Mycrophenate and hair loss: Is anyone on... - Vasculitis UK

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Mycrophenate and hair loss

Burrows1 profile image
5 Replies

Is anyone on mycrophenate and suffering hair loss. Not so much hair thinning but bald patches. really getting me down.

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Burrows1 profile image
Burrows1
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orsen-trapp profile image
orsen-trapp

I had my hair cut short in case MTX did that to me (so it would be less of a shock to friends) but so far, six weeks on, my hair has grown normally but even more curly than usual - looks like I've had a perm!

orsen-trapp profile image
orsen-trapp in reply to orsen-trapp

I meant to add (brain fog - another side effect!) that I lost a lot of hair a few years ago when a weird reaction to a bee sting gave me an all-over sunburn-like rash ... was it that that tipped my immune system, I wonder? ... but it grew back eventually and I was the only one who noticed, apart from my hairdresser.

GT_321 profile image
GT_321

Lost all my body hair and thinning head hair. After couple of months all started to grow again and now back to normal.

AndrewT profile image
AndrewT

Dear Burrows1,

I have lost some hair-I am on a whole load of drugs-as well as skin growths (tags), warts, bruises (from minor knocks) however my hair looks good currently! I have always had a natural wave which, since I let it grow somewhat, now looks curly and 'cool' (like hey man!). If it, at any stage, starts to look a mess/state then I will get it cut...In the mean time-best left well alone, I think.

Sorry that your that loss is troubling you-I always feel that, despite all the problems/symptoms at least we are alive to experience them! One girl recently had awful 'tummy troubles' however, as I pointed out, she had to be alive to feel the 'tummy ache/constipation'. She replied thanking me, for my concern, and indicating that she did understand where I was coming from.

Finally I'll (hopefully) make you smile-did you hear about the constipated mathematician? He sat and 'worked it out', with a pencil!

Best wishes to you Burrows,

AndrewT

MTX is known for hair loss, not sure if it's both injections and oral tablets. I'm prone to shed hair when flaring. Myco, I hadn't noticed. How much are you taking and for how long,barrows?

Having said that I noticed my hair does not grow so fast lately.

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