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Scleroderma & Raynaud's UK (SRUK)

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HI everyone I`ve not been on here before.

Butterfly54 profile image
9 Replies

I`m usualy on the Fibromyalgia site.But I do suffer very severly from reynouds.

I have very red palms and when I looked up for what it might be,Crest came up and I must admit it looks like my palms.

Can anyone tell me if they have this with their palms please.I don`t see my rheumy again till July.

I was diagnised with fibromyalgia and Sjogrens syndrome in January,but don`t know if I have primary or secondary sjogrens.

Thanks for any help you may be able to give.

Hugs Butterfly54 xxxx

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Butterfly54
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9 Replies

No i dont get red palms, i have scleroderma (crest) and do get secondary raynauds, not sure that i,ve heard of red palms before? i have had crest for 25 years and have many problems but havent heard of this.

zenabb profile image
zenabb

Welcome to our website. I have had CREST for very many years and my hand occasionally go red but not all the time.

AnnieMc profile image
AnnieMc

Hi, I have secondary raynauds and scleroderma, suffer from raynauds a lot if i don't take adequate medication, has never affected the palms, but i suppose it is possible. Make sure you get checked out.

LynnD profile image
LynnD

Hi just to say i have raynauds and Lupus and i haye red palms when people see them they think they are sore but they are not.

Butterfly54 profile image
Butterfly54 in reply toLynnD

Hi LynnD,thanks for your reply.

The redness on my palms and the pads under my thumb and fingers started out of the blue in the 80`s.My sister even thought I had burnt myself,but like you they are not painful or sore.

My feet are the same and the reynouds is chronic.

I was diagnosed in January this year with fibromyagia and sjogrens syndrome.I see rhuemy again next month.

The g.p I had before this one was convinced I had lupus I have 12 of th16 i think it pointers for it.

But my ANA bloods always came back too low.

I don`t know if I have Primary Sjogrens(on its own)or secondary and that normally goes hand in glove rheeumatoid arthritis or lupus.

So it`s all a wait and see game at the mo.

Strangly enough the g.p that thought I had lupus,when I saw him for a chest infection he was more interested in my hands.

Love and hugs Butterfly54 xxxx

LynnD profile image
LynnD in reply toButterfly54

Hi Butterfly54 my feet and hands are the same it took a few years for them to found out i had Lupus they just kept looking at my hands. when i go out i try to hide my hands as every body seems to be looking. the only good thing about the cold you can wear gloves and be the same as every one else.Hope things go well for you all the best. LynnD XX

I also suffer from raynauds and have had red palms for about 4 years, had not thought to connect the two! caz

crazygrandma profile image
crazygrandma

I also have Raynauds and Erythromelalgia and it causes my hands n feet to turn red.Also my skin all over looks like a sunburn and I sweat really bad during a flare.Not sure if that is what yours is like or not.Also hands feel very warm to touch.

moimoi profile image
moimoi

An interesting subject. My palms go a lovely raspberry shade in warm water and my feet also but they are more white than pink until the heat gets through (sometimes seems like forever).

I have SPMS, Raynaud's and Osteoperosis. My mother has Osteo and Rheumatoid arthritus and my brother Benign MS so definately something in the family.

Symptoms between MS and Raynaud's blur due to sensory dysfunction but I am starting to feel less confused - its only taken 10 years...

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