading inj. don't show improvement 6 won't."
Reply
Dani82 I'm going to delete duplicated post - happens sometimes if the site is running slow.
thanks beginner1 - have now deleted the duplicate post
I found my symptoms got worse initially, but this is a good sign, it means the nerve endings are beginning to come alive again and healing. Give it time. It will improve.
I feel emotionally broken! Like Iv been through enough and now this! Will I ever be a normal person eh can have a life and work etc... struggling to see the point right now!
I would also say hang in there. I got my loading doses 2 weeks ago, and still have had a few rough days since then, and really improvement is VERY slow. But I have to tell myself when I started noticing physical symptoms (tingling toe, numbish foot) it was over 8 months ago, and then it took me 6 months after that to be aggressive about getting someone to take me seriously when symptoms had gotten more severe. So I imagine I really can't expect anything less than 5 months waiting time to see significant improvement.
as others have said record your symptoms, focus on the positive little changes, I would add keep moving your body if you can. I dont like walking with my symptoms so I bike, and do pilates on the floor, and yoga. it defintely helps with with the mind
Im sorry you feel so unwell.
I just want you to know that i feel so tired after a b12 injection that i still nap for 2-3 hours afterwards. And i have had 12 so far, over appox 3 months. I think it is my body processing all that fabulous b12. Additionally i would feel very warm for next couole of days. I think this is my thyroid starting to work properly and up regulating my body temperature. My temperature used to be 97.8 for at least the last 5 years, possibly longer. The doctors always said this was normal but my hands feet and nose were cold regularly. Now my temperature is 98.6. Hmmm. I dont think doctors know half of what b12 effects. I am interested to see what my t3 comes back at when my next bloods are done, even without taking any thyroid meds, which they wanted to start me on.
Since you are getting injects more frequently than i did, i cant begin to imagine all the processes your body is going through so rapidly.
Hang in there! This too shall pass. Please Make sure you are taking a multivitamin to make sure your body has at least the daily nutrients it needs.
Hi Dani82.
My own experience is that, since being diagnosed as B12 deficient in March, I am only just beginning to notice any improvement. I have been referred to a neurologist & have had a total of 22 injections since then & have had to fight for that many! I suspect my deficiency began many years ago after major surgery & also think that the longer you have had the deficiency, the longer it can take for your body to respond.
I too, despaired of ever living a normal life again, but was reassured by one of the more experienced nurses at the surgery, that you often don't feel the effects of the injections for several months & that has been the case.
Hang in there. It seems that it is sometimes a long process, but this week, while on holiday (& under the influence of 5000mcg patches worn continually!!) I danced with my husband for the first time in eight months π.
Wishing you all the very best.
Are you sure you are taking the right dose. I went for 6 weeks taking 1/10 of what I should have been. My prescription said 1ml each shot. The needles I got said 1CC when full so I figured a mil was one of those little tiny lines. So if you are self injecting, ( 1CC and 1mil are the same) You should be seeing improvement by now. No where near totally, nerve damage takes a long time to heal.
I am not self injecting. I dnt know where I can but it? I am only having the gps guidelines. My brain feel so strange and my body on the left side doesn't correspond with my brain to well at the moment. I just feel odd!
it is my understanding and also experience that PA mostly doesn't affect one side. What ever is happening on one side is usually the same on the other side, but I'm not a Dr. You should at least be feeling that the progression has stopped. If you were bad like me, it took a few months before I felt pretty good but the nerve damage took about a year and a half. Your doctors need to make sure there isn't something else going on, but it your B12 was very low it's unlikely it is something else. But don't forget, your blood has not been right, short of breath and energy, and your nervous system is probably shot. Not just tingling and numbness, even your brain has nerve damage. It cannot fire properly to your muscles, your heart and your memory is probably failing. I had speech problems and tics and twitching. Anxiety and the list goes on. That is if you have it pretty bad. My B12 was undetectable.
If you have been medicating with B12 for 6 weeks or more, you should be seeing improvement somewhere, even if that means totally numb areas are getting tingling again. Your heart beats may take a long long time. Mine never did totally go back to normal. I take a betablocker that has calmed it down. Make sure your Dr knows. I wish I could help.