Fatigue and what I can only describe as back stiffness

[-missymoo]

Hello everyone, I have Limited Cutaneous Systemic Sclerosis and secondary Raynauds. My diagnosis came in January 2017, I’m still getting to grips with all the changes and one of them is the fatigue, how do you cope? If I sit down for 1/2 hour, I’m asleep, just ridiculously tired all the time. I have to keep active and go to the gym four times a week, but finding this really hard to do. Also, I’ve been suffering with my back, feels very stiff and movement is getting limited, doing shoe laces, putting socks on, standing for too long. I can’t seem to find an actual link with ssc and back pain?!

Anyone else suffer? X

[Ajoshi]

I have limited scleroderma too. Suffer with severe back and also neck pain. MRI scan normal. Tried accupunture helped briefly. Now back to square one with severe pain. Just manage on day to day basis

[Patr1c1a]

I have that problem and find streatching exercises and gentle Pilates helps. Exercise and heavy work seems to make it worse and I stiffen up if I sit too long as well. Don’t know if this will help but it is so frustrating isn’t it.