Hi, I was diagnosed four years ago with PA but my ferritin and folate were only tested last summer for the first time, as I began to feel extremely tearful, the pins and needles in my hands, arms and feet returned, I continually felt as though I was going to black out, I was craving ice lollies all day long, I was very out of breath even when sitting down, and generally felt like poo!
The doctors then called me to say I was folate deficient, and was given a prescription of 5mg folic acid per day for one month. I had also become extremely deficient in vit D but was told my ferritin was normal at 33.
I had to fight for a repeat prescription of folate, after which the doctor agreed to give me another three months worth, but only when I was asked if I paid for my prescriptions, to which I answered yes, even when I have been out of work.
I was told to purchase vit D outside as it was cheaper than on prescription, however nothing was advised for ferritin as my level was apparently "normal".
My TSH has risen from 1.37 to 1.95mIU/L but is still within range (0.35 - 4.94), and doctor won't look into even though I have put on approx six stones in three years!
I now take vit D3 with K2, one sachet of spartone, vit E, folic acid and omega 3 on a daily basis. I also purchased and began to self inject B12 every other day, as the 10 week intervals from the GP aren't enough.
However, recently I began to slowly cut back on self injecting to every three or four days, but since just before Christmas (and before cutting back on the B12), I have developed very bad pains on the outside of my right foot, which has also just started on the left foot too, that radiates to just under the side arch and sometimes along to the ankle, along with pain in my upper arms and left shoulder. The underside of my toes also hurt and if I press lightly on my toenails they are painful too.
I also suffer with very, very bad bouts of diarrhoea, anything from as little as 10 minutes after eating, and it's just like a force when exiting my body! My doctor isn't concerned by this, says it's not related and that I just have IBS, even though my Aunty has Chrones and can also be another auto immune disease PA sufferers can develop.
My question is; does anyone else suffer with bodily pains similar to me, and if so what did you do to help it?
I am fed up taking painkillers on a daily basis, and paracetamol doesn't even touch it.
Sorry for the rant and theong post.
Look forward to any replies, questions or comments.