My mum died when she was 61, she'd had a hysterectomy in her 30s then in her 40s she developed intracranial hypertension and had to have a shunt put in to drain fluid from her head, she developed diabetes and ended up injecting insulin, had problems with her thyroid and pituitary gland, her bones in her wrists, hips and hands started to crumble so had to use a wheelchair and she had these soft spots/depressions in her skull which baffled many consultants. Her body basically failed over time and gave up 5 years ago. She struggled with her weight all her life and was told that it was likely she had had PCOS when she was younger.
I have PCOS with the extra weight and hair although my hormones were normal when they diagnosed me about 16 years ago, and recently been told I'm b12 deficient. The doctor tried to put me on Metformin again as she'd been told it was being trialled as potentially preventing T2diabetes (amazing!) but didn't think about the side effect of depleting b12. I stopped taking it when I found out. I told her my concerns about ending up like my mum and she just said as long as I don't get to a size 16 I'll be OK!!! I'm now starting to wonder whether my mum had PA and is what caused her problems - and of course I'm very scared too. I'd love to hear from anyone who has a similar experience/difficulties. Are there any PA groups in the West Midlands?
Thanks so much. Andanj