Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,815 members • 6,819 posts

All posts for December 2013

Rare Disease Day 28th February 2014

Rare Disease Day 28th February 2014: Join Together for Better Care Rare Disease Day provides the rare disease community across the world with the opportunity...

Rare Disease Day 28th February 2014: Join Together for Better Care Rare Disease...

Suzym2u

Moderator•11 years ago

2 Replies

I've had many symptoms over the years to put up with but just recently I've had a very sore tongue - it's red raw and painful

When I eat and drink my tongue burns. Has anyone else suffered with this along with the it vasculitis ?

When I eat and drink my tongue burns. Has anyone else suffered with this along ...

Starburst

•11 years ago

6 Replies

Anyone with MPA or Wegener and without any imumosupeesant like celcept imuran

My doughter have MPA.She is on cellcept for 18 months with pron.She is in remmision.Yesterday dr.told me that he would take she off cellcept in another 2...

My doughter have MPA.She is on cellcept for 18 months with pron.She is in remmis...

tamidi

•11 years ago

6 Replies

Want to take advantage of all our features? Just log in!

new category "creative corner" please join in

Are you a budding artist, poet, photographer,author or knitter? Susan has added a creative category. please feel free to add samples to our creative corner, or...

Are you a budding artist, poet, photographer,author or knitter? Susan has added ...

hamble99b

Volunteer•11 years ago

4 Replies

Should I worry, because I am!!! Nerve pain!

Hi everyone. I have vascular peripheral neuropathy. I lost the feeling in my left hand and leg last year. It started with carpal tunnel like symptoms and then...

Hi everyone. I have vascular peripheral neuropathy. I lost the feeling in my lef...

Mags88

•11 years ago

12 Replies

trouble focussing eyes?

My eyes feel like they lose focus and sometimes feel as if they cross. dos anyone else experience this? or it might be a new symptom of my fibromyalgia.

My eyes feel like they lose focus and sometimes feel as if they cross. dos anyon...

hamble99b

Volunteer•11 years ago

8 Replies

Pain

My daughter has so much pain....... is this normal???

dee10

•11 years ago

1 Reply

Rash on right arm.....it's shingles. Any advice welcome.

Went down to the vasculitis clinic this morning, a regular visit though I had rung ahead to ask if I needed to see a dermatologist. The rash on my arm had...

Went down to the vasculitis clinic this morning, a regular visit though I had ru...

BronteM

•11 years ago

6 Replies

Says it all

So there's this guy walking down the street and he falls into a great big hole. A doctor walks by and the guy yells up to the doctor 'hey, I fell in this hole,...

So there's this guy walking down the street and he falls into a great big hole. ...

LynneJ

Vasculitis UK•11 years ago

5 Replies

I have been asked to share my story. Make yourself comfy and I will begin .......

In 1988 I went to my G.P. with joint pains which fluctuated around my body. When I booked the appointment I had pain in my neck and shoulders, by the time I...

In 1988 I went to my G.P. with joint pains which fluctuated around my body. Whe...

Moley1

•11 years ago

24 Replies

Am on methotrexate and 10mg pred, I don't have a definitive dagnosis but a large vessel vasculitis hasn't been totally ruled out.

I usually take my MTX on a Monday and upped my dose to 20 mg 2 weeks ago. Today I have a severe headache, jaw and facial pain, joint and muscle pain and am...

I usually take my MTX on a Monday and upped my dose to 20 mg 2 weeks ago. Today ...

Hidden

•11 years ago

7 Replies

Blue legs why???

buffy12

•11 years ago

2 Replies

Rash on right arm

In the last few days I've acquired a rash on my right arm....this is normally my 'better' arm! I've also got pain in my arm and elbow that is quite different...

In the last few days I've acquired a rash on my right arm....this is normally my...

BronteM

•11 years ago

4 Replies

Hi everyone thank you all for your experience of vasculitis i wish you all the luck in the world to beat this cruel disease and just to let

You know steve is still in the hallamshire hospital and he's been on 3 antibiotic drips and insulin but now they are certain that it's the vasculitis that's...

You know steve is still in the hallamshire hospital and he's been on 3 antibioti...

Chelsea22

•11 years ago

2 Replies

What next - Cerebral Vasculitis

Hi everyone.. Just an update on my dad (previous post of 71 and just diagnosed with possible cerebral vasculitis) finally, after 6 weeks in Pembury, who were...

Hi everyone.. Just an update on my dad (previous post of 71 and just diagnosed w...

SteveJarvis

•11 years ago

15 Replies

Why is my lip twisting :/

Today I went to the dentist and they have me a choice to either take my teeth out give me a filling. I told them to give me a filling and after a half an hour...

Today I went to the dentist and they have me a choice to either take my teeth ou...

Fvck_Dvt

•11 years ago

3 Replies

Benefits and Work December 2013 Newsletter

Anyone hoping to find out more about what’s happening with PIP may want to tune into Parliament TV at 9.30am on Wednesday, 11th December....

Anyone hoping to find out more about what’s happening with PIP may want to tune ...

Suzym2u

Moderator•11 years ago

Be the first to reply

Duloxetine for neuropathic pain. Any experiences?

Has anyone here been prescribed Duloxetine for neuropathic pain please? I've been suffering with chronic, debilitating headache since April and no meds to date...

Has anyone here been prescribed Duloxetine for neuropathic pain please? I've bee...

Hidden

•11 years ago

17 Replies

negative results for inflammation on blood tests

I have been trying to get a diagnosis for unexplained pain for many years. Have seen a rheumatologist and am awaiting follow up. My blood tests results were...

I have been trying to get a diagnosis for unexplained pain for many years. Have...

braincurdle

•11 years ago

21 Replies

Feeling grotty

For the last ten years, since I was diagnosed with CSS, I have coped pretty well with a combination of pred and azathioprine. In that time I've had a few...

For the last ten years, since I was diagnosed with CSS, I have coped pretty well...

laidbackreader

•11 years ago

2 Replies

100,000 sign War On Welfare petition asking for assessment of cuts to the sick and disabled

http://benefitsandwork.co.uk/news/2497-100-000-sign-war-on-welfare-petition-asking-for-assessment-of-cuts-to-the-sick-and-disabled Congratulations to The WOW...

http://benefitsandwork.co.uk/news/2497-100-000-sign-war-on-welfare-petition-aski...

Suzym2u

Moderator•11 years ago

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Renal Patient View

If you access your information on-line at Renal Patient View you may like to know that the web link has been changed - they have dropped the "renal" and it...

If you access your information on-line at Renal Patient View you may like to kn...

PatriciaAnn

•11 years ago

3 Replies

Santa fundraising for Vasculitis UK

As it is December 1st today thought I would share a photo to give you a smile. Two weeks ago today Santa AKA John Mills was fundraising for VUK. 50 children...

As it is December 1st today thought I would share a photo to give you a smile. T...

Suzym2u

Moderator•11 years ago

Be the first to reply

SOUTH WALES VASCULITIS Get Together for Patients, Carers and Friends January 4th 2014

SOUTH WALES VASCULITIS Get Together for Patients, Carers and Friends Saturday 4th January 2014, 2.00PM Llantrisant Leisure Centre South Gate Park Llantrisant...

SOUTH WALES VASCULITIS Get Together for Patients, Carers and Friends Saturday 4t...

Suzym2u

Moderator•11 years ago

Be the first to reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for December 2013

Rare Disease Day 28th February 2014

I've had many symptoms over the years to put up with but just recently I've had a very sore tongue - it's red raw and painful

Anyone with MPA or Wegener and without any imumosupeesant like celcept imuran

new category "creative corner" please join in

Should I worry, because I am!!! Nerve pain!

trouble focussing eyes?

Pain

Rash on right arm.....it's shingles. Any advice welcome.

Says it all

I have been asked to share my story. Make yourself comfy and I will begin .......

Am on methotrexate and 10mg pred, I don't have a definitive dagnosis but a large vessel vasculitis hasn't been totally ruled out.

Blue legs why???

Rash on right arm

Hi everyone thank you all for your experience of vasculitis i wish you all the luck in the world to beat this cruel disease and just to let

What next - Cerebral Vasculitis

Why is my lip twisting :/

Benefits and Work December 2013 Newsletter

Duloxetine for neuropathic pain. Any experiences?

categories

negative results for inflammation on blood tests

Feeling grotty

100,000 sign War On Welfare petition asking for assessment of cuts to the sick and disabled

Renal Patient View

Santa fundraising for Vasculitis UK

SOUTH WALES VASCULITIS Get Together for Patients, Carers and Friends January 4th 2014

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