Me

[Canadiankat1969]

Hi my name is Kathy I was just diagnosed with this disease as time goes on I am hurting more and more right now my feet really hurt and my muscles all over and a really bad headache. I hope to be able to meet new people on here with the same problems and we can console each other

[LilaJoe]

Hi Kathy

Welcome to the site

Sorry it's getting difficult. It can be a very swift illness, there is however lots of support on this site,as well as answers to many questions

Take care and best wishes

Lila

[nanagill]

Hi Kathy and welcome to this site. I'm sorry you're feeling so bad right now. Hopefully if you've been given medication through time it will help to settle things a little. I find this site very helpful and informative. I'm sure you will too. Take care

[MEW53]

Hi Kathy,

Welcome to the site, it has proved really useful to me since I joined, especially when you are thrown in at the deep end with a rare disease like this. The early stages of the disease are not good, but with the right medical helps and drugs prescribed things will improve gradually.

I found it quite daunting in the beginning 3 years ago, but have got used to coping with Scleroderma/Myositis by pacing myself and not overdoing it. It was quite a big life change for me as I was always on the go all the time.

Hopefully the site will help you with answers from other fellow sufferers.😀