Having a disease that nobody has heard of is a lonely business. When even the doctors cannot recognise it, or tell you what is going to happen, it is lonelier still. Scleroderma Awareness Day was created to tell people, including the medical community, what it means to have this disabling disease. 29th June is a day to recognise the bravery of those who live with scleroderma, and to demand equal treatment and equal care for people with scleroderma across Europe.
If you can just tell one person on this day about scleroderma you can help to raise awareness of this rare disease. Hopefully this way, we can raise awareness together. For more information about worldwide events visit fesca-scleroderma.eu/news/w...
Importantly, this is a day to remember that you are not alone in having scleroderma and people across the world are working together to find better treatments.
The RSA's chief medical advisor, Professor Chris Denton from the Royal Free Hospital in London has supported the day, saying “The importance of Scleroderma Day is to highlight this rare and often poorly understood condition but also to offer hope to sufferers. Better therapies are now becoming available and there is a great interest amongst health professionals and research scientists in developing new treatments. The Raynaud's & Scleroderma Association (UK) is funding research into several areas which will ultimately provide better care for patients and hopefully reduce the impact of scleroderma on patients and their families”.
The picture shown on the poster is by Swiss artist Paul Klee, who suffered from scleroderma and whose work was influenced by his condition.