Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for October 2013

My husband has small round white patches on his hands and also some pink patches - is this anything to do with his WG?

I have looked at images of vasculitis on the internet and it doesnt really resemble his hands. They are definitely white and round. Not blistered. Have never...

I have looked at images of vasculitis on the internet and it doesnt really resem...

maira

•11 years ago

9 Replies

Please can anyone tell me whether they have had Fibromyalgia diagnosed as well as GPA, Have had GPA for 6 years.

Theresak

•11 years ago

3 Replies

Similar to vasculitus?

http://www.dailymail.co.uk/health/article-2451695/Student-20-makes-amazing-recovery-body--including-EYELIDS--paralysed.html

http://www.dailymail.co.uk/health/article-2451695/Student-20-makes-amazing-recov...

luggsey

•11 years ago

3 Replies

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brilliant blue badge idea

on pain concern one lady commented on a post about pain being invisible, leaving us standing in pain in queues or being in need of help but ignored, or...

on pain concern one lady commented on a post about pain being invisible, leavin...

hamble99b

Volunteer•11 years ago

14 Replies

Is anyone else getting "loading this is taking a while"

annie330

•11 years ago

6 Replies

I find the site difficult now anyone else having same issues, if its not broken don't fix it! Sorry to those who disagree but I'm struggling

annie330

•11 years ago

2 Replies

During the last 6 months my fingernails have gone from being normal to full of vertical ridges. Some nails are worse than others has anyone

else experienced this or have any ideas on causes? Thank you

annie330

•11 years ago

5 Replies

Statins - is anyone taking these? And how are the side effects?

Hooray! At the clinic yesterday, and most things are improving, including a small dip in blood pressure. But my cholesterol is still too high, so went through...

Hooray! At the clinic yesterday, and most things are improving, including a smal...

BronteM

•11 years ago

3 Replies

Team Clare continues this weekend.

Clare Grossman was 38, when she was diagnosed with WG in July 2010. Sadly she passed away on New Year's Eve 2010 leaving her husband Richard and two children...

Clare Grossman was 38, when she was diagnosed with WG in July 2010. Sadly she pa...

Suzym2u

Moderator•11 years ago

Be the first to reply

I'm new on this site does anyone experience severe pains in the legs

Tinker24goodcat

•11 years ago

5 Replies

PCP Pneumonia prophylaxis choice.

After a terrible infection of pcp pneumonia Mums consultant has decided to take her off iv antibiotics, they have to remove her line and don't want to try...

After a terrible infection of pcp pneumonia Mums consultant has decided to take ...

luggsey

•11 years ago

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All Ireland Vasculitis Conference October 12th/13th

All Ireland Vasculitis Conference If you live in Ireland then there is no excuse, you have your own Vasculitis Support from Vasculitis Awareness Ireland....

All Ireland Vasculitis Conference If you live in Ireland then there is no excu...

Suzym2u

Moderator•11 years ago

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Anyone else suffer with night sweats?

shella

•11 years ago

19 Replies

West Midlands Vasculitis Support Group Meeting 13th October .

There will be two speakers at this meeting. Both speakers are experts in the vasculitis field so this promises to be an excellent afternoon: Dr David...

There will be two speakers at this meeting. Both speakers are experts in the vas...

Suzym2u

Moderator•11 years ago

Be the first to reply

latest update

Had my latest clinic visit on Friday. I asked about taking vitamin pills ( I seem to remember someone was asking about this a few weeks ago). I used to take a...

Had my latest clinic visit on Friday. I asked about taking vitamin pills ( I see...

suffolkgirl

•11 years ago

3 Replies

my rightside of my nostril still numb after dental work done 3weeks ago

Had crown work done and several injections.

Evalyn

•11 years ago

3 Replies

ESA renewal?

anyone in support group had to fill in the new 2013 re-assessment forms?

hamble99b

Volunteer•11 years ago

5 Replies

Can anyone explain to me about Vasculitis.

I have to go for a blood test this week for an Anca test. Legs have come up in big red splodges. My rheumy consultant took one look at my legs and said I had...

I have to go for a blood test this week for an Anca test. Legs have come up in b...

Poppymichael7

•11 years ago

6 Replies

Returning to school

My daughter is being treated for wegeners & has so far had 2 treatments of cyclophosphamide. Her rheumatology nurse is talking of returning to school before...

My daughter is being treated for wegeners & has so far had 2 treatments of cyclo...

Bailey24

•11 years ago

3 Replies

Do I have it or not? This is the question.

Been searching this site and found tons of help. One on line person led me to john Hopkins site and this was interesting. I hope I am being proactive and not...

Been searching this site and found tons of help. One on line person led me to jo...

dskizs

•11 years ago

7 Replies

VASCULITIS UK WEBSITE - UPDATE

VASCULITIS UK WEBSITE - Just an update on some of the facilities available on our website to help you get around - in case you weren't aware of them. There...

VASCULITIS UK WEBSITE - Just an update on some of the facilities available on o...

PatriciaAnn

•11 years ago

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Tried to download an order form to buy some cards but with no luck, where am I going wrong?

valwood

•11 years ago

1 Reply

Christmas Cards

Winston is getting organised this year. He got a 12 mixed pack of Christmas Cards with a FREE VASCULITIS PEN from http://www.vasculitis.org.uk/shop They...

Winston is getting organised this year. He got a 12 mixed pack of Christmas Card...

LynneJ

Vasculitis UK•11 years ago

4 Replies

Takayasu arteritis Please help!!

I got diagnosed about 2 years ago, I was put on steroids and methotrexate, I took steroids for a matter of months and slowly came off these i was also having...

I got diagnosed about 2 years ago, I was put on steroids and methotrexate, I too...

jackson83

•11 years ago

12 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for October 2013

My husband has small round white patches on his hands and also some pink patches - is this anything to do with his WG?

Please can anyone tell me whether they have had Fibromyalgia diagnosed as well as GPA, Have had GPA for 6 years.

Similar to vasculitus?

brilliant blue badge idea

Is anyone else getting "loading this is taking a while"

I find the site difficult now anyone else having same issues, if its not broken don't fix it! Sorry to those who disagree but I'm struggling

During the last 6 months my fingernails have gone from being normal to full of vertical ridges. Some nails are worse than others has anyone

Statins - is anyone taking these? And how are the side effects?

Team Clare continues this weekend.

I'm new on this site does anyone experience severe pains in the legs

PCP Pneumonia prophylaxis choice.

All Ireland Vasculitis Conference October 12th/13th

Anyone else suffer with night sweats?

West Midlands Vasculitis Support Group Meeting 13th October .

latest update

my rightside of my nostril still numb after dental work done 3weeks ago

ESA renewal?

Can anyone explain to me about Vasculitis.

Returning to school

Do I have it or not? This is the question.

VASCULITIS UK WEBSITE - UPDATE

Tried to download an order form to buy some cards but with no luck, where am I going wrong?

Christmas Cards

Takayasu arteritis Please help!!

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