Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for June 2015

Would You Say Churg Strauss a Syndrome with Cardiomyopathy is Classed as a Severe illness?

I am in the process of completing my medical retirement application and would like to gauge the opinion of whether CSS with cardiomyopathy is classed as a...

I am in the process of completing my medical retirement application and would li...

•9 years ago

Adelaide South Australia information please

I wanting to see a specialist in Adelaide SA for vasculitis. Can anyone help? God Bless Nick

I wanting to see a specialist in Adelaide SA for vasculitis. Can anyone help? G...

•9 years ago

Breast cancer

I have been diagnosed with breast cancer. The options have been discussed with me and my husband also my consultant Rheumatologist The first option was a...

I have been diagnosed with breast cancer. The options have been discussed with m...

•9 years ago

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Hi I'm a carer for my wife who has recently been diagnosed with c-ANCA positive vasculitis.

Are there any other carers out there who can give me any tips. Thanks.

Are there any other carers out there who can give me any tips. Thanks.

•9 years ago

Renewing Blue Badge

Dear all, I have just been approved for a new Blue Badge, which should arrive within the nest two weeks-I'll keep you all 'posted'. The process was 'fairly'...

Dear all, I have just been approved for a new Blue Badge, which should arrive w...

•9 years ago

Autoimmune Disease Website

Just found this website about Graves' and other autoimmune diseases (including vasculitis). Includes an interesting article describing Undifferentiated...

Just found this website about Graves' and other autoimmune diseases (including v...

Volunteer•9 years ago

Access to drugs for Ultra-Rare Diseases Debate

Message from Genetic Alliance UK On Tuesday 16 June 2.30pm – 4pm there will be a debate taking place in Westminster Hall on “Access to drugs for...

Message from Genetic Alliance UK On Tuesday 16 June 2.30pm – 4pm there wil...

Moderator•9 years ago

Just curious.........

My husband has GPA (Wegener's) and it's coming under control with Rituximab, but he's had to have loads of operations to deal with symptoms that have arrived....

My husband has GPA (Wegener's) and it's coming under control with Rituximab, but...

•9 years ago

wegerners rash

Hi i was diagnosed with wegerners xmas time and as i go on i experience different symptoms one of which the latest is a rash and spots all over my body and a...

Hi i was diagnosed with wegerners xmas time and as i go on i experience differen...

•9 years ago

Help please- anyone here from Australia.

I am trying to find a Rheumatologist who has an interest in/ specialises in Vasculitis. Have not had much success searching here in Melbourne. Thank you. Saties

I am trying to find a Rheumatologist who has an interest in/ specialises in Vasc...

•9 years ago

Eye test

I had an eye sight test as my sight in one eye went blur in about 6 months form having perfect vision so off I went to the local well know optician.I was told...

I had an eye sight test as my sight in one eye went blur in about 6 months form ...

•9 years ago

Auto Immune Diseases

I have a Scleroderma as my main AID. The symptoms are similar to Lupus & RA. Along with this I have secondary illnesses that go with it. All are connective...

I have a Scleroderma as my main AID. The symptoms are similar to Lupus & RA. Alo...

•9 years ago

Do you have Vasculitis or Lupus ( SLE ) ?

There is an education evening at the Royal Free London on Monday 6th July. Please check out the poster for more details Thank you Susan

There is an education evening at the Royal Free London on Monday 6th July. Pleas...

Moderator•9 years ago

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Why is this now happening?

Dear all, I have been a member, of this 'forum', as a lot of you know, for some years now. Recently however, when I get a post, I have been asked to enter my...

Dear all, I have been a member, of this 'forum', as a lot of you know, for some...

•9 years ago

CNSV and rash

I posted a week or so ago. I was diagnosed with PACNS in 2005 and was treated and have had no relapses until now. I have been having symptoms for ten weeks...

I posted a week or so ago. I was diagnosed with PACNS in 2005 and was treated an...

•9 years ago

New Blood Test to Identify Viruses

Just seen this article about identifying every virus that a person has had in their life. Seems to me that it would be useful information to have in...

Just seen this article about identifying every virus that a person has had in th...

Volunteer•9 years ago

Mycrophenate and hair loss

Is anyone on mycrophenate and suffering hair loss. Not so much hair thinning but bald patches. really getting me down.

Is anyone on mycrophenate and suffering hair loss. Not so much hair thinning but...

•9 years ago

Groby Street Fair - June 20th

If you live in Leicester are in Leicester on Saturday June 20th please pop in and say hello to Tricia and Susan who will be running a Vasculitis Awareness...

If you live in Leicester are in Leicester on Saturday June 20th please pop in an...

Moderator•9 years ago

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South Wales Vasculitis Support Group Summer Informal Meeting and Barbecue

The South Wales Vasculitis Support Group are holding an informal meeting and Barbi - July please follow this link for further details....

The South Wales Vasculitis Support Group are holding an informal meeting and Bar...

Moderator•9 years ago

New Vasculitis Support Group - Northumberland and Cumbria

Date for your diary - new vasculitis support group meeting September 12th 2015 Hexham please follow this link for further details.....

Date for your diary - new vasculitis support group meeting September 12th 2015 H...

Moderator•9 years ago

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