hi all, any recommendations please for Raynauds hands with painful tissue scarring? I’ve had it quite badly this year and have succumbed to being medicated this coming winter. I feel like I’m only a few showers away from a digital ulcer as the scarring is quite bad and tender. (Also read a few posts on iloprost which I’ll speak to Denton about.) but in the meantime, looking for stylish gloves with a warm lining that will save me this time of the year.
Always use icebreaker merino wool gloves indoors during the day and have a another thicker wool pair for the car (in addition to heated steering wheel), so you can imagine, I need something revolutionary…
thanks!
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Nw6London
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I've just discovered these. They aren't the best looking gloves but they are really warm. There's full finger gloves inside, insulation and an outer waterproof layer.
Hi. I've used merino wool and pure cashmere ones due to lots of allergies have found it needs to be a pure material. Also it really helps to wear wrist warmers as for some reason warmer wrists help the rigid going very blue fingers when having a bad flare. Good luck
So far this year I’ve used iPhone touch screen gloves from H&M (set of 2) and old Turtle Dove recycled cashmere fingerless gloves. But it actually hasn’t been very cold in Scotland until now - chillier today. I think this will probably the way I go this year with heated usb battery pads to hold in pockets when it’s extra cold.
just an update. I stumbled upon Hestra gloves and I’ve been using them for the past few days since the turn in the weather.
I’m using mittens (leather box mitt) which comes with an additional, in built wool liner. So far these have worked really well with the -4c temperatures we’ve had overnight. I also like their longer leather glove (Vera) which is more fashion orientated but still warm as they are cashmere lined (but clearly not as warm as the mittens). I find that the fact that they cover the wrist is a game changer. Some times it’s also nice to look a bit smarter and not look like you’re constantly going to your boxing class…
Also ordered a pair of turtle doves wrist warmers. Fingers crossed the combination works. Good luck for the winter ahead.
The M&S cashmere-lined leather gloves have been my go-to for a while. They're thin enough that I can wear them for driving, and also that I can do things like paying at a checkout without having to take them off. The cashmere makes them a bit warmer. There are definitely warmer gloves out there, but if I have to keep taking them off to use my hands I find it defeats the point.
I do also have a lovely thicker leather pair that's lined with rabbit fur that's really warm, and also a pair of really snug UGG mittens (but terrible customer service, so don't recommend from that point of view) - these are both good for things like countryside walks when I know I won't need to keep taking them off.
The other issue I have with gloves is that I've got quite a lot of bone loss in my fingers, so my already-short fingers are now getting even shorter. I find all gloves are far too long in the fingers, but have to make do as I can't manage without them.
Although gloves are essential, keeping my core warm also makes a huge difference, so do think about that. Even thin thermal base layers can help.
Ultimately, medication has made the biggest difference for me. I currently take sildenafil 2-3 x a day, and this helps a huge amount in reducing Raynaud's attacks. I also take bosentan, which doesn't improve the Raynaud's symptoms, but is used for preventing ulcers. I've been without the bosentan for a bit while a new prescription is organised (you have to get funding approved), and have my first infected finger ulcer in a year or so, so I definitely think the bosentan was helping.
I've previously tried nifedipine and losartan for Raynauds, but the sildenafil is much more effective for me. I've also tried iloprost infusions twice, but not sure if they helped or not. I'm on a waiting list for a consultation about botox treatment in my hands, to see if that helps.
Definitely do all you can to keep Raynaud's symptoms under control. The lack of oxygen to tissues can cause a lot of problems - pitting scars/sores (which it sounds like you may have now), ulcers, and even bone loss (acro-osteolysis). Even at my best, I normally have pitting sores on most fingers, and I can't really get these to heal up completely. All I can do is try to prevent them becoming ulcers. So if you can prevent the sores developing in the first place, that's the ideal. Obviously also take practical measures like wearing marigold-type gloves for cleaning, etc., and keeping your hands moisturised.
I hope you find some things that help. Let us know how you get on.
P.S. Very jealous of your heated steering wheel! Sounds amazing!
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