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Scleroderma & Raynaud's UK (SRUK)

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Raynaud's posts

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Raynaud’s?

Hello, a few years ago, my GP diagnosed me with Raynaud's. However, my symptoms have recently worsened to the point where I experience pain, daily...

Hello, a few years ago, my GP diagnosed me with Raynaud's. However, my symptoms ...

Amber1102

•1 month ago

15 Replies

Gloves recommendation for Raynauds

hi all, any recommendations please for Raynauds hands with painful tissue scarring? I’ve had it quite badly this year and have succumbed to being medicated...

hi all, any recommendations please for Raynauds hands with painful tissue scarri...

Nw6London

•5 months ago

7 Replies

USB Heated gloves for outdoors - home made

Fairly inexpensive too: - Two pairs of gloves, outer one with fingertip for touch-sensitive screens. - Wires from two "reptile heating pads" for $10USD on...

Fairly inexpensive too: - Two pairs of gloves, outer one with fingertip for touc...

RayStarAl

•6 months ago

4 Replies

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really itchy legs

Hey 👋 so I have Raynauds and Inflammatory Arthritis and I’m the last 18 months I’ve been loosing hair on my calves badly. Now on one of the calves I have an...

Hey 👋 so I have Raynauds and Inflammatory Arthritis and I’m the last 18 months ...

james87

•1 year ago

3 Replies

blue fingers when in hot bath??

Has anyone else had this? It happen to my toes when I was in the shower the other day too. I don’t know if it’s Raynauds or my low ferritin/anemia or what....

Has anyone else had this? It happen to my toes when I was in the shower the othe...

Newfylady

•1 year ago

14 Replies

Sildenafil

I'm about to start talking sildenafil for my Raynaud's,having tried Nifedipine and losartan with no noticeable effect.Any advice?? Interestingly the leaflet...

I'm about to start talking sildenafil for my Raynaud's,having tried Nifedipine a...

KathleenMary

•2 years ago

22 Replies

Diagnosed by anecdote

My doctor has diagnosed me with Raynauld's not by a blood test but by my description of my (admittedly fairly obvious) symptoms. He also seems to have nothing...

My doctor has diagnosed me with Raynauld's not by a blood test but by my descrip...

back_ache

•2 years ago

12 Replies

Hypnotherapy for Primary Raynaud's

Hello, there are some websites that state that Hypnotherapy can help Raynaud's. There are some Hypnotherapists that offer treatments for Raynaud's which are...

Hello, there are some websites that state that Hypnotherapy can help Raynaud's. ...

mike444

•2 years ago

3 Replies

❄️Raynaud's in Children Article❄️

Parents! You know how hard it can be to watch your child be in pain. Our article with Twinkl sheds light on some common symptoms of Raynaud's to look out...

Parents! You know how hard it can be to watch your child be in pain. Our artic...

SRUKadmin

Partner•2 years ago

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Raynauds suggested by Pharmacist

Recently a pharmacist suggested that I could have raynauds. As they saw a couple of my fingers were white, as I was making a purchase. I was wondering, if I...

Recently a pharmacist suggested that I could have raynauds. As they saw a couple...

CelticSeahorse

•2 years ago

2 Replies

Reynauds & Achenbach

Are Reynauds & Achenbach connected ?

The1OGrady

•2 years ago

3 Replies

Channel 5 TV programme

Has anyone managed to find the TV programme on Raynaud's , mentioned in the latest issue of SRUK news?It's part of a series entitled Women's Health; Breaking...

Has anyone managed to find the TV programme on Raynaud's , mentioned in the late...

KathleenMary

•2 years ago

6 Replies

How Many Of You Developed HAVS Raynaud's or Vibration Finger at Work?

My GP believes I have HAVS, my OH doesn't, but my OH is basing it on more advanced symptoms for a stereotypical person in the construction business as in big...

My GP believes I have HAVS, my OH doesn't, but my OH is basing it on more advanc...

5ftFemInConstruction

•3 years ago

2 Replies

Gloves for Raynaud's

Hello, I have Raynaud's can anyone recommend gloves which work in cold weather, thank you, sasky

Hello, I have Raynaud's can anyone recommend gloves which work in cold weather, ...

Sasky

•3 years ago

25 Replies

Heated glove suppliers?

Has anyone found a UK-based maker of heated gloves - especially thin/ liner gloves? I used to get them from Thermosoles/Designed4Inspiration in Austria, a...

Has anyone found a UK-based maker of heated gloves - especially thin/ liner glov...

LadyTrundle

•4 years ago

17 Replies

Just been diagnosed with Raynaud's a couple of weeks ago

I have just been diagnosed and am very grateful to have found a forum which might offer support. I first realised I had a problem when my feet got icy cold and...

I have just been diagnosed and am very grateful to have found a forum which migh...

Pam45

•4 years ago

37 Replies

Waving Goodbye to Hand Hobbies 👋

Hi Everyone! I'm back with another topic and more questions! My post today is revolves mainly around Rauynards Phenomenon and mobility issues caused by...

Hi Everyone! I'm back with another topic and more questions! My post today is ...

Vicrum88

•4 years ago

5 Replies

Raynauds and cataract operation

Hallo everyone. New here. I am a 62 year old female. I have primary Sjogrens with overlap diffuse systemic sclerosis and bonus Raynauds on top. The steroids I...

Hallo everyone. New here. I am a 62 year old female. I have primary Sjogrens wi...

Stelvio

•5 years ago

7 Replies

Recommendations for gloves?

Hi All, Thank your letting me join your community. I have primary Raynaud’s and was wondering if anyone had any recommendations for gloves that people have...

Hi All, Thank your letting me join your community. I have primary Raynaud’s and ...

citygirl1234

•5 years ago

12 Replies

Advice

Anyone with Primary Raynauds also have vitamin D deficiency, any ideas for supplements besides fultium d3 which I have prescribed.. TIA x

Anyone with Primary Raynauds also have vitamin D deficiency, any ideas for suppl...

BertieB_280616

•6 years ago

3 Replies

Nipple Raynaud's?

Hi everyone. I'm new here and I've joined because I'm writing a paper on Raynaud's and breastfeeding and wanted to see if anyone out there has also been...

Hi everyone. I'm new here and I've joined because I'm writing a paper on Raynaud...

cagol

•6 years ago

2 Replies

Raynauds disturbing my sleep

Hi there, My names Matt and im new here. Im 28 and been diagnosed with raynauds for about 1-2 years, although i suspect ive had it for longer and less severe....

Hi there, My names Matt and im new here. Im 28 and been diagnosed with raynauds ...

Matty662

•6 years ago

43 Replies

Send Us Your Raynaud's Story for Raynaud's Awareness Month in February

We need people to share their Raynaud's story in press and media for Raynaud's Awareness Month in February. You’ll be helping others with the condition and...

We need people to share their Raynaud's story in press and media for Raynaud's A...

SRUKadmin

Partner•6 years ago

2 Replies

Raynaud's - Ropinirole

Hi everyone, I have recently replied to a post by Kathlene that was made over six years ago. I too found that my Raynaud's began a few months (2010) after...

Hi everyone, I have recently replied to a post by Kathlene that was made over si...

Smileyicon

•6 years ago

6 Replies

Hot hands at night

Hi all - I have Raynaud's and recently started having hot hands at night. The heat is so intense it keeps me up. I run cold water on them and that seems to...

Hi all - I have Raynaud's and recently started having hot hands at night. The h...

Wendy60616

•7 years ago

6 Replies

Handwarmers for treating Raynaud's

Hi there, I suffer with Raynaud's since I had my first daughter 9 years ago, it started with only one or two fingers at the time but now it is getting more...

Hi there, I suffer with Raynaud's since I had my first daughter 9 years ago, it...

warmheartz

•7 years ago

8 Replies

Raynaud's

Hi , I joined because I believe I have Raynaud's Phenomenon........... undiagnosed but suspected for years.............. always rugged-up and cold, fingers and...

Hi , I joined because I believe I have Raynaud's Phenomenon........... undiagnos...

BriZeee

•7 years ago

2 Replies

Raynauds - help?

Hi, I was diagnosed with Raynauds back in January 2017. I was given a leaflet which referred to arthritis and had a section referenced to Raynauds, but apart...

Hi, I was diagnosed with Raynauds back in January 2017. I was given a leaflet wh...

AField

•7 years ago

6 Replies

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Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

Raynaud's posts

Raynaud’s?

Gloves recommendation for Raynauds

USB Heated gloves for outdoors - home made

really itchy legs

blue fingers when in hot bath??

Sildenafil

Diagnosed by anecdote

Hypnotherapy for Primary Raynaud's

❄️Raynaud's in Children Article❄️

Raynauds suggested by Pharmacist

Reynauds & Achenbach

Channel 5 TV programme

How Many Of You Developed HAVS Raynaud's or Vibration Finger at Work?

Gloves for Raynaud's

Heated glove suppliers?

Just been diagnosed with Raynaud's a couple of weeks ago

Waving Goodbye to Hand Hobbies 👋

Raynauds and cataract operation

Recommendations for gloves?

Advice

Nipple Raynaud's?

Raynauds disturbing my sleep

Send Us Your Raynaud's Story for Raynaud's Awareness Month in February

Raynaud's - Ropinirole

Hot hands at night

Handwarmers for treating Raynaud's

Raynaud's

Raynauds - help?

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