Three years ago the all over excruciating unbearable pain came on like a ton of bricks and stayed for 2 1/2 years . I was told I had Systemic Scleroderma in June 2016. I have developed the Acid Reflux/LPR badly and my fingers and hands are still very stiff BUT the 24 hour Excruciating forearm, hip, leg, neck and thigh pain/stiffness/ cramping that I've had for 2 1/2 years suddenly has went down from 9-10 to a 4-5!?!! It is crazy.. the pain 1st appeared in forearms, then front of hips, neck, lower back and thighs and now it seems to be lessening in that order. I imagine this is only a short remission but in the mean time I am doing acupuncture 1-2 weeks and seeing my Rheum Scler Specialist at UCLA tomorrow afternoon. I know the LPR/reflux is very bad and am now on 2 different meds along with taking probiotics, Aloe and trying to adjust to strict low acid diet. I am trying to make most of this time but I have a feeling it's going to keep changing and get worse but trying to keep positive. Hands and feet feel tight and stiff.
Anybody else experience the pain going into remission or disappearing?? I don't doubt that it will now just morph into a new symptoms in interanl organs, hands, feet and hopefully not face but so scared. I will repost after Dr's appointment.