Does this sound like scleroderma?.. - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Does this sound like scleroderma?..

Frankosmythe profile image
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Hi everyone.

For years I’ve suffered with fatigue, underactive thyroid, raynauds.

I’ve got osteoarthritis in my right knee and a bulging disc in my thoracic spine which is huge! (And inoperable)

I suffer with terrible brain fog, pain in my arms (burning in my forearm), pain in neck and shoulders, feel like I am walking on marbles, and have developed a small lump on my thumb knuckle.

I have a very borderline scl-70 reading of 0.9

My immunologist said he thought it might be scleroderma but now changed his mind? I’m seeing a rhumatologist next week but worried sick! It could also be fibro?

Any thoughts?

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Hi Frankosmythe,

It is good that you're seeing a rheumatologist next week as they should know about all autoimmune conditions such as Scleroderma and Raynaud's and will be able to give you some more information on the test results you have.

We're sorry to hear that you're in pain and other symptoms too. Do let your doctor know all these symptoms when you meet. If it helps explain things to your doctor, you could print off this page and take it with you to your appointment sruk.co.uk/scleroderma/what... and also take a list of questions you want to ask when you're there. let us know how you get on. Best wishes

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