Posts - Vasculitis UK | HealthUnlocked

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STORY: Welfare Reform - Please help and thank you.

http://www.causes.com/causes/582492-keep-disability-living-allowance-say-no-to-r...

Volunteer•12 years ago

My husband has HUVS and has permanent thrush in his mouth and throat, and after going quite deaf he now has a fungal infection in his ears. Our GP has left a...

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Does anybody suffer with thrush, fungal infections etc?

My husband has HUVS and has permanent thrush in his mouth and throat, and after ...

barneyboy

•12 years ago

6 Replies

Takayasu and DLA

I don't know if anyone will know this info or not, but I'm looking for a few opinions etc. I already claim DLA for a pre-existing condition. I get lower and...

I don't know if anyone will know this info or not, but I'm looking for a few opi...

MsAscerbic

•12 years ago

my fried tells me that one clip for children in need shows a girl raising money in the name of her sister who had Wg. anyone know any more? regards, sandra.

children in need and WG

my fried tells me that one clip for children in need shows a girl raising money ...

hamble99b

Volunteer•12 years ago

On November 5th I had my last dose of Mehtotrexate, then had a rubbish start to the week, feeling really tired and dizzy etc. GP thought I had an infection and...

How do you tell the difference between the start of an infection, and the side effects of the drugs?

On November 5th I had my last dose of Mehtotrexate, then had a rubbish start to ...

BronteM

•12 years ago

5 Replies

Do employers have a right to cut pay and change conditions?

My husband was diagnosed with Wegeners in October, after 3 months of being very ill. He needed 6 weeks off work, for hospital investigations and to start his...

My husband was diagnosed with Wegeners in October, after 3 months of being very ...

andyclairegp

•12 years ago

6 Replies

Psychology Dissertation Project

Hi, I'm a third year Bsc Psychology student at York St John University and am investigating the psychological impact of Vasculitis as my dissertation...

Hi, I'm a third year Bsc Psychology student at York St John University and am...

HM266

•12 years ago

15 Replies

Advice on flare ups while on Methetrixate.

I need advice on what to expect while on med's. I am on Methetrixate 25mg and pred 5mg. Had a couple of weeks of feeling great. I am now back to having temple...

I need advice on what to expect while on med's. I am on Methetrixate 25mg and pr...

CathT

•12 years ago

4 Replies

Whooping Cough.

The question must have been asked before but I can't find it. Is the Whooping cough vacination adviseable for Vasculitis sufferers who are on a course of...

The question must have been asked before but I can't find it. Is the Whooping co...

limpingwulf

•12 years ago

they say "Sundog Pictures are looking to speak to young people aged 16-25 about how they cope with illness for a possible BBC Three documentary. So...

bbc 3 programme looking for 17-25yr oldsI saw this on another site.

they say "Sundog Pictures are looking to speak to young people aged 16-25 about...

hamble99b

Volunteer•12 years ago

Hi everyone, Was just wondering if anyone here is having DSG treatment? It's not been confirmed yet but this could be the next option for me and I wanted...

Anyone here on DSG?

Hi everyone, Was just wondering if anyone here is having DSG treatment? It's...

Lucylucciano

•12 years ago

i have been offered to have ritix im worried does any one have any feed back on this

tracey65

•12 years ago

7 Replies

Would you provide practical points to help the patients with vasculitides?

syedmonowar

•12 years ago

Just wanted to say that John and myself enjoyed a brilliant day, yesterday at the Liverpool Royal hospital attending the Vasculitis Support Group Meeting. We...

Merseyside, Cheshire and North Wales Vasculitis Support Group Meeting yesterday at The Royal Liverpool

Just wanted to say that John and myself enjoyed a brilliant day, yesterday at th...

Volunteer•12 years ago

I'm always on the lookout for inspirational stories for the Newsletter/Journals and for the new website. Take a look at those we have already showcased:...

Inspirational stories

I'm always on the lookout for inspirational stories for the Newsletter/Journals ...

PatriciaAnn

•12 years ago

please help GP has no clue , on illness ?

does all GP have no clue how to detail with this illness

buffy12

•12 years ago

18 Replies

Nausea?

Hi all, I have had some issues that I have made heard on other threads of this forum, and thank you for all your replies. But one problem that is starting to...

Hi all, I have had some issues that I have made heard on other threads of this ...

Regie79

•12 years ago

5 Replies

Fuming!

Went over to UHCW for updated NVC and EMG tests. As I have a complaint in with this hospital already (and have already received one inadequate reply full of...

Went over to UHCW for updated NVC and EMG tests. As I have a complaint in with t...

Wellsie

•12 years ago

4 Replies

I am seeking help from vasculitis patients

I am seeking help from vasculitis patients. I have one of the types vasculitis, Wegener’s Granulomatosis and I am working towards my PhD. As part of this I...

I am seeking help from vasculitis patients. I have one of the types vasculitis,...

Gma61

•12 years ago

40 Replies

Christmas Presents.

If you shop on line for your Christmas Presents why not use http://www.easyfundraising.org.uk/causes/vasculitisuk. Over 2000 retailers to choose from and...

If you shop on line for your Christmas Presents why not use http://www.easyfundr...

LynneJ

Vasculitis UK•12 years ago

Does everyone use http://vasculitisuk.easysearch.org.uk/ this as their search engine? I have put on my favourites bar and everytime I need a site I go through...

Easyseach

Does everyone use http://vasculitisuk.easysearch.org.uk/ this as their search en...

LynneJ

Vasculitis UK•12 years ago

We just wanted to say thank you to Tracy for organising the "Little T Nautical Ball" in memory of her Partner Gordon Mott who had WG for 10 years,.. John and I...

A big thank you to Tracy :-)

We just wanted to say thank you to Tracy for organising the "Little T Nautical B...

Volunteer•12 years ago

Thought I would share this newspaper article before anyone else did. Also to say that John and I knew about Sam. But every phone call or email we receive is...

Parents pay tribute to their son who died after developing a rash on holiday

Thought I would share this newspaper article before anyone else did. Also to say...

Volunteer•12 years ago

I have stuck to my guns and pushed ahead for an appeal, which I have got next Wednesday. I have got a lady to accompany me from my local council welfare...

DLA Appeal almost here

I have stuck to my guns and pushed ahead for an appeal, which I have got next We...

longbank123

•12 years ago

16 Replies

Benefits and Work 29th October 2012 newsletter

http://www.benefitsandwork.co.uk/news/latest-news/1644-29-october-newsletter

Volunteer•12 years ago

http://dmtrk.com/QLW-10V82-803MZBJ67A/cr.aspx

Vasculitis UK- enewsletter Nov 1st 2012 BSR Guidlines - Rituximab and NICE - Support Group meetings - Fundraising...

Volunteer•12 years ago

Vasculitis UK were invited to the NIHR Imperial BRC Showcase Event 2012. John, Richard and myself took a trip to Imperial College in London today to the...

National Institute for Health Research Imperial Biomedical Research Centre Showcase Event 2012

Vasculitis UK were invited to the NIHR Imperial BRC Showcase Event 2012. John,...

Volunteer•12 years ago