swelling mouth and lips

[Robson957]

hi

did anyone experience swollen lips and mouth with sore tongue and mouth ulcers? i have had it for about 9  weeks now and although the doctor gave me some steroid mouth wash which helps. if i stop using it i get the symptoms again. very sensitive tongue and mouth to hot food and drink and spicy food, rough textures etc etc.

[clivealive Forum Support]

Hi Robson957  

Are you b12 deficient or P.A. and are you receiving b12 injections or taking supplements?

Sore, inflamed, beefy red tongue is a sign of b12d.

[Lifetimer in reply to clivealive]

Hi.  I have been diagnosed as B12 deficient and due to family history, PA.  My main symptom was mouth ulcers, a dry mouth and stingy lips.  I have had the mouth ulcers since before xmas without much reprieve, except for the last week or so, after I started taking a multi B vitamin - in addition to 3 x monthly B12 shots.

[Robson957 in reply to clivealive]

i have been diagnosed with P.A. B12 of 70, homocysteine 31.7, if 640 etc

have had 5 b12 injections over last week or so.

i wonder whether the swelling could be due to an allergy and the other mouth problems the P.A.  i was put on some pantoprazol tablets for stomach lining but only took 5 days because of the swelling. 

maybe its a combination of both things. i thought the allergy if it is one would have gone by now though!

all the doctors just keep telling me its nothing to do with b12.

thanks

[Robson957 in reply to clivealive]

 have been diagnosed with P.A. B12 of 70, homocysteine 31.7, if 640 etc

have had 5 b12 injections over last week or so.

i wonder whether the swelling could be due to an allergy and the other mouth problems the P.A. i was put on some pantoprazol tablets for stomach lining but only took 5 days because of the swelling. 

maybe its a combination of both things. i thought the allergy if it is one would have gone by now though!

all the doctors just keep telling me its nothing to do with b12.

thanks

[Robson957 in reply to clivealive]

Am PA and had 6 loading doses and 4 weekly doses. Now taking vit d weekly and having iron transfusion next week!

[sweetnessandlight]

Make sure your folate levels are high if you are taking b12. The ulcers are definitely a symptom of low folate and you need it to be high to make the best use of b12. 

[Robson957]

my folate level is 37.3   range 7-39.7 mol/l    so i presume thats ok. 

thanks

[julie1959]

I had the same. Suggest u get checked for b12 levels and type 2 diabetes. High blood sugars reduce absorption of B12 which cause sore mouths.

[Robson957 in reply to julie1959]

hi julie,

did you have mouth swelling too? i have been diagnosed with pernicious anaemia but don't have diabetes.

[Allyson1 in reply to julie1959]

Julie, so you have more info on this? I'm curious. I had a terrible introduction to b12 and they didn't know my blood sugar was high at the time, despite symptoms.

[Allyson1]

Yes, and I had trouble talking from my sore swollen tongue and the skin around my mouth turned white and cracked. I also noticed changes in my nailbeds and cuticles. My lips have been buzzing a lot.

[Robson957 in reply to Allyson1]

Yes my lips cracked and corners of mouth bleed and lots of white crusty skin!! Mouth inside still sore and affected by rough food- crisps bread crusts etc- spicy foods- vinegar etc

[Allyson1 in reply to Robson957]

I would think low iron might be an issue too.

[julie1959]

I was not given b12 at the time of the swelling and soreness but given Nicatin for my mouth. Symptoms returned after