I was Diagnosed earlier this month with Systemic Vasculitis, ive been having problems since sept 2012, I suddenly got severe Raynauds, with 4 finger ulcers, freezing hands etc
Eventually i got to see a Rheumatologist in Dec who admitted me straight away, for 6 hours a day for 5 days an iloprost infusion, which opens up my veins arteries etc worked very well, my ulcers are nearly gone now.
Went to out patients, Dr told me id got systemic Vasculitis, and id need treatment straight away as an out patient, im on Cyclophosphamide IV every 2 weeks and steroids IV. ive
had one treatment so far
Ive had weak legs and my feet have a really funny sensation, i really cant explain
Dont know if its side effects or is it Vasculitis, I dont know which Systemic Vasulitis ive got