on pain concern one lady commented on a post about pain being invisible, leaving us standing in pain in queues or being in need of help but ignored, or hesitant to ask.
she wrote
"I have a blue badge for my car but would like one to put in my purse to show to people"
I think this is an excellent idea! what do others think?
I think it's a brilliant idea. I think shops especially supermarkets department stores and large shops should have a disabled counter where maybe we could get served a little quicker. The thoughts of standing in queues in the Xmas rush makes my stomach churn. Don't think I can do it this year. Anyway I think you have good idea there xx
What do you hope to Gain by this . I don't understand. Do you think for a moment as you have a Blue Badge it will enable you to jump in front of others ?
I see where you are coming from but I also see where your going . It's bad enough for people to understand why some people have Blue Badges . As I say to people that give me bad looks when parking the car . It's not what you see from the outside but what's happening inside your body that matters . What I mean is not all people have Disabilities that you can see. So if I show my Blue Badge in a Que. do you think for a minute they would let you jump sorry but good luck .
In an ideal world it would be a great idea, sadly those who think we are fake will still think we are fake regardless of how many badges we have, and jumping queues would only make us more open to verbal attack,
MARZIPANKNICKERS I AGREE WHAT U ARE SAYING BECAUSE PEOPLE DO THINK LIKE THAT I WOULD NOT WANT TO QUEWE JUMP EITHER JUST A BIT OF HELP WHEN NEEDED
On a practical level there are some good very lightweight small tripod stools. I have one for situations where I know I'm going to have to stand around a lot.
I think the 'ambulatory' blue badge is quite a good idea actually. At least it alerts people to our difficulties. May make them offer a seat if one's available, for instance. And they may let you go first in a queue. Or not! Depends on the individual.
Also am hoping someone will produce a car sticker with the text: 'Not every disabled person uses a wheelchair. Not every disability is visible'. Amen to that!!!
Coppernob there is one of those stickers, i had one, and i put it away safe to pop on my new mobility car, and it vanished, but if i find it i will tell you where you can get one,
Ooooh, thank you, please do. Good luck with the search!
I AGREE I HAVE STOOD IN QUEWS BUT AFTER A WHILE I HAVE TO SIT DOWN BECAUSE OF THE PAIN IT IS A BRILLENT IDEA LETS HOPE IT CATCHES ON
I'd love this to work but..... I have to agree with others comments that there will be many "issues" arising from this approach to our difficulties. Plus we're also highlighting the fact that we're physically vulnerable. Not something I am particularly keen on. In an "ideal" world this could work. However we live in the real world.
Berkshirebird , do you have any tips on pain treatment for this CSS , I have had heavy attacks in the face , going way back to behind teeth ,
Swelling of the sack under the heart , they are the worst 2 areas , so far main weapon is morphine , with panadein forte and ice , kidneys give me hell and bladder , but relief is hard to get and I hate that lyrica ,
Really good idea so difficult to find energy to stand in queues and I think most people would be sympathetic....
I think the lady who suggested it meant as an answer to those who question "but you don't look disabled", for asking for extra assistance from staff or other people, aid for getting a seat on transport. I often have to ask someone behind me in a queue to mind my place while I sit nearby, or lean on a wall.
Dear hamble,
First of all...I haven't heard, from you, in ages how lovely to do so.
At our Headway, Headway Essex, we have been given 'Pocket (credit card) sized' plastic cards, with our 'Disabilities' on. One might, just for example, read 'I am a survivor, of a Brain Trauma. My cognitive skills have been effected, please have patience.' These cards were supplied via Headway, I believe, through an On Line organisation. I will find out more details and 'Post' further.
Once again delightful to hear, from you, hamble.
Kindest Wishes
AndrewT
I bought this brilliant shopping trolley that has a chair you can fold down so you can sit if my legs hurt. Unfortunately lots of ppl use blue badges that are their parents or friends so they can park for free. I definitely think a credit card to show is a brill idea. I've thought the same. X
Eye Problems
Anyone suffer facial pain?
EGPA Diagnosis today
Feet swelling.. 
Possible vasculitis diagnosis looming...
