There is now a healthunlocked specifically for scleroderma!

sclerodermasociety.healthun...

[Hanosity]

I would recommend people stay on this site even if they only have Scleroderma! The Raynaud's and Scleroderma Association work 50/50 with Raynaud's and Scleroderma - also they use this forum to inform a lot of the questions that go to specialist doctors in the members newsletters (actually worth joining for the newsletter as a lot of the questions I see on here have been covered by the leading specialist in the UK Chris Denton in the newsletter). The team also check the site often and you will notice replies to queries from staff. The CEO suffers from Scleroderma so it is not just a Raynaud's site - it is a large charity that, because the illnesses are often interlinked, works with both.

I have Raynaud’s and Scleroderma but it has always been my Scleroderma that affects me most and since I was 8 I have found the association a massive support and I would recommend people keep to this site as it means you have a direct link to a fantastic full time team and information for associated conditions like Raynaud's too

All the best!

P.s The direct Scleroderma information from the RSA is at scleroderma.org.uk

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I wasn't suggesting people leave this site at all, just recommending an additional site that may be of use, the more support people can get the better?