I have a horrible feeling I've asked this before but here goes: I have limited systemic scleroderma and have lost a lot of weight, so I'm now only 7 st 2 lbs (46 kg). Yesterday I had a phone consultation with a dietician who said I am actually malnourished which is making me exhausted and weak and with some muscle wasting. She prescribed an Aymes shake supplement drink, two sachets a day for two months. I am finding it difficult because after I drink one of these I can't face my usual "extras" like yoghurt or bananas or more biscuits, or whatever (I really don't like milk, which doesn't help). So my total calorie intake isn't as much as it should be.
The dietician wasn't even convinced it's the SSc which has caused the weight loss but a negative life change which happened around when I was diagnosed. Or a combination of the two. Whatever the cause, the result is the same – I somehow need to gain weight and regain energy.
I'm really looking for tips, similar experience, sympathy etc! 😆