I posted a week or so ago. I was diagnosed with PACNS in 2005 and was treated and have had no relapses until now. I have been having symptoms for ten weeks (seizure , headaches, neck pain, nausea, vomiting, numbness on face and arms and legs and private parts). The vasculitis work up in hospital was looking negative. I had a really bad day yesterday starting with headache, nausea, extreme dizziness, full body sweats and It was very scary trying to walk to bathroom. It passed after 5 hours or so and then I developed suddenly two lines about 10 cm of red now purple (not raised) of broken blood vessels on right thigh and hives on both forearms. I had never had this nor some of the other symptoms this time (the numbness, nose bleeds, clogged tear duct). My appointment with new rheum is on Wednesday. Is it Ok to just wait for Wednesday or should I consider having it checked
Out sooner. My right eye feels weird. Have been to ER 4 times already and don t want to go unless I should . Does this rash mean systemic? Thank you all for you responses to my first post. I feel so grateful for the support, knowledge and experience of those on this site!!!